Mirena coil

ladysparklexx

Sorry to just jump in and join in I hope no one minds. I had mine fitted five years ago under a GA to help with my endometriosis (not spelt right I know). I then had to take a course of danazol which stopped my periods immediately. I have had no problems with my and it has improved my life completely. Its now due to be removed which I am a little scared about as it was fitted under a GA and the strings trimmed very short I have always had to have yearly scans to check that its still in place, so my question is how on earth are they going to get it out????????

Dumbledore55

ACEY wrote: »

Nope. But it'll be being taken out now even if they offer one! Because if it IS in the right place, its still awful :-S

Quite tempted to pull it out myself :-O

It might be causing all the problems because it's in the wrong place.

suki1964

ACEY wrote: »

Well, I've decided - I'm having the horrible thing out! I can't believe it can be in the "wrong place" as the strings are where they should be and I have been told by 2 doctors that it is fine.

I'm really down about the whole thing, actually. 30 minutes of pain so bad they had to stop 3 times as I was passing out (and I never came near passing out in labour or with any of the broken bones or other scrapes I have had!!) 3 weeks of ridiculous pains that painkillers barely touched. Nearly 8 months of almost continuous bleeding with period pains - and I rarely got pain before!

What a failure. I also learned today that mum and dad sort of called a conference with my sister because they were so worried about me. Obviously, I didn't have a chat with them about having it fitted because.... they're my mum and dad.... but they actually sat my sister down to have a serious word with her because they couldn't understand why I had been deathly pale and drawn for 3 weeks and had a swollen stomach!

How embarrasing. And what a vile contraption it is :-(

Sorry to hear you have had such a rough time but its not a vile contraption - for so many of us its been a life saver. As Dumbledore has said, unless there is a scan done, they may well think its in right - and its not. ESP as you say you had so much pain on insertion. Yes its painful going in but for a couple of seconds - not 30 mins. It sounds like whoever inserted yours wasnt really experienced

So yes have it removed but please accept that for you its been a vile time but its not the mirena per se

suki1964

ladysparklexx wrote: »

Sorry to just jump in and join in I hope no one minds. I had mine fitted five years ago under a GA to help with my endometriosis (not spelt right I know). I then had to take a course of danazol which stopped my periods immediately. I have had no problems with my and it has improved my life completely. Its now due to be removed which I am a little scared about as it was fitted under a GA and the strings trimmed very short I have always had to have yearly scans to check that its still in place, so my question is how on earth are they going to get it out????????

Dont worry - they will get it out unless the threads have embedded, You really dont want to see the metal work they use to root around in there but they do manage mostly. It can be pretty painful though so a few painkillers before hand help.

But usually if they have any trouble and you cant bare it then they will usually offer you a GA on the DCU

Thats been my experience. I too have the threads cut very short and only once needed a GA for removel and that was when the whole thing embedded itself in me

Frith

Well, thats part of the problem :-( I was so depending on it to be the thing that actually helped me and it hasn't! I'm disappointed it hasn't worked and disappointed that the Dr and nurse who fitted it thought it was right that the nurse had to keep checking my blood pressure as I kept passing out - surely that isn't normal procedure?! Disappointed with the 2 GP's afterwards who made me feel breathtakingly awful, searing, continuous pain for WEEKS was normal too.

I KNOW it works really well for lots of people (the vast majority) and that sort of makes it worse still that I am the odd one AGAIN that has all the side effects and none of the benefits.

The mirena is a good idea but you'll have to excuse me if I give mine a good glare as it heads towards the bin!

The Dr who fit mine is in her 50's, specialises in women's health and said she had fit hundreds (I mentioned I was worried about having a perforated uterus and she said she had never seen it happen in years of fitting hundreds of them).

Bronnie

suki1964 wrote: »

Yep

I know as soon as mines running out ( as in the hormone) my sex drive goes

Never had this problem either!!

Must repeat myself , to give a balanced view to this thread, never ever had any problems with my Mirena from day 1!
Contemplating having it removed as I am 52 and not really sure where I'm up to with the menopause, so would like to take the Mirena out of the equation!

Not intending to diminish the probs others have had BTW.

Bron
x

Dumbledore55

I can actually give two sides to this. My first Mirena was a god send, had it for 5 years and although the bleeding didn't stop all together, it was much lighter and only 4/5 days per month instead of the 21 I was experiencing. The pain lessened as well so I was quite happy. When it got to near the end of its life cycle, I started to experience some breakthrough bleeding and longer periods.

Had it changed and this time it's no real help. I'm back to bleeding 21 days out of 28 I might get 4 days without and then it starts again, starts and stops all over the place, really heavy again and the pain is unbearable at times.

Got a scan on 6th Nov to check its in the right place. If not, it'll be changed if it is then I'm afraid its the ablasion as my next option.

I understand how demoralising and depressing it feels when you really wanted it to work and it hasn't but it is worth asking your GP for a scan. I don't want any more children so the ablasion is fine for me, I'd prefer not to have it though but if you want children the Mirena, when fitted correctly, can be a life saver or at least a sanity saver.

Good luck.

oystercatcher

Acey, just to warn you that around 24 hours after I had my mirena removed I had a HUGE flood in the middle of Tesco's, thought that was my normal period but then that turned up on cue around a week after the flood had stopped :mad:! Obviously due to hormones all over the place but just so you can 'be prepared' as it were !

I hope you find some sort of solution to all these problems.

I've mentioned somewhere, not sure if it's this thread. Endometrial ablation was the answer to my problems which were similar to yours!

I know loads of people who love their mirenas but it wasn't the answer for me !

fudgecat

Acey, get the damn thing out. Why anyone would want such a contraption I have no idea. The pain and discomfort you have been fobbed off with for such a long time beggars belief. And I though we had moved on since the 70s.
The menopause is eagerly awaited in in the fudgecat household. In the mean time a combination of wine, fags, stress, a poor lifestyle and a seriously negative attitude to pregnancy seems to be doing the trick.

janet6267

Oh dear, I had one fitted a few weeks ago, glad I did not read all this before or I don't think I would have had it done!! I did find it painful and had labour pains for the rest of the day, they were much worse than the period like pains I had been told to expect. I felt really hot and almost fainted and was tempted to run away but I couldn't stand up straight. Took painkillers and led on the sofa for the rest of the day and evening, after that everything seems fine, no sign of a period yet and having it checked early December so fingers crossed. I did say if it has come out then I won't have another one fitted. I felt like I had an alien being inside me for about a week and then I seemed to forget about it. Not the best experience in the world I think.