Primary Liver Cancer.

Kellys_Eye_2

Thank You owey, will take a look at the site.:)

Agutka

Wishing you all the best for your hospital stay and op. Don't forget to feel well all the time!

Kellys_Eye_2

Just a quick update again.:)

Got a letter today have to go into hospital next Wednesday 26th July for the biopsy, doing it under general anestetic so may be in a couple of days don't really know.
Will give the specialist nurse a ring tomorrow and ask her, could'nt do it today as I had to take my mum to the hospital for her CT scan !!! she's not been well too.

Will keep you posted, Thank You for all your kind thoughts.

And yes Agutka will do my best to be feeling very positive and to get through this.

Congratulations on your wedding by the way.:j

Agutka

Thank you very much and all the best again to yourself and your Mum

shelly

Hi Kelly. I have only just found this thread but wanted to wish you all the best for the future. I kind of know how you're feeling as I was diagnosed with cervical cancer on 25th May this year. I had my cervix removed 2 weeks ago and I'm waiting on results as to whether it had spread to my womb, if so I need a hysterectomy.
Keep strong and positive and don't feel odd if you have "off" days. I feel Iv'e come to terms with it but still get days where I'm down, its perfectly normal.

If you just want to chat or vent or whatever please feel free to pm me.


shelly xxx

Edinburghlass_2

Kellys_eye, please do phone your appointed specialist nurse even just for a chat, these people are absolutely ace and if they don't know the answer they will know a man who does.

Same with the MacMillan nurses, Backup etc and if you have a Maggies Centre attached to the hospital.

klondyke

Just found this thread - wishing you all the best, Kelly. I, like Shelly, know a bit about how you are feeling as I was diagnosed with colon cancer back in February. GP thought it was colitis as I had had that before, but I kept telling her there seemed to be more going on because of different kind of pain. Eventually got referred to specialist for colonoscopy - also had to have the dreadful drink, but I don't think mine was called Fleet. Anyway, tumour discovered and I was referred to surgeon who wantd to act asap but needed CT scan, also asap, so that he could see exactly where trouble was - though he could feel the lump easily on external examination, and was somewhat cross with GPs for not examining properly as I was 'close to total blockage'.

Fortunately, or unfortunately, depending on how you look at it, when I got to hospital expecting surgery they said there was a change of plan as the CT had shown up a pulmonary embolism and several other blood clots and this needed to be addressed first as, if they went ahead, I 'would die on the operating table'. So I had more horrid drink prior to be taken off to another hospital to have tumour put in stent to try to stop it growing further towards blocking the colon completely. I should have returned to original hospital same day, but horrid drink had made me quite ill and doctor said he didn't dare send me back in that state as they would think he was a bad doctor!!

Anway, eventually back at first hospital for a couple of days, while they hummed and ha'd about operation as to how long they dared leave the tumour and how soon Clexane and Warfarin treatment would make it safe enough to go ahead. Eventually the decided to send me home for a while to gobble Warfarin tablets, have a further CT and then decide op date.

Ah well, had op in March, they needed to take ovaries and fallopian tube as well (in view of my age, that wasn't a problem!) but surgeon did say it had been a tricky operation and the tumour was 'huge'! I was in the high dependency unit for several days, before getting back to 'ordinary' surgical ward. At that time still very painful - but don't worry, it does get better and you need to make sure you take plenty of painkillers and don't ty to brave it out.

They wanted me to go on chemo as soon as possible, especially as next CT scan showed liver metastasis. Grrrrrr. Anyway, I have had five goes at chemo (Folfox) so far, ie once a fortnight. and will go on until 12 cycles.

Some quite weird side effects, like not being able to handle anything cold; need gloves by the fridge! But oncologist is pleased with me and thinks I look a lot better. Another scan 14th August should tell whether chemo is working, so please keep fingers crossed for me.

Nurses are wonderful - and do ring the specialist nurse with any questions. Mine was great, though I have just been told she has ben promoted, so will no longer be my contact. Hope the next one will be as good!

Sorry to hijack the thread - didn't mean to rant, but want Kelly to know she's not alone - we can get out the other side!!

summerday

Kelly,
I have sent you a pm, so click at the top of the page where is says 'inbox'.

Hugs to you.
Sarahxx

Eagle_1

klondyke wrote:

Sorry to hijack the thread - didn't mean to rant, but want Kelly to know she's not alone - we can get out the other side!!

Not my thread but hey thanks for that, its great to hear other peoples stories because they do help.

Hope everything goes ok with you and I will keep fingers crossed for you.

Kellys_Eye_2

Hello everyone another quick update.

Your right Eagle_1, it is very interesting to hear other peoples storys as they can be very helpful and informative.


I am sorry I have'nt posted sooner but I have'nt been too well since the laparoscopy liver biopsy.

They told me that they would'nt have the results for 2 weeks !!, but they have booked me to go back in this Tuesday the 8th August to have the operation on the 10th August as I have to have a couple of days injections of vitamin K something to do with clotting.

I expect they will have the results when I go in on Tuesday.

If you don't hear from me for a while you know they will have done the operation and I will up date you as soon as I can, I don't have a laptop so you will have to wait till I'm well enough to get to my computer again.

Feeling very nervous, but Thank You all for your in put and your helpful links and kind words.

Thank You all again and I will be intouch as soon as I can.

Love Kelly.