M.E Help

dormouse_2

Hi, can anyone give me any advice, ive been to & from the dr's for a few years now and had test after test, im now being treated with antidepressants, anyway someone suggested it might be ME as there friend had it and had simular symptoms to me. Ive looked at all the internet links posted on here and yes i have the symptoms, i feel relieved as i thought i was goin bonkers.

The question i have is how do i approach the dr about it?

Im working part time but struggle so much to get there that i now get a taxi, i dont feel i could finish work because i dont know if i would be entitled to anything.

My life consists of sleepin then a few hours work then sleepin again, i dont know how much longer i can cope can anyone advise me please.

purplegirluk1

dormouse wrote: »

Hi, can anyone give me any advice, ive been to & from the dr's for a few years now and had test after test, im now being treated with antidepressants, anyway someone suggested it might be ME as there friend had it and had simular symptoms to me. Ive looked at all the internet links posted on here and yes i have the symptoms, i feel relieved as i thought i was goin bonkers.

The question i have is how do i approach the dr about it?

Im working part time but struggle so much to get there that i now get a taxi, i dont feel i could finish work because i dont know if i would be entitled to anything.

My life consists of sleepin then a few hours work then sleepin again, i dont know how much longer i can cope can anyone advise me please.

Hi Dormouse,

If you feel you have M.E I would suggest you look for a GP that is willing to accept that M.E exists. I went though three GP's at my surgery until I found someone who suggested I might have M.E. It is not easy as there are still a lot of professionals that believe it does not exist. Ask to be refered to your local M.E specialist. My local area does not have a great service, I have been on a course of pacing sessions but that is all that is offered. You may be lucky to be in a better area. Good luck with finding a sympathetic GP. That really is the first thing to do, if you find that then you will atleast feel believed and like there is an explanation to your illness. I hope that helps a little. I know lots of others will respond.

OSFA

dormouse wrote: »

Hi, can anyone give me any advice, ive been to & from the dr's for a few years now and had test after test, im now being treated with antidepressants, anyway someone suggested it might be ME as there friend had it and had simular symptoms to me. Ive looked at all the internet links posted on here and yes i have the symptoms, i feel relieved as i thought i was goin bonkers.

The question i have is how do i approach the dr about it?

Im working part time but struggle so much to get there that i now get a taxi, i dont feel i could finish work because i dont know if i would be entitled to anything.

My life consists of sleepin then a few hours work then sleepin again, i dont know how much longer i can cope can anyone advise me please.

I have suffered witt M.E for many years now. However when I first got ill I didn't get diagnosed for years and this alone made my condition worse.
I would really advise you to stop work immediately. This could make your condition much worse. DO NOT PUSH YOUR BODY. If you feel tired then you should lie down and rest. Do what your body is telling you.!!!
I had M.E really bad for 8 years, I couldn't watch tv,read,go outdoors or talk to people. Suicide was knocking. Then I was diagnosed by a specialist who told me all my feelings etc are real and true. Well I studied different diets,read about the "miracle cures" and even tried homeopathy. At the time I had a friend in Sweden who sent me a report from some specialists which confirmed that "the Mercury fillings in your teeth could do harm and cause M.E". I then sent this info to the M.E society who then got it into the media.
Anyway after more studying I got myself a lot better. I will never be fully recovered but I do go out and enjoy life again.
Feel free to P.M me for any help .

vikki_louise

hiya, I've mot read all the replies (sorry) but wanted to reccommend AYME, they are fantastic. I've had ME since i was 11, but wasnt diagnosed until just before I turned 16. I joined AYMe the day i was diagnosed and don't know what i would of done without them. the link is www.ayme.org.uk

Benefits wise im on DLA (Im bedbound) and young people incap benefit

CJ

Strike_Team wrote: »

I've had ME for 18 years. I'd forget the treadmill, gentle walks and other light activity are much more appropriate for ME. You need to learn not to overdo it, so you don't do too much one day and end up flattened for the next 3 days. The graded exercise "treatment" has caused more than a few people to relapse badly through over-exertion. Avoid it like the plague. Sunlight and healthy diet help too, as do supplements - I take Zinc, Magnesium and Cofactor Q10..

I would totally agree with this advice as I've had ME even longer. I always hated telling newly diagnosed people at support group meetings how long I had been ill as it's very depressing but I firmly believe that over doing things and being made to keep going, exercise and 'get a life' are the reasons why we are still ill today.

It is VERY important that you take care of yourself, no graded exercise, good diet. I am taking a supplement called CORVALEN which supports muscle, check out Dr Jacob Teitelbaum. Vit D is also getting good reports. Supplements are trial and error what suits one might not suit another.

Also see www.meresearch.org.uk

mardatha

I'd agree with OSFA, I struggled to stay working and it made me much worse. And a gp will go through loads of tests and waste a lot of time and then he might say its ME and he might hope you just go away . If he does then get another one xxx