Nhs vs private dietitan

Anoneemoose

Anoneemoose wrote: »

You're right in your opinion that "the last card is with the patient" but what about people like me who have limitations - as I said the issues I get with my IBS mean I struggle with a lot of the wholegrain, whole fruits and veggies for example (very simply put). I have cut out most of the processed stuff with the exception of an ocassional treat. But still I am the same weight even though I am under my allocated calories!

Go figure!

And with my chronic, I often need a boost, like the fruit juice I mentioned. I have tried things like bananas and nuts and oatcakes to give me a 'hit', but they just don't always cut it!

Anoneemoose

theoretica wrote: »

The way I look at is that people and all the microbes in our guts are complicated, and different. There is the basic sensible advice which does work for most people. And then there is what works for you - however odd that may seem to other people. Hopefully you can find someone who will work with you to find what suits you - rather than the general good and bad foods you can get from the internet or books.

This I think is probably the truth. I have always thought I am doing things wrong when my stomach gurgles and swells when eating foods full of fibre, even though they're the good things.

It makes sense that I need an individual approach and that is why I wanted to consult with someone who could help find a good, overall approach taking jnto consideration all of my illnesses and the interaction between them all - along with the effect that that has on my day to day life.

Thanks again all!

pmduk

Why not ask for a referral back to your consultant?

Anoneemoose

pmduk wrote: »

Why not ask for a referral back to your consultant?

Not sure which consultant you refer to but I have only seen one at the Chronic fatigue clinic. I am still under the care of this but will be seeing an occupational therapist for regular appts to help learn how to manage my energy levels.

I think the consultant for this reviews in a few months time but he doesn't really give any specific dietary advice except the general 'cut out rubbish' which we are all aware of!

Pinkdebster

I write from an alternative perspective........I have a long and complicated medical history that has left me with only a tiny part of my stomach and I am now primarily fed with a feeding tube direct into my bowel. I am under the care of a dietician at my hospital and her 'job' is to help me increase my calories. I currently only weight 43kg and am considered to be malnourished. Now, as nice as she is, she clearly knows nothing about conditions such as mine - she constantly tells me just to eat biscuits when I can, add sugar to my drinks etc etc in order to increase calories. This, however, works against my other conditions and makes my blood sugar drop and I faint. I saved up and saw a private dietician who was absolutely amazing. She understood ALL my problems and came up with a diet plan that worked with and for me. I think most NHS dieticians are just trained in a set way and heaven help anyone who has problems outside of those guidelines!

Marktheshark

If its a weight issue, the advice from the NHS ones will be eat less, do more.
The private ones, eat less, do more with bells and whistles and a bill to pay, and oh you are allergic to dairy and lactose (they tell everyone this).

pmduk

Ask an NHS dietitian for help with an eating plan and they'll be stumped.