ELITE 11+ Awaiting glitches and chatting with friends

vanilla_twist

fairclaire wrote: »

Good news V. Especially about the McMillan nurse. They are absolutely wonderful :A:A i guarantee you if anyone will break the barrier down, they will. It makes me quite emotional following you through all this
It's great that you have somewhere to post a little summary at the end of each day. I wish I'd found this place when I was going through similar. It's good to put your thoughts and feelings down somewhere.

The hospice thing is so difficult in reality they are not like 'gods waiting room' they are generally a big upbeat step from a hospital ward. The one my dad was in was wonderful, the staff were amazing and there was never a sense of doom in it.

I really am grateful to you for posting your experience you know. It has helped me put a lot of things from my own past experience into perspective. things I was was too emotional about to deal with when it was happening. And of course much easier to deal with time has healed a lot of things. I hope you can take comfort from the fact that your very candid posts of your situation are helping others :A

Thanks. I find my late night postings very theraputic. Also if anyone thinks there is something it might be useful to know I get nice pms.

I understand you finding perspective. When it all happens you are too caught up being busy with the situation and then with grief.
I worry sometimes I might say too much and upset someone who is grieving themselves.
Yes I know Hospices are really good places. I don't know if I could bear the heartbreak of taking him in knowing he will never return home (and I know at the moment Dad couldnt either. I think his attitude now is, well when it happens I will be beyond caring.
Very pleased he is allowing the Macmillan nurse to visit as he can go downhill in a matter of hours (as happened this week). Doesnt mean he will be more inclined to allow visitors to call though.

V x

fairclaire

Tinyshoes wrote: »

Mine started while I was married to my ex.

I think it was my only way of control. I am loads better than I used to be. My poor girls had to suffer all their toys being put away regimentally. :o

Now I leave things until I can do them properly so I am tidy on the inside as in drawers, cupboards, everything in neat rows and piles. I know if anyone has touched anything. :o:o

Trouble is now I can leave things untidy outside which I guess in the grand scheme of things is a good thing that I can now leave some things undone. It's just I know it will take me twice as long to do as those that don't suffer so often I don't bother to start as it gets me worked up.

I can tell if I am really stressed as when I put knickers and socks away they don't look neat enough and I get them all back out again. My drawers are works of art in my own little way. :rotfl:

I don't think I have OCD in the true sense. I do have foibles though and your knicker drawer sounds very similar to mine :rotfl::rotfl::rotfl:
6 piles, none higher than the other. Worn in order of washing and if fancy knickers (non-cotton) are first in the queue to wear on a day where I don't need to be wearing fancy knickers they get relegated to pile 6 at the back.......to live in hope :rotfl::rotfl::rotfl:

ETA ChrisV has just made me feel better

Chrisv

fairclaire wrote: »

I don't think I have OCD in the true sense. I do have foibles though and your knicker drawer sounds very similar to mine :rotfl::rotfl::rotfl:
6 piles, none higher than the other. Worn in order of washing and if fancy knickers (non-cotton) are first in the queue to wear on a day where I don't need to be wearing fancy knickers they get relegated to pile 6 at the back.......to live in hope :rotfl::rotfl::rotfl:

So it's not just me that rotates knickers :rotfl:I feel better now :rotfl:

fairclaire

Chrisv wrote: »

So it's not just me that rotates knickers :rotfl:I feel better now :rotfl:

See my edit :rotfl::rotfl:

Tinyshoes

vanilla_twist wrote: »

That was a horrendous episode tonight. His own house looked nothing like that.
At least the other couple were happy with 2 out of 3 rooms. Their bedroom was lush but £4.5k per room seems like huge budget:eek:

News from hospital, Dad is onto oral antibiotics now. When sister arrived tea time he was talking to someone to put care plan in place. He has agreed to a Macmillan nurse once a day just to make him a cuppa and check no problems as things seem to take hold quick. Also they are putting a bed in the lounge. He might not use it straight away but it will be in place. Luckily it is a very large room and he has a second sitting room so guests will not see it. Also portable oxygen for when he feels breathless, something to do with oxygenating blood.

We are putting a Dad Cam in hallway. That way he still has his privacy but we can monitor when nurse comes and t will send email photos everytime he pops across hallway to little boys room so we will know he is moving around ok.
Anything more than 2 hours between visits means can ring and check he is ok.

Not sure when I am going up as unlikely they can put anything in place until after the weekend and don't think he will be allowed out until it is.
Might take the easy way and go up by train for the day over the weekend as really want to see him.
Sister says he has been co operating nicely about arrangements although they invited him to visit the hospice for a look around which he really doesnt want to do. Told nurse that by the time he is there he will be beyond caring which I suppose is quite true. I know this stems back from how much he hated the care home his brother was in. Staff there went above and beyond but he hated seeing his brother in his little room.

V x

I am so glad your dad has agreed to macmillan nurse it will make such a big difference. Try and make sure he is not discharged before the care is in place with all the best will in the world the two don't always come together. But they are more likely to hurry things along while he is in hospital holding a bed. And he is within his rights to stay until the care is in place.

From personal experience with mum hospices are the most wonderful places for both the patient and their families. My mum dug her heels in about going there but it gave her so much more comfort than I could give her, nothing was too much trouble. :A

I am trying to find the right words to say I have been on your journey VT, but they are not coming out how I want them to. So just going to say lots of love to you and your dad. xx

Chrisv

fairclaire wrote: »

See my edit :rotfl::rotfl:

:rotfl:And on that note I'm off - night all

Tinyshoes

davemorton wrote: »

Dont think of it as snoring, but a night time serenade

:p:p

sausages

Tinyshoes

Chrisv wrote: »

:rotfl: I'm probably going to delete this post, but.......you know how most of us rotate our stashes - I must even rotate my knickers. Freshly laundered ones go to the bottom of the pile, colour co-ordinated, and folded the same way

Same with towels, folded and rotated in piles - think I've got it bad :rotfl:

I don't rotate knickers, I have 2 piles one is everyday and one is well the other and the ones at the top get washed and put back and reworn until they get holes in. The ones in the bottom stay nice and new.

Same with the towels, sheets etc. If I had to get anything out from bottom of piles it would muck them up and I would be there for ever trying to get them straight again. :eek:

Now that's bad. :rotfl:

fairclaire

Chrisv wrote: »

:rotfl:And on that note I'm off - night all

I think I will join you in that big knicker drawer in the sky :rotfl:

I've had a proper off day today. Very breathless, despite doing very little. I hope just a down day and not helped by losing Bossy Betty. The kids want a new chicken to replace her......she will be called Victoria Peckam :rotfl::rotfl:

Goodnight :wave:

Tinyshoes

vanilla_twist wrote: »

Thanks. I find my late night postings very theraputic. Also if anyone thinks there is something it might be useful to know I get nice pms.

I understand you finding perspective. When it all happens you are too caught up being busy with the situation and then with grief.
I worry sometimes I might say too much and upset someone who is grieving themselves.
Yes I know Hospices are really good places. I don't know if I could bear the heartbreak of taking him in knowing he will never return home (and I know at the moment Dad couldnt either. I think his attitude now is, well when it happens I will be beyond caring.
Very pleased he is allowing the Macmillan nurse to visit as he can go downhill in a matter of hours (as happened this week). Doesnt mean he will be more inclined to allow visitors to call though.

V x

You will never say too much VT, I was the same found comfort in offloading. xx

And hospices are not always the end my mum stayed for weeks and weeks before coming home again. They can greatly improve quality of life.