Hirschsprungs Disease

arlybarly

Hi all

has anyone ever heard or know anyone with hirschsprungs disease, thanks.

soolin

There is quite a lot that come sup if you do a Google search, although it is often hard to search between real facts and pseudo health information.

If you know of someone that has been diagnosed then ask the clinical team for leaflets or info or try the following:
http://www.patient.co.uk/showdoc/27000620/


http://www.ich.ucl.ac.uk/factsheets/families/F000225/index.html

arlybarly

hi soolin thanks for the response, its a close family member with this disease and they have had it since birth, ive done loads of research on it over the years and proably know more than the doctors do lol. I posted on here just to see if i wouyld get any response from anyone else with it.

it is very rare and so this makes it difficult to know anyone else with it, believe it or not the only place research is being carried out is in america which in my opinion is very poor.

thanks for the links as well soolin xx

vannessaq

Hi,

My little boy has HD.

Is there a reason that you would like to know?

Feel free to ask any questions.