Me/chronic fatigue syndrome

booklover

Hello

Does anyone know of any support groups in NI? I think my son may have this condition. Is there anyone here been diagnosed with it as I'm not getting much support from the medical profession...

Many thanks :A

Fiona

seatzie

quick google produced this
http://www.nimea.org/

mil had it for around 10 years in the 90s very little support in Northern Ireland for it and that included Doctors believing it existed, hope things have changed, also check ou Action for ME UK

sleepymy

I have it fiona, just give me a wee while to have breakfast and get my migraine meds to kick in and I'll help you all I can xxx

absoluteutopia

Used to play golf with a few Dr's who were always going on about the extent ME was being used to claim DLA. Patient would turn up claiming they had all these symptoms, only for a DLA form to come into the surgery a few weeks later . This was a few years ago so things could have changed with the Gp's

seatzie

wasn't the GPs were the problem it was the consultants, GPs generally refer on because the don't know whats wrong, for a long time the "yuppie flu" tag discredited a lot of genuine sufferers who had it

bjorky

You should get your son to visit his GP asap and ask for him to be referred to a RHEUMATOLOGIST, wait a few weeks then this person should help

pinkfluffythings

I agree with the poster above, see GP and then onto Consultant. He also could have Fibromyalgia, like me I suffer from it and ME/CFS. Sometimes you need to fight the GP to get anywhere, but dont give up. Its a really horrible, sore, upsetting chronic illness that is not understood at all by most people and still some medical professionals. There are also support groups which I am yet to join but will very soon.

absoluteutopia

victoria_p wrote: »

He also could have Fibromyalgia,

The new DLA cash cow

seatzie

absoluteutopia wrote: »

The new DLA cash cow

knowing 2 people, one very severely affected by it, I do take a little bit of exception to that

anyone I've ever known with ME/CFS or fibromyalgia have been hard working people, I currently have a friend mid 30s whose work are trying to medically retire her because of her condition, believe me, being ill and stuck at home is not what she wants, perhaps you're socialising with the wrong people?

Rossatron305

Hi this is my 1st post and i am glad it is here and hope i can help.

i am one of 3 ppl i know with diagnosed cfs, the other 2 being my best mates little sister who had to leave school the year of her gcse's and be home tutored and luckily my managers wife has it also, which means he knows exactly how i feel and has been great help to me, i am currently on my 5 month off work and i am only 20 (21 soon) i find it extremely hard to do anything, have been on more tablets than my 75 y/o nan that has severe diabetes as well as a few other conditions bless her.

one thing that my gp and neurologist recomended was going out more and doing more, i go for an hour walk everyday, live in the country so its not too bad, but even if i return home exhausted i feel like i have achieved something and after a week of doing it i started to have more energy, before i was stuck in my room just on the computer, this really doesn't help and makes you feel depressed, if your son is my age or younger, try taking him out on the weekend, i get severe headaches just being outside but the tablets have supressed that greatly, just makesure whatever tablets they give him they dont make him put on weight, i put on a stone in 6 weeks taking one lot and it just made me feel worse, i am here to help if you have any more questions, Ross

pinkfluffythings

absoluteutopia wrote: »

The new DLA cash cow

Possibly for some people but not for me! Don't generalize.