The Compers Inn - Part 11

Miss_Cinnabon

omg sally, that sounds horrid, u ok now then?

ugh at being awake, mega ugh:eek:

Miss_Cinnabon

night cistolic :A xx

sally2489

I'm fine as can be!!
Everything controlled with medicines so far...but docs have said condition will get worse. Mom and little brother got it too!! They told mom she won't live past her teens...shes 44 now!!
So they'r learning from us now, because they don't know much about our condition!
Its associated with my rare thyroid condition...means i have "multiple" problems like osteoarthritis in knees/elbows, (I'm only 19!) has affected height (am 5ft, mistaken for 12 yr old once...thats how young i look!) eye problems, kidney, stomach.etc
Mom and brother have colostomy bags and catheters they have to deal with!
Mom and me have milk allergies...bro doesn't! so, we're not all the same!!

I was really brave when they said i will be awake!!
Was thinking with anaesthetic i won't feel anything!! Putting the anaesthetic injection in mega-hurt, but then didn't feel anything, until he put the stiches in!!

Miss_Cinnabon

lot to deal with as a young age hun xx

is that maybe linked with your sleep issues too?

sally2489

Docs don't seem to think so...just interested in making a name for themselves by testing medicines on us, and learning from us! :mad:

They said my melatonin levels low...so gave me the tablets...that bought my levels up...but still no sleep!! :mad:

Also, brother and mum both have never had sleep issues like mine!

Miss_Cinnabon

hmm dont know then, could be linked then again might not

right im off, best get some sleep xx

sally2489

princess_pixiedust wrote: »

hmm dont know then, could be linked then again might not

right im off, best get some sleep xx

Thanks for being here...been nice to tell someone, most people i meet don't even know i have anything wrong with me...because i walk/talk fine!
So, it was good to actually tell someone about it...feel lighter now!

night night. xxx

sally2489

Night/morning everyone!

Going bed now!
I think sleep is on its way!

Appts at 11.15, gotta be up by 10am! First time driving there by myself! :mad:
Haven't decided if i'm going to tell them to do more surgery or not yet! :mad:

Cu all tommorow sometime!!

gingerchick

Quick good morning to you lot.
I take it fb parcel passing is still a no go.
I'm at work atm, but finish the shift in just over an hour!
So hopefully when I get back home, have a nap for a couple of hours (not back at work till Friday night) fb parcel will be back on.

See you all later.

Edit to say, good luck with your appointment today Sally. Not a nice thing you've been through.
I bet you get all the medical students around you. Hope it goes well.

Miss_Cinnabon

morning all:D

didnt get to sleep til after 1!

lo woke at 5.30, dh just shouted for him to go back to bed, so no rest for me today:rolleyes:

good luck at the hosp today sally xx