VNS experiences

Legacy_user

just got word local pct is going to fund VNS for dd ,does anyone have experience of this ?

hardpressed

What's VNS?

System

VAGUS NERVE STIMULATOR -its like a pace maker to try to control epilepsy.

nigem

what sort of info? I have seen them in position.

System

are they obvious ? she is only 12 and has a lot to deal with at the moment , any ideas generally how long a hospital stay is involved [asd traits doesnt do change to routine well !]

nigem

i've only seen them on adult women and they're only obvious if the person is very skinny. I have also seen devices implanted under the breast, on the side of the chest wall. These seem to show a lot less on skinny women, and hardly at all on heavier women. I dont know if thats an option for your daughter.
HTH

sukysue

I look after 2 kids with them and their lives have been transformed since having them. They are pretty invisible and scarring is minimal. Very good at stopping seizures once they are titrated to the childs brain frequency. Very easy to use the magnets.A , Simple operation ,she will be fine, YOU CAN'T HELP BUT WORRY BUT.... you will be sooooo glad she had it done.GOOD LUCK!!!

System

thanks for your replies its put my mind at rest . we go to see the neurosurgoen next week and she has written a list of questions she wants answers to , hes gonna think he is being interrogated !