Nasal septal perforation advice

JaneWest01 · 3 May 2015 at 5:30PM

Sincere apologies if this is t the right place for this query but I'm desperate and any advice will be gratefully received.

After numerous visits to the doctors over a few years, our teenage son was diagnosed with a “huge” nasal septal perforation. A nasal septal button was fitted that was 28mm diameter with a centre core of 6mm diameter, it was fitted complete at this size. We were told this is what is normally used but usually cut down to fit. We were also told due to not having much cartilage left at the base of his nose where nostril openings are, that it may not be successful. When he went for a follow up appointment the ENT consultant said it had moved and pulled it out. He went on to say nothing more can be done. This leaves us in a position where our son is miserable due to breathing issues and we believe its making his asthma worse.

We are wondering if anyone could offer any advice on getting a solution, if anyone knows of any doctors or techniques available via the NHS within the UK that could help?

faerielight · 3 May 2015 at 6:40PM

I have a perforated septum too and I have had 2 seprorhynoplasties and I'm now being told that my nose is collapsing and it's now inoperable. All I can do is take a steroid nasal spray .

marmiterulesok · 5 May 2015 at 9:15AM

Can you not ask for a second opinion?

Candles_by_Lisa · 5 May 2015 at 9:20AM

My husband has had brain surgery performed twice and they have accessed his pituitary gland via his nasal septum. He has obviously been left with septal perforation which does cause breathing problems but more with blocked nose from the gunk up there (sorry I know too much info). He uses a saline spray to help soften and clears his nose every night. This really helps with breathing at night and getting to sleep (also helps with his horrendous snoring!!!)