Transfering from no end date DLA to PIP?

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Hi all,


The person I care for just got a dreaded letter to say they need to transfer from DLA to PIP. The letter nicely warns that just because they're getting DLA now doesn't mean they're going to get PIP and I've seen plenty in the press to cause serious concern.


The person I care for has MS and has had it for thirty years, been on DLA higher rate all that time. Their health as seriously deteriorated over recent years and I believe they now are classed as having secondary progressive, and there's no way they'd be able to return to work or survive on the lower rate PIP, so I'm really concerned for them.


I've heard horror stories about Atos and what not, but it all tends to be connected to new applications or people who were perhaps not classed as "no end date/infinite" with their DLA.


Does anyone have any experience with this situation? Does the "no end date" not matter when counting towards PIP? Are you just treated the same as everyone else when applying or do they go a little easier on people who have been on DLA in such a way for so long with degenerative diseases?

I've heard a lot of talk about providing "evidence" with letters from healthcare professionals and such, but the info in the pack just says to include addresses for them to contact. Should I be chasing down doctors and what not for letters? And if so, what do the letters need to say?

Any help/advice would be a big help.
Thanks all.
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  • Prinzessilein
    Prinzessilein Posts: 3,257 Forumite
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    I am just waiting for the results of my PiP interview.

    I included a copy of the report from my consultant - confirming a couple of diagnoses and explaining how they affect me.

    For my GP and other specialists I see, I simply included their names and addresses.

    If you already have a report or letter, and it includes RELEVANT support for your claim then I would send a copy (never the original...just in case it gets lost!)....you are limited for time with the application, so I would probably not start asking for letters et.c unless they will contain compelling evidentiary support.

    I may be wrong, but my understanding is that having had an indefinite award for DLA is unlikely to have any particular relevance for a PiPs application.

    It might be worth bearing in mind that your friend can ask for a home visit if a face-to-face is deemed necessary. You may need to phone to request this...and you may need to be firm in stating the necessity - but they DO offer this.
  • Alice_Holt
    Alice_Holt Posts: 5,960 Forumite
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    edited 5 June 2017 at 6:25PM
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    The MS society has some useful information on completing a PIP form.

    I would suggest seeing if your friend can get help with the form from their local CAB / agency.

    Other sources of info include:
    https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-pip-claim/fill-in-form/
    https://www.benefitsandwork.co.uk/personal-independence-payment-pip/pip-claims
    https://www.mssociety.org.uk/ms-support/disability-benefits/PIP
    https://www.disabilityrightsuk.org/personal-independence-payment-pip

    It is always a good idea to enclose relevant medical evidence, as unlike with DLA the DWP are unlikely to contact her GP / medical referees as part of the PIP process.

    It is helpful if the medical evidence links to the PIP descriptors.
    This guide (although about PIP appeals) is useful on getting evidence:
    http://www.advicenow.org.uk/guides/how-win-pip-appeal
    Alice Holt Forest situated some 4 miles south of Farnham forms the most northerly gateway to the South Downs National Park.
  • easy
    easy Posts: 2,516 Forumite
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    lea_lea,
    the first thing I want to say is try not to take too much notice of the things you have seen in the press. It is my understanding that most applicants with genuine need are successfully assessed and get the appropriate level of award. The press is bound to only report on those cases where problems have arisen, giving us all a wrong impression.
    So, don't panic or waste energy on worrying.

    The best thing to do is prepare the paperwork for the person you care for with as much care as possible.

    Take a look at https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-pip-claim/fill-in-form/ which seems to be a good guide to filling in the paperwork.
    I would suggest getting as much evidence as possible to send with the application form, rather than just sending contact details for the medical professionals. From what I can gather reading the threads on here, the assessors don't bother contacting them anyway. If you have sent evidence/reports/letters from the GP/specialist/occupational therapist or anyone else who has dealt with the patient, then they can't ignore it. I know that will take time and effort, but if it saves the need to ask for a review or make an appeal for a wrong decision, it has to be worth it, surely?

    It seems that the indefinite award status of DLA has no bearing on the PIP application at all. The whole point of introducing PIP was to wipe the slate clean, and try to ensure that all claimants were genuine claimants, as DLA had started to get a reputation for payment to malingerers and fraudsters. Hence, the PIP assessment uses different criteria for deciding the award, and begins from scratch with each claimant.
    I really do believe that if you read and follow the guidance, fill in the paperwork correctly and with as much detail as you can, provide as much documentary evidence with the forms as you can possibly gather, then the person you care for will get the award they deserve.
    They might not get asked for a face-to-face interview, but if they do, don't panic about that. They simply need to re-iterate what was written on the forms in answer to the questions the assessor asks. Remember to keep a copy of the paperwork sent in the application so you/your caree can read through it again before the assessment interview (if that happens).

