Fibromyalgia - could it be something else?

Barneysmom

Mrs_P_Pincher wrote: »

Ask your GP to check your thyroid, ferritin, Vitamin B12 and folate, Vitamin D. If you have had a lot of stress, or major life events in the last 5 years, ask about getting your adrenals checked as well.

Fibromyalgia is just a fancy word (I think it's Greek) meaning muscle pain so in that sense the consultant has not told you any more than you already know. It's a symptom really rather than a diagnosis, and quite often there is an underlying cause. If you can find that, and treat it, you should be able to feel a lot better.

Mrs P P

Exactly. Fibro is something they call it when they can't think of or can't be bothered to find the real problem.

Someone I know has been diagnosed with it but she is about 16 stone and 5 feet tall. She blames the fibro for not exercising but really it's the other way round, if she did exercise and lost a few stone she'd be right as rain.

ETA Sorry op, I just realised that it might have come across that I was inferring you are overweight but I'm not.
I just wish the doctors would look at the symptoms a little bit harder sometimes.

cagneyfan

Oh aye, and guess what else this rheumatologist said?

He grabbed my leg in what I think was a 'medical' moved it about a bit. I told him my hips hurt, was just about to say that my knees had recently been bad but never got the chance before he said, "you seem to be quite hyperobile". It's a good job guns aren't legal in this country as I don't know who I'd shoot first - him or me!

Hypermobile! Honestly, if it wasn't for the fact that I have a pulse I'd swear I had rigermortis! It's unbeleivable. It'd be funny if it wasn't so frustrating.

I then looked for a leaflet about hypermobility and there were about 4 or 5 tests you could do to see if you could maybe be in that group. I couldn't do any of them.

It seems to me he just wanted to stick a label on me whether it should be there or not. Now when I see the gp for the usual nano second how on earth am I going to explain everything without getting flustered. It's no good taking notes, as every time I've done that with whoever I've seen for whatever - you never get to read them out. I'll now end up on amytryptaline (?) and Pregablin when it may not be the correct meds!

cagneyfan

clairibel wrote: »

Those symptoms could be other things as well as it describes ME Myalgic Encephalitis of which i was diagnosed with 5 years ago.


I would not be happy with the quick diagnoses you had. MS also has the same symptoms as do other illnesses, Plus a lot have Fibro as well as other things like ME. Personally i would go back and ask for a referral to a specialist.

Hi,
You say to go and ask for a referral to a specialist.

Is the Rheumatologist that I saw not classed as a specialist? If so, did you have a particular type of specialist in mind other than a Rheumatologist?

Thanks

clairibel

cagneyfan wrote: »

Hi,
You say to go and ask for a referral to a specialist.

Is the Rheumatologist that I saw not classed as a specialist? If so, did you have a particular type of specialist in mind other than a Rheumatologist?

Thanks

Hiya, yes sorry i misread your initial post...that'll be the brain fog

yes the rheumy is a specialist and for some reason i was thinking you were talking to your GP. But still your symptoms do match other labels should i say as do my ME symptons match your fibro symptons, i never saw a rheumy and was just sent to a neurologist instead.