Begging to accept I'm different/disabled/normal-for-me

System

dane-katie wrote: »

Its nice to hear of people offering there seat for you.

I am disabled but not physically, i use the bus prob once a fortnight which doesnt cost much so i dont bother with a bus pass, to look at me i am "normal" even though i am obese, i have to sit near the front of the bus, i get very distressed at the back and the amount of dirty looks i get even when the bus is no where near full (if it was i would offer my seat) its as if i am doing something wrong, but mentally i have severe problems, i wish the older people who get on the bus could understand instead i get the remarks and snide looks

Never mind so glad that people seem to understand where you are

I have the exact same problem, i struggle to sit at the back and also with people i don't know, hence why i prefer the single seats at the front. Though this gets me lots of dorty looks even though if the bus was full and or someone needed the seat i'd give it up.

nannytone_2

i'm registered blind, but dont use a stick. i probably should but i think its the way i was brought up that makes me avoid one.
i was registered partially sighted at 12 but for some reason my parents never informed the school!
nothing was ever said, but i almost felt ashamed and as a result never told anyone about my problems.

ive been registered blind for 14 years now and have only in the past couple of years started admitting to people (still only people that NEED to know) that i have trouble. i only do this now as, if people thought i could see properly, i'd look really stupid doing some of the things i do lol

laury_2

I can't get my head around being disabled at all, it's taken me years just to accept it enough to fill in the forms and then another year to post them. I led a very busy life, work, family, volunteering, exercising daily, weekends out doing activities etc. The last two times I have tried to lead a 'normal' life (small shopping trip) had me bed bound and in agony for a week after.

The most recent embarrassment was popping into a shop for a few bits with my carer waiting in the car outside and I was in so much pain, sweating and shaking, by the time I got to the counter that the shop assistants had to help me and my bit of shopping back to the car, where I just sat and cried. I used to love shopping and days out with the family, but now if I dare set foot outside I pay for it in the worst ways

It not only impacts on me but everyone around me and I hate it and don't think I will ever accept it. I wouldn't ask for a bus seat, I'd just stand there until I collapsed probably and I would find it difficult to accept a seat if it was offered.

nannytone_2

sounds like we're our own worst enemies!

Prinzessilein

Oh wow! Accepting the seat when offered was one thing (By the way, he had no difficulty spotting my pass....I was still holding it in my hand! I needed to sit down in order to be able to open my bag and find the purse where I store my pass)....but to ask for a seat, that would be so much more difficult!

I have spent years working on passing as 'normal'....and the last couple of years learning to accept that the way I am is normal - for me! I struggled through mainstream schooling (the first of my cnditions were just being diagnosed) got a degree with the OU and worked my way up to HoD before suddenly finding the conditions worsening to the point where I can no longer even look for work.

I have perfected the facade to the point when even family members accuse me of 'milking it' and not being as ill as I make out!

I remember crying when I realised I could no longer use a tin-opener....and crying again when I got one of those automatic tin-openers!

I guess I want it both ways....I want my independence and to be able to keep on doing what I can for as long as I can....and I also want acceptance and help on those occassions when I can't cope!

yully

You won't believe how glad I am to read this post - I thought it was just me. I've started using a stick, which I should have used a long time ago - but a lot of the time I feel a fraud, which is absolutely ridiculous. I've been laid up in bed for two days after spending a day gardening - I just can't - or maybe don't want - to accept that I can't do what i want all the time, and that things have changed. xx

nannytone_2

i think it's normal to want to be like everyone else. also, unless you have some terrible accident or illness, disabilty creeps up on you slowly, and you dont necessarily realise how big an impact it's having as you adapt along the way. all i can say is i'm not dead til the bang in the last nail lol

yully

nannytone wrote: »

. all i can say is i'm not dead til the bang in the last nail lol

I'm hoping it'd be at least a good half hour before then!!!!!:D

nannytone_2

yully wrote: »

I'm hoping it'd be at least a good half hour before then!!!!!:D

hahahahaha!