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cherw1981
Posts: 2,346 Forumite

Hi all.
Ive had crohns disease since being 15 (27 now) and would love to speak to any other sufferers on the board for advice re: benefits we are entitled to?
I have severe crohns and am on humira injections but am still suffering on a daily basis. Ive been off work months since a hospitalisation in June and only get SSP and lower rate mobility DLA. Its really upsetting that I have to worry about money on top of my symptoms each day. As crohns can go into remission ive come up against alot of brick walls re: DLA, but I have been flaring since January now and its no better. I fear my employment is coming to an end as I may be getting dismissed under medical circumstances. I just dont know what to do really. Im lucky to have a partner who works but thats barely enough to support both me, my partner and his 12 year old son. :rolleyes:
Ah moan over.
Ive had crohns disease since being 15 (27 now) and would love to speak to any other sufferers on the board for advice re: benefits we are entitled to?
I have severe crohns and am on humira injections but am still suffering on a daily basis. Ive been off work months since a hospitalisation in June and only get SSP and lower rate mobility DLA. Its really upsetting that I have to worry about money on top of my symptoms each day. As crohns can go into remission ive come up against alot of brick walls re: DLA, but I have been flaring since January now and its no better. I fear my employment is coming to an end as I may be getting dismissed under medical circumstances. I just dont know what to do really. Im lucky to have a partner who works but thats barely enough to support both me, my partner and his 12 year old son. :rolleyes:
Ah moan over.
Nerdy Comper since 2005:D
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Hi cherw welcome to the threads-l dont suffer from the same illness as you so cant offer help but thought you might get some advice from the person who is a worker who deals daily with the DLA benifits -also he s happy for pms if you want to do it privatly -his /her mse id is thanatos.
If you read that sticky thread you can also pick up tips and links which may help.
take care and hope you feel a little better soon.
sharon x:j this money saving is such fun:T0 -
My wife suffers from Chrons diseases for the past 8-9 years or so. It started with being in a state of complete loss of minerals, severe diarrhea, etc. She was hospitalised for about 14-18 days. Since then, there have been 3 times when her chrons have flared and she was put on steroids. She is now OK but still unable to cope with everyday chores. She struggles to lift a bit of weight. Our son usually helps us. Living on 2nd floor council flat doesn't help either. When things were bad, she applied for DLA which was rejected. We haven't appealed against their decision.A shadowy flight into the dangerous world of a man who does not exist.
A young loner on a crusade to champion the cause of the innocent,
the helpless, the powerless, in a world of criminals who operate above the law.0 -
Hi, I suffer from Ulcerative Colitis, which I think maybe very similar to Crohns. I find this a very embarressing illness. A lot of people do not understand what it involves!! I have been in a lot of pain and discomfort with this. Every day is different. But in saying that I have not had a day free of this since I was diagnosed roughly seven years ago. I did apply for DLA only to be turned down - I appealled through CAB - and was turned down again. I am now on incapacity benefit to be reviewed in October 09. I hope this helps.0
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Have a read of this:
NACC Appeals guidelines
DLA Guidelines for Bowel Conditions
Debt-free day: 8th May 2015 "Remember that sometimes not getting what you want is a wonderful stroke of luck," Dalai Llama0 -
I have had Crohn's for the past 12 years and haven't had any joy with DLA. I have been turned down on 2 occassions and just can't go through the appeal process as well...
allydowd has provided some good links (and best of luck with it) but Crohn's seems to be one of those conditions that is very misunderstood unless you or someone close to you actually suffers from it.0 -
Hiya, my brother has crohns, but turned down for dla. My son has illeal fossal crohns (sp?) and although he gets dla its really on account of his arthritis. They see applications for that all the time, but they didnt understand crohns at all. My hubby has had a bowel resection and had a stoma bag for years, he was entitled to incapacity benefit and disabled grants for retraining for work, but not DLA!With Sparkles! :happylove And Shiny Things!0
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I think that it's terrible that Crohns/ulcerative Colitis is not recognised as a disability. It can in fact disable you a great deal! I have also had problems with my joints recently. My knee and wrist. I have had trouble walking, but this comes and goes, some days my knee will give way and is very painful on other days it doesn't seem too bad.0
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Hiya, my brother has crohns, but turned down for dla. My son has illeal fossal crohns (sp?) and although he gets dla its really on account of his arthritis. They see applications for that all the time, but they didnt understand crohns at all. My hubby has had a bowel resection and had a stoma bag for years, he was entitled to incapacity benefit and disabled grants for retraining for work, but not DLA!
DLA is not given on a diagnosis but on any extra needs that the illness causes.
I honestly would not expect anyone with a stoma to get DLA because of that alone. Most people manage their stomas perfectly well. If they don't and have no other problems (like arthritis in hands) then they need to see a stoma nurse.0 -
krisskross wrote: »DLA is not given on a diagnosis but on any extra needs that the illness causes.
I honestly would not expect anyone with a stoma to get DLA because of that alone. Most people manage their stomas perfectly well. If they don't and have no other problems (like arthritis in hands) then they need to see a stoma nurse.
Was just about to write the exact same post about stomas, I know people find it hard to accept having their bag but this is not the same as not being able to manage it - having an additional problem such as arthritis in hands obviously is different.0 -
Yes, I know, it just seems odd that he is classed as disabled at work where they had to provide him with a clean place for toiletting etc, but not DLA. Different sets of rules make it difficult to know what help you are entitled to.With Sparkles! :happylove And Shiny Things!0
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