Cystic Fibrosis

diamond_dave

My 19 yr old daughter, who has Cystic Fibrosis, is at uni studying modern languages. Next year, she will have to do a years placement abroad either studying or working.With all the medication she has to take, plus do chest physio, nebulise, etc, things are going to be difficult. Does anyone out there have any similar experience ? Any help or advice( insurance etc) would be very appreciated.

Savvy_Sue

As you haven't had any answers yet, I'm presuming that there is a Cystic Fibrosis Association of some kind, and that you've asked there? And the other suggestion is to ask on the Student Board, in case there's anyone over there.

Also of course to approach the Disability Adviser at her University to see what support they can give, or whether they've sent anyone with CF abroad in the past.

diamond_dave

thanks for the reply,Savvy Sue. Yes weve been in touch with the CF trust, but I thought that someone out there would have had some experience of this. For example, we went to the states in June & we had a real problem getting insurance for her - some companies were quoting 1500 - 2000K as she had a pre existing cond - and that was for only 3 weeks - imagine what it will cost if she goes to S.America for 1 year!! again many thanks for reply.