    I hope that helps.
    Good luck
    I try not to get too stressed out on the forum. I won't argue, i'll just leave a thread if you don't like what I say. :)
  • GlasweJen
    GlasweJen Posts: 7,451 Forumite
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    Definitely send your own evidence if you can. They didn't contact any of my specialists and they awarded me no PIP based on their assessment with a nurse, even though the nurse blatantly lied saying I walked up stairs and completed lower limb tests with normal results (I'm a paraplegic).

    Had to go all the way to tribunal. My indefinite DLA meant absolutely nothing to them.
  • poppy12345
    poppy12345 Posts: 18,022 Forumite
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    easy wrote: »
    It is my understanding that most applicants with genuine need are successfully assessed and get the appropriate level of award.
    I would disagree with you there. So many people that were on DLA before whether it was indefinite or not and even those who weren't on it have been refused PIP. Being geniune doesn't mean you'll be awarded anything. There's a lot of geniune people out there who have lost everything, mobility cars included.
  • w06
    w06 Posts: 917 Forumite
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    I think part of the driving force for change to pip was hte indefinite DLA awards, and so they don't attract any different assessment.

    Just to balance to bad experience stories, I had an indefinite DLA award, high mobility, middle care. Was moved to PIP this time last year, had been dreading the process since PIP was announced, but in truth the only bad bit was the wait (8 weeks from assessment to letter). I ended up with ongoing award enhanced for both parts, which having since looked at the descriptors is right, but is more than I'd anticipated. I didn't submit any evidence with my application, but did give permission for my DLA file to be used - it was at least a decade old though so doubt they did.
  • 50Twuncle
    50Twuncle Posts: 10,763 Forumite
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    I too have an indefinate end date for my award of DLA (mid care) from 12 years ago - I am dreading the arrival of a brown envelope from DWP !!
    You are not alone in being concerned ..
    Considering the joke process that I was forced to go through with my DLA (offered max care and mobility - reduced to nil both after less than 2 months - resolved by MP letter - accepted mid care) - I am not looking forwards to the transfer - despite my condition getting considerably worse in the intervening years !
  • cantcope
    cantcope Posts: 1,886 Forumite
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    I've just transferred from DLA to PIP.
    I have Relpasing Remitting MS and am a lot worse than i was when awarded DLA. I was on middle rate care and high mobility indefinitely.

    However, PIP is different and assesses different things to what DLA did. I have been awarded Standard rate care and Standard rate mobility for 6 years so have to hand my car back at the beginning of August.

    I have sent off for a mandatory reconsideration as some of the statements on the decision report are simply untrue and i feel i deserve enhanced for both. I am not hopeful anything will change for the better and am worried they may even take away what they awarded. They gave me the minimum points needed for each.
    Last bet : 26th Oct 2006:j Debt free 25th Feb 2008:j Living "my" dream:T
  • sleepy14
    sleepy14 Posts: 44 Forumite
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    I have secondary progressive MS and am now parallelized from the waist down I am dreading receiving the transfer forms, but I have a good consultant who is, if available happy to write letters for me.

    I am under no illusions when transferring from high rate, both parts DLA, indefinate. But I always enter these things knowing that planning is everything and getting as much advice as possible before hand should, hopefully bear the hoped for fruit.
  • Sillym00
    Sillym00 Posts: 40 Forumite
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    I don't have experience of moving from DLA to PIP but I successfully claimed PIP recently and, despite the horror stories I've read, the whole experience was pretty relaxed. A number of times during my assessment I was encouraged not to do myself out of points by being too positive and ambitious about what I could manage - the complete opposite to what I'd believed so please don't worry unnecessarily. If something awful happens then it can be dealt with but worrying about it before it happens won't change it!

    Read through each descriptor and answer as thoroughly as possible how each activity affects the person you care for. These are the answers they are 'testing' your claim on rather than a diagnosis. Medical evidence is helpful but if it's only a diagnosis it may not be detailed enough to determine how the person you care for is challenged in each area e.g. one person with MS may still walk fairly well while others with MS will require a full time wheelchair. So if you have medical evidence that outlines limitations it gives more 'proof' to what is claimed.

    Having said that, I was new to claiming anything and completely unprepared so I didn't answer the questions on the form very well and provided no evidence other than names and addresses of consultants etc. and it wasn't until I was at the assessment I found out that they'd received no reply to request for info from my doctors at all! In the end the assessment formed the whole basis of my claim along with a very kind and understanding assessor who helped a great deal. Maybe I was just one of the lucky ones...

    Good luck!
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