temporarily disabled ?

[Deleted User]

elaina79 wrote: »

Hi I suffer from this as well and I know how painful it can be. DLA is notoriously difficult to claim at the best of times and even with a premanant spinal deformity I haven't bothered to claim.
As it will be a temporary thing, they will probably reject the claim.

Good luck with the pregnancy I am due in June as well xx

Just a question,if DLA is so difficult to claim why are more than 2 million people getting it?
If you havent applied you cant possibly know if you would be awarded DLA or not,my advice to you would be to apply

jane130

thanks all , I don;t for one minute think I would be able to get dla becuase its only 5 month until i am due and chances are it will go at the birth ( i have even heard stories of it going ahead of the birth - i can live in hope)

thanks sarah louise, i will ask the school about that , i know another parent has a bus pass provided by the school becuase her daughter has asthma and can;t walk far so hopefully they will be able to give me some advice.

TaBunny

Oh Jane that sounds awful and to think when we're pregnant is supposed to be a happy time, did you have this syndrome with your other child/children? I really hope that you will feel all better soon and be back to your old self. Hugs.

daska

I had severe SPD during both pregnancies. During my first pregnancy I ended up virtually immobile as a result but, during my second pregnancy (10 years later, aged 40+) I kept it under control by visiting an osteopath. Also, ask your GP for referral to a physiotherapist, they might be able to provide some support and relief. My physio tried to refer me to the OT but they refused to visit on the basis that I was pregnant - ignoring the fact that I was also ill and registered disabled!!!! - My GP was horrified when she found out...

All the best, I hope you find some relief.

jane130

i did suffer but with previous pregnancy but only for a couplke of weeks at the end of the pregnancy and it wasn;t too bad .

i am getting physio and seeing an acupuncturist that was reccomended to me and that offers a little relief .

luckily i love being pregnant and the miracle happening within me makes the pain worthwhile.

mrcow

I've had chronic SPD through all of my pregnancies to the point of being unable to walk.

Try acupuncture - after 3 sessions during my third pregnancy, I was able to walk again without pain.

I wouldn't for one moment think that you'd get any financial help from the state for it though.

daska

but the NHS does have some osteopaths and acupuncturists, and Physios can provide support belts if appropriate (which are brilliant). To be clear - I get the higher mobility DLA so anything that reduces my mobility further is a serious issue. The osteopath kept my SPD completely under control. I did try acupuncture as well but didn't get any benefit. Different treatments suit different people.

savemoney

DLA is also very difficult to get so dont believe the hype. You often get turned down and then appeal and it can take almost a year to get it

daska

Have a tot up of how much it costs you in bus fares etc and think (please don't hate me for this) about getting a second hand mobility scooter, you could even appeal for one on Freecycle. Being disabled (by whatever) during pregnancy is miserable and if you're already housebound and have 5 months to go then I do know exactly how you feel because I've been there. If by any chance you have to have a section then you'll love it after the birth as well. The baby can go in a sling at first and then on your lap once able to sit up - use reins and strap them around your waist. My 19m loves my scooter and happily sits on my lap to go to playgroup etc and will now walk alongside for short periods. We (I have two teens as well) refer to it as 'mummy's pram'.

code-a-holic

I hope i can help here!
I had Spd start with my 2nd child. I was 13 weeks when i was given my crutches. I was able to claim incapacity benefit during the pregnancy and then claimed DLA. I cant say excatly when each kicked in - it was nearly 5 years ago. But unfortunatly for me, SPD has caused permanant disability. The short term incapacity benefit turned to long term incapacity.
I have always had DLA at higher mobility rate and lower care rate. I had my first payment before he was born.

I havnt been able to lie flat since about 20 weeks in that pregnancy (hip falls out of the pelvis - ouch!) and my whole way of life changed dramaticlly as a result of SPD and lack of knowledge with medical staff. I could rant forever about it!

I have a chiropractor now who is fantastic and for the first time in 6 years im seeing some improvement - despite being pregnant at the moment! Pilates im told is very good at correcting muscle damage from SPD, which i will start after this baby is born. Much of the muscles around my girdle area has pretty much dissapeared down to SPD so it will take a long time to fix.
Due to the DLA i was able to get a motability car which was becoming essential as putting my foot on the clutch was very painful, an automatic car is wonderful!