Immediate care needs annuity

xylophone

As has been noted previously, dementia is progressive so that her physical condition may worsen.

At the time the first signs of dementia were diagnosed a couple of years back, relative's relative was still able to use a zimmer frame, read and answer questions (she has been functionally deaf for around three/four years), co operate with getting dressed, use a knife and fork and eat and drink without supervision.

She is now immobile (needs turning in bed), has restricted movement in one arm, (probable TIA) has a limited range of language, needs food pureed and to be assisted with eating and drinking.

Delirium and fever can occur with the onset of a UTI ( to which those who are incontinent and largely bed bound are rather prone).

lisyloo

Some dimensia suffers do not deteriorate physically and even if they do (as in the case you mention) it can often be managed for many years.
One gentleman I know of forgot how to eat but because there was nothing medically wrong he was fed through a tube.

Unfortunately those things you mention can make life worse but don’t kill people with the current care system we have available.

I know it sounds odd but this is only about death and not the conditions she’s living with which mostly don’t cause death.

lisyloo

Just had an email from the home saying private rates are £925 which is £100 per week extra. Changes the calcs and makes it more likely she’ll run out of money.

Shedman

Blimey have they just increased fees from £825 to £925 a week (over 12%) or did you just have £825 figure wrong in earlier post?

Even then at £48k a year scarily thats not an unsual figure..many round here are £60k+ (just for residential with no nursing)! Its no wonder people joke about just staying on a cruise ship all year long when they're old as it would be cheaper than a home

GunJack

lisyloo wrote: »

Just had an email from the home saying private rates are £925 which is £100 per week extra. Changes the calcs and makes it more likely she’ll run out of money.

Damn that's not good.....

lisyloo

Shedman wrote: »

Blimey have they just increased fees from £825 to £925 a week (over 12%) or did you just have £825 figure wrong in earlier post?

£825 is the local authority rate - seems like she gets that whilst on a DPA (loan from LA whilst property is sold).
£925 is the rate for self funders.

I don’t agree with it at all but I don’t think there is anything we can do.

greenglide

So the home takes LA funded residents?


If so why are you bothered about ending at the home from hell? The resident and their family have the choice of home as long as the home has a rate within their budget.


Since you know the LA rate it is always worth negotiating with the home! We did that when my Mother in Law and mother were in the same home - one was self funding and the other was LA funded. The home agreed to accept the LA rate for both.

lisyloo

The home is NOT within the usual LA limits.
We appealed and won with her but she was bed blocking in hospital for which LAs can be fined so that was on our side I.e. they didn’t want to pay punitive fines during a protracted dispute.

When FIL needed care they wanted to put him in overmydeadbodygrove to save money despite the fact they’d been married 60 years and he was bed bound and her wheelchair bound I.e they would have rarely sen each other due to transportation difficulties.
We won again with strong advocacy and also bed blocking on our side.

What guarantees do we have they won’t move her somewhere cheaper? In 4 years time?
If anyone has info on any rights then obviously we’d be eternally grateful otherwise I think there is a risk especially if she is vegetative and there is no Perceived benefit. We won twice but there were reasons for that.
So what guarantees do we have that they won’t move her? Or indeed if the home shuts down in the next few years?

fred246

If the home shuts down it would probably be best to move her.

lisyloo

fred246 wrote: »

If the home shuts down it would probably be best to move her.

Ha ha.
The point being if we have the annuity we can provide similar level but if she’s on LA funding we know they will want to put her in overmydeadbodygrove as we’ve been through this process with BANES twice already. I think they’ll also use her (presumed) vacant/vegitative state as an excuse for not needing stimulation, which doesn’t mean we want her covered in excrement with dressings hanging off (I kid you not, we visited these places).

If they wanted to split up a couple married for 60 years to save money then why don’t you think they try?

I think they will and I think there’s reasons we won last time (marriage, bed blocking) that won’t be valid in 4 years time.

SIL would have given up her job to look after FIL rather than have him in overmydeadbodygrove (she really did mean over her dead body) but He was mobile and her partner is/was working. MIL has much higher needs (maybe a hoist in 4 years) and SILs income will drop as her partner will be 70 as I suspect on SP.