ME question.

3secondmemory

Is ME the same as CFS?

I’m confused as I was diagnosed with ‘CFS/Fibromyalgia overlap’ over a year ago but at some point in my medical notes this has changed to ME.

I tried to ask a GP before Christmas but she just kept answering me “I don’t know!” and gave no indication where or how I can find out.

sammyjammy

CFS/ME are the same thing. What a dreadful response from your doctor!

Spoonie_Turtle

3secondmemory wrote: »

Is ME the same as CFS?

I’m confused as I was diagnosed with ‘CFS/Fibromyalgia overlap’ over a year ago but at some point in my medical notes this has changed to ME.

I tried to ask a GP before Christmas but she just kept answering me “I don’t know!” and gave no indication where or how I can find out.

That's very strange because the NHS tends to call it CFS, or occasionally CFS/ME as a kind of concession. Whereas patient advocate groups and charities tend to call it ME.

I personally call it ME for my own situation because of the neurological stuff* that goes on with the fatigue, but my notes and anything official still says CFS because that's what the NHS says.

*not that I've ever seen a neurologist, but as everything physical checks out as 'normal' I have no other explanation for altered sensation and perception :huh:

3secondmemory

Spoonie_Turtle wrote: »

That's very strange because the NHS tends to call it CFS, or occasionally CFS/ME as a kind of concession. Whereas patient advocate groups and charities tend to call it ME.

I personally call it ME for my own situation because of the neurological stuff* that goes on with the fatigue, but my notes and anything official still says CFS because that's what the NHS says.

*not that I've ever seen a neurologist, but as everything physical checks out as 'normal' I have no other explanation for altered sensation and perception :huh:

No that you’ve said that, I’ve realised that no one in the NHS calls it ME! Thank you for that!