Narcolepsy

spora

Hello,

Ive been on this board bored for a little while now but i mainly just go on the freebies one. Anyway, i was having a look at some of the other boards and saw this so thought i would introduce myself.

Im Spora, im 21, and i am on income support as i suffer from narcolepsy. I was just wondering if there is anyone else around on here with narcolepsy?

I was diganosed with it about 6 months ago (right after i finished uni) and since then i havent been able to work as the dr says to wait till my meds work. Ive tried a couple of types of meds and various dose's and nothing has worked so far

I did a quick search to find some posts about narcolepsy but i couldn't find any. There must be some on here surely?

Anyway, just thought i would start a thread incase there are others

Horace

Hi Spora and welcome

I don't have narcolepsy but didnt want to pass you by without saying hello.

markelock

I've seen posts from friends of people with it. They will come...

markelock

I've sent a PM with a thread on here, also below

http://forums.moneysavingexpert.com/showthread.html?p=15322983&highlight=narcolepsy#post15322983

pinkchix

Hi

I suffer from narcolepsy and cataplexy too
I was diagnosed almost 12 years ago now after I had my DD.

I am unable to work also which really gets me down.

any qs or just wanna rant a bit or summat else feel free and ill try help in anyway i can.

PolishBigSpender

spora wrote: »

.Im Spora, im 21, and i am on income support as i suffer from narcolepsy.

You receive benefits simply because you fall asleep during the day? Given that I have a friend who manages to work in a factory despite having narcolepsy, I really do wonder what your excuse is.

And people wonder why taxes need to rise....

Barneysmom

Blimey Polish, how sympathetic are you?
Not all types of this disorder are controlled by drugs.
I haven't got it but my DH had epilepsy which isn't always controlled by his meds.
It's a nightmare, and I do feel for you Spora. I hope you find the help you need.

PolishBigSpender

Epilepsy is a whole different thing however - it's not unreasonable for a person who suffers from fits to be on benefits, due to the nature of them. But narcolepsy? Nothing stopping someone holding down a normal job, particularly as the DDA will force employers to adjust anyway.

In fact, using the DDA to force employers into providing a place for naps could be fun

markelock

she's claiming benefits which she is entitled to? if anyone is to "blame", it's the government surely?

and that's assuming she shouldn't be entitled to it?

PolishBigSpender

Why should someone be entitled to benefits for a condition that can easily be catered for within a full time job?

And yes, the government's actions, particuarly in the uselessness of JobcentrePlus staff to actually find/sort out jobs for people like the OP are dreadful.

sharon59

PolishBigSpender wrote: »

You receive benefits simply because you fall asleep during the day? Given that I have a friend who manages to work in a factory despite having narcolepsy, I really do wonder what your excuse is.

And people wonder why taxes need to rise....

I think you are being incredibly judgmental -and ignorant! You have no knowledge of how badly they suffer and the dangers they are in because of their condition-maybe your friend was lucky enough to be a mild sufferer or was on medication that worked-unlike the poster.
Think they deserve an apology.
Maybe its best to engage brain before you type in future.
On this forum we try to support each other.