We'd like to remind Forumites to please avoid political debate on the Forum. This is to keep it a safe and useful space for MoneySaving discussions. Threads that are - or become - political in nature may be removed in line with the Forum’s rules. Thank you for your understanding.
We're aware that dates on the Forum are not currently showing correctly. Please bear with us while we get this fixed, and see Site feedback for updates.
Advice on Parkinson Disease

stressedoutmum
Posts: 1,194 Forumite
Am absolutely gutted - for 2 years we've been told that dad had a stroke. Now after a brain scan he has been diagnosed with Parkinsons and they dont think hes ever had a stroke. Its only within the last 6 months that he's had any physio. His physio noticed he had shaking when he tried to stand, he also clenches his fists when he gets up. His physio advised that some stroke patients have a 'parkinson style shake' but its not parkinson and that there was a tablet that may help this. After referring him back to his doctor he was given a brain scan and today we were told he has parkinsons. He is quite weak, gets very very tired and has this shaking only when he gets up - but he has his full marbles. This has gone for almost 2 years undiagnosed and thankfully his condition does not seem to have deteriorated during this time. He will be put on medication which can make him feel quite nauseaus but could help. Wheres the best place for advice and I am now really worried about his future as my friends dad had Parkinson's really really badly.
0
Comments
-
MEDLINEplus: Parkinson's Disease
Parkinson's Disease Society
Parkinson's disease - Wikipedia, the free encyclopedia
For Natural Prescriptions For Parkinson's Disease
BBC NEWS | Health | Exercise may ward off Parkinson's
40265 Parkinson Exercise Book
Parkinson’s Disease May Cause ApathyMy weight loss following Doktor Dahlqvist' Dietary Program
Start 23rd Jan 2008 14st 9lbs Current 10st 12lbs0 -
NICE Guideline for Diagnosis and Management of Parkinson’s Disease
EPDA: Patient Guide to Living With Parkinson's DiseaseMy weight loss following Doktor Dahlqvist' Dietary Program
Start 23rd Jan 2008 14st 9lbs Current 10st 12lbs0 -
my nan is in a similar boat. has had various symptoms for ages, without really being 'ill'
it seems like we are finally getting closer to finally finding out whats wrong. we're waiting on test results but it seems quite likely that it is parkinsons.
like your dad, my nan has all her marbles/faculties, its just the physical side that lets her down - the shakes (combined with oesteoperosis, arthritis and athsma).
part of me is terrified that it is parkinsons - having seen what its done to people like muhammed ali and michael j fox, and it breaks my heart to think of my nanna suffering like that. but the other half of me thinks that at least if we know what it is, we can treat it, and make the most of every second we have left.
stressedoutmum, you are more than welcome to PM me if you want a friendly ear :grouphug:know thyselfNid wy'n gofyn bywyd moethus...0 -
well we've had news back this week, and it is the start of parkinsons. she's currently undergoing further tests so they can decide on the best course of treatment :cool:know thyselfNid wy'n gofyn bywyd moethus...0
-
-
Vitamin D and Parkinson's disease--a hypothesis.
In an excellent paper, Dr's. Harold and Jonathan Newmark (father and son), present the considerable evidence that vitamin D deficiency is one cause, perhaps the major cause, of Parkinson's disease (Muhammad Ali has this disease and, in his case, it may have been caused by boxing. However, a lot of boxers never get Parkinson's disease, and most people who have Parkinson's disease never boxed). Drs. Newmark remark on a 1997 case report in which a patient with Parkinson's disease steadily improved when treated with 4,000 IU daily. However, their recommendation for an interventional study using only 2,000 IU daily in Parkinsonian patients is regrettable. Such a low dose in such a severe disease may tragically miss a treatment effect and would only have to be repeated in the future with physiological amounts of vitamin D. All clinical interventional studies—in any disease—should use enough vitamin D to obtain and then maintain blood levels at levels obtained from natural summertime sun exposure (at least 50 ng/mL). For many people, the aged, African Americans, and the obese, this require 5,000 IU daily. If you know Muhammad Ali, or anyone with Parkinson's disease, suggest they start taking 5,000 IU a day. If they or their doctor are concerned about toxicity, have them read the literature. If they can't do that, have the doctor measure their 25(OH)D and calcium levels every four months. Both patient and doctor will soon realize that 5,000 IU is a physiological dose.My weight loss following Doktor Dahlqvist' Dietary Program
Start 23rd Jan 2008 14st 9lbs Current 10st 12lbs0 -
Parkinson's disease and vitamin D NHS CHOICES article on the subject.My weight loss following Doktor Dahlqvist' Dietary Program
Start 23rd Jan 2008 14st 9lbs Current 10st 12lbs0 -
we had the same issue with my mum. she was finely diagnosed with parkinsons after having a second suspected stroke.
what i found frustrating was when we first got the diagnosis there was no time to ask questions, and when we asked for leaflets and information the doctor said they didn't have any. i have had to do my own research, having to go through all the fears and possible misconceptions about the condition.
the above links are really appreciated, so thank you :Apractice makes perfect...but nobody is perfect so i suppose i will keep practicing
0 -
thanks for that Ted - will pass info onto my mum - you never know. Anything that helps.0
-
Also consider Neuroprotective and disease-modifying effects of the ketogenic diet
I don't have to remind you I've benefited from a change of diet recently. and that is very mildly ketogenic. (well I bought some ketostix and I only managed to get a trace or at best moderate colour) If you went more for Atkins induction (tried a bit harder to lower carbs than I have done) you may obtain slightly darker tones on the test strip.
Learning more about how the brain functions and what is the ideal diet for brain function from Dr McCleary may help you make better choices. I found his book very helpful. He's a great guy, the sort you can email AND get a reply from so if when you've read his website through you still have concerns then don't be afraid to email him. He really is a great guy.My weight loss following Doktor Dahlqvist' Dietary Program
Start 23rd Jan 2008 14st 9lbs Current 10st 12lbs0
This discussion has been closed.
Confirm your email address to Create Threads and Reply

Categories
- All Categories
- 348.4K Banking & Borrowing
- 252.1K Reduce Debt & Boost Income
- 452.4K Spending & Discounts
- 241K Work, Benefits & Business
- 617.3K Mortgages, Homes & Bills
- 175.7K Life & Family
- 254.2K Travel & Transport
- 1.5M Hobbies & Leisure
- 16K Discuss & Feedback
- 15.1K Coronavirus Support Boards