Copd -Alpha 1 antitrypsin deficiency

onlyonenix

:wave: Hello there. I would like to hear from anyone who has developed COPD and been diagnosed with alpha1 antitrypsin deficiency.
I am newly diagnosed after yet another lengthy stay in hospital with severe breathing difficulties. Particularly keen to hear from anyone under 40 (like myself)...and how you cope with day to day living, kids, work (currently not at work but hoping I am allowed to return in some capacity soon...scrapheap not for me just yet!). I now have nebulisers and Oxygen at home or as my kids say...my battery back ups lol.

Bob_Bee

Hi,
I have both, but I am 53 years old so not sure if I can help.
Have you been on the forum for the British Lung Foundation?
I am sure you would get some replies on that website.
If you wish to chat PM me.

Gingernutty

http://www.alpha1.org.uk/

MargaretM

onlyonenix wrote: »

:wave: Hi there. I'm Margaret Millar and have A1AD a bit older 49 but young at heart. I would like to invite you to our FaceBook page it's called Alpha 1 Advocacy and Action. Where you will find others in a similar situation with children. I hope to see you on our site soon where we share a lot of information, general chats about living with A1AD. Bye for now take care. XXX