2007 challenge: get a diagnosis for my DD1

AnnieH

Hi Gus, No real news as yet :rolleyes: DD is due to see the EP in May and her teacher thinks that she may have a very high IQ too. The school have set up a meeting woth all the parents of children with autism/possible ASD's in that school to have a chat together and possibly turn it into a bit of a support group. Fab idea!!!

She saw the school nurse and hopefully she's busy finding out what's happened to the referral, as we've been put on a waiting list, so I'm hopeful she can do something there.

gushoneybun

Annie, if you are still about! How did your EP appointment go?

Hope your daughter is on the road to getting help.

Gus x

Amarillo

Can I recommend a good book for the social side of things ? "The Unwritten Rules of Friendship" by Natalie Madorsky Elman & Elieen Kennedy-Moore http://www.amazon.co.uk/s/ref=nb_ss_w_h_/203-4080008-5750338?url=search-alias%3Daps&field-keywords=the+unwritten+rules+of+friendship&Go.x=0&Go.y=0&Go=Go

It has helpful tips in it about things like learning about personal space (you use hula hoops !) Teaching them not to go over and ask if they can play as by asking this outright it gives the other children the chance to say no, then they aren't left with much alternative other than to walk away, so it gives strategies of other approaches to take. I have found it very helpful and writing this I think I need to read it again as have forgotten loads and time to refresh my memory.

AnnieH

Thanks Amarillo - I'll take a look at that.

Gus - Hi I'm still here. No appointment as yet, but here's hoping still:)
How are you doing?

gushoneybun

Hi
Sorry that you haven't been seen yet
My son had an appointment with the EP today. She did a test on him. He scored at 95% But she said if she removed writing from the results, he scored 99.9%

I am very prous. She believes his problems are all that he is clever, so finds it hard to socialize.

I'm not so sure. The school SENCO isn't either.

They are arranging a meeting with the SENCO of his next school. So I'll see where we go from there.

I hope your DD gets her EP time very soon.

Gus xx

Ellie2758

gushoneybun wrote: »

Hi
Sorry that you haven't been seen yet
My son had an appointment with the EP today. She did a test on him. He scored at 95% But she said if she removed writing from the results, he scored 99.9%

I am very prous. She believes his problems are all that he is clever, so finds it hard to socialize.

I'm not so sure. The school SENCO isn't either.

They are arranging a meeting with the SENCO of his next school. So I'll see where we go from there.

I hope your DD gets her EP time very soon.



oh dear. I do wish this system of EPs "diagnosing" was seen for the con it is. They are not able to diagnose Aspergers as they are not trained to do so. You need to see a Child Psychologist or Child Psychologist. EPs are bound to say that the child is "just clever" - that will save the LEA a pretty penny or two, wont it? Sorry to sound so cynical but been there and done that over 10 years ago and I really had hoped things would have improved since then. Instead of which it seems to have got worse - the lack of statementing is a scandal.

Is there a CAHMS near you? If so ask your GP for a referral. Failing that, a child development clinic at your local hospital? Parent Partnership and IPSEA have already been mentioned.

I really hope it is just that your son's probs are his cleverness but you seem unsure and to me that is the biggest sign that something is not right.

gushoneybun

The Senco called me today and said that the EP had popped in and has decided ds needs a full asssessment. Hooray! They will arrange home visits and speak to dh etc.

They are also getting Autisum outreach involved. (I've never heard of them)

Gus x
(sorry to hijack your thread Annie)