NHS Complaints, Anyone been through it?Several Issues with Dads care

Hello
I'm looking for some advice and if anyone has any experience in complaining to the NHS and whether it is worthwhile.
If I go through my situation with you, I feel the standard of care was dreadful, so many things were missed or not bothered with and ultimately I feel it led to a quicker deterioration in my Dad.

I apologise in advance for the length of this but I feel it will help me to type all the frustrations out and if you have the time to read over them and pass an opinion. I would be very grateful.

My Dad wasn't a well man (I knew this) he had several problems - severe kidney disease, a heart problem, peripheral vascular disease and type 2 diabetes. I'm certainly not looking for excuses for him passing (he passed peacefully last week at home) but I believe the standard of care was poor, I'll outline some of the instances below.

1. My Dad seemed to be put in a general ward, people with all sorts of different reasons and it proved as they did not have a sufficient grasp of his health problems and his needs and requirements. He had previously been in a specialist renal ward in a different hospital and everything was dealt with immediately and promptly. (I later found out it was a general ward which specialises in diabetes). Making some of the errors seem even more strange.

2. My Dad came into hospital due to fluid in his legs and lungs being the primary reasons, but he had several other little things needing to be kept on top of....
He has a cut on top of his middle finger, it was small but it had gone black. He was in agony with it. He complained to the nurses constantly, they dismissed it, as did the Dr, as did I and he was told to put a plaster on it. After 3 weeks the blackness was nearly a quarter of the way down his finger and his other finger tips were turning blue. He was finally sent for an x-ray on the third week and then told it would need amputated but there was no point in doing this now (mainly because he had been told he only had weeks/months to live by this point).

Surely a man with peripheral vascular disease, type 2 diabetes and who nearly got his toes amputated 2 years previously in the same hospital should have been a red flag with a finger like this?

2. My Dad had several very bad cuts on his legs and an ulcer on the back of one. They were looked at once. I was told they did not have big enough plasters, I had to bring them in and was changing them regularly for him. Eventually after 3 weeks the cuts were finally looked at when he had an infection and swabs were taken. - Should these not have been checked when he first came in?

3.Due to my Dads kidney disease his back was terribly itchy constantly. He was prescribed a special cream for this. The ward did not have it, I had to go and buy it until they eventually ordered it in. The itch combined with a general agitation coupled with regular anxiety attacks which I believe led to a deterioration in my Dad's mental health the longer he was in the hospital. I spoke to nurses several times in the first 2 weeks about the anxiety attacks but the drs would not give him anything for them. He was so distressed, calling me non stop. They eventually gave him something after 3 weeks.

4.My Dad was due an injection every 2 weeks for his kidneys. They were delivered to our house. The ward did not know about these injections. I brought 2 of them to the hospital and they lost them.

5.Lack of Communication - In the first 2 weeks I had no contact with any Dr's and had to rely on nurses. I was later told by his consultant that this could of been down to a misunderstanding with his Junior Dr's. I feel like my Dad was seeing different Dr's everyday unlike when he was in a Renal ward and seen the same consultant.

My Dads renal consultant from a different hospital had known him for 2 years. I called to ask if she knew he had been in hospital or had been contacted, she said she had no idea. There was no communication with her a tall for any background information which may have been helpful.

Whether his medical treatment was wrong I'm unsure I think it's more the care side of things but I do feel had he been in a renal ward with contact with his regular consultant things may have been controlled better and he may have had a bit longer. Things deteriorated so quickly.

6. Nasty cuts to groin area - Upon leaving hospital and going home the district nurses discovered nasty red painful cuts on either side of his groin. I had been doing the personal care for my Dad in hospital up until his final few days and had not noticed the cuts. They had been left untreated he must have been in agony with it.

7.Thrush in mouth - From day one my Dad complained about lack of taste in his mouth, something he had experienced for a few weeks prior to going into hospital. A day after leaving his GP came to the house and diagnosed thrush immediately saying it was very obvious. I can't say for sure he had this in hospital but it seems it was ignored.

Again maybe this isn't medical negligence but the lack of care for me is glaringly obvious and I feel everything from thrush to the horrible finger to the cuts on his legs to the anxiety attacks and itch led to a general discomfort for my Dad and a deterioration in his mental state and health.

I called the patient services line and filed a complaint they noted it down. His consultant from this hospital called me a week later (I think to try and stop the complaint). He covered a few of the points ..
1. - Lack of Comm - a misunderstanding with his Junior Dr's
2 - Lack of Comm with Dads Renal Consultant - he said he had over 2000 patients and if he contacted every one of their consultants he would not have time.
3 - General Care/Cuts Etc - Said nurses do not always know everything and only have a general brief of Dads issues. Said it is upto to patient to mention problems. (Which he certainly did!)
4 - The finger (said whoever said it needed amputated should not have said that) but did not comment on why it was left to fester away for 3 weeks with just a plaster?

I feel like I should be putting a complaint in writing. Any views on this would be most welcome, do you think I have a point and where can I go with this.

Thankyou

Comments

  • Mrsn
    Mrsn Posts: 1,430 Forumite
    First Anniversary First Post Name Dropper
    That’s quiet a catalogue of events! I can completely understand why you would feel upset with watching your dad deteriorate in those circumstances.

    A few thoughts really, firstly a general ward is to be expected for the first few days of a hospital admission and not all hospitals will have specialist wards. We have 3 large sized hospitals and a few more community ones where I live but not all of them offer the same services etc. You mentioned diabetes and the fact the ward eventually seemed to be aimed towards that, it’s not unreasonable in terms of bed space for him to be have been kept there. It doesn’t make the lack of care and attention he received any easier for you to deal with but just wanted to offer why he might have been kept there especially if other wards were full.

    In terms of his cuts etc given the fact he had diabetes I would have expected closer attention to be paid to the fact they were struggling to heal etc, so definitely something you could bring up with the trust.

    I have been in and out of hospital a few time ms over the years as I have autoimmune conditions, to be honest my consultants weren’t made aware until I brought it up with them. For the sheer amount of patients in the NHS I don’t see how realistically they would be able to do this. Your dad was very poorly and your right maybe a chat would have helped but in terms of practicality I can see why this hasn’t happened.

    You have so much going through your mind at the moment especially with the raw loss you need to decide if you have the strength to take this further and whether this will give you peace with what has happened. I wish you the very best of luck and my sincere condolences for the passing of your dad
  • purple12
    purple12 Posts: 304 Forumite
    First Post First Anniversary Combo Breaker
    I'm so sorry for what has happened to your father. It sounds awful. I have worked in this area and tended to advise people to take complaints down the formal route, explaining that you were making a formal complaint very clearly, because then the trust have to respond within a set period of time and will have to provide some kind of explanation or investigation.

    Often informal complaints can peter out around the middle management levels but with formal complaints they are all recorded and reported to board level. It might be helpful to copy in CQC when you make the complaint. CQC will not look into individual complaints but sometimes just copying them in can focus minds. You might also want to copy in the CEO of the trust or the director of nursing/medical director.

    It helps to be clear about what expectations you have from a complaint - i.e. an apology.

    There are NHS Complaints advocacy services available who can provide support to make a complaint. I think we (I work in the NHS) need to be very open and welcome complaints rather than seeing them as a 'bad thing' seeing them as an opportunity to make improvements and learn. I know that doesn't help you or your father, but we have a duty to learn as well and be open when things don't happen the way they should.
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