Chrones disease

ros0110

My mum has Crohns and she's been taking a teaspoon of manuka honey each day. She swears by it and has been able to reduce her steroid dose a bit.

It's not exactly cheap stuff, but maybe worth trying for a few months to see.

zzzLazyDaisy

Manuka honey is great, but be aware that it is still sugar, so you should check before taking it. I was advised to cut right down on sugar when I was diagnosed as many people with crohn's are also glucose intolerant. That isn't to say you shouldn't take it, but just to check it is okay for you, as everyone is different.

verynewmoneysaver

My son was diagnosed with Crohns 2 and a half years ago. He has responded well to treatment and has not had a flare-up. He is now taking immunosupressants and Pentassa. He found it hard to accept at first as he was only 18, and it did take a while to get him diagnosed. I agree that NACC is very helpful, for relatives as well. He saw a dietitian who gave him supplements to help with his weight gain. He went back to college after a break and is hoping to go to uni next year.

becky81

lolly5648 wrote: »

If you do join NACC (http://www.nacc.org.uk/) which costs £12pa you will have access to their 'in-contact' telephone line. It is staffed by volunteers who have had Chrohns or UC and they will listen to your worries and reassure you. They don't give medical advice but are great if you want to talk about the embarrassing aspects of IBD. You don't have to give your name so you can be completely annonymous.

One thing I would say is that there are a lot of consultants who specialise in IBD and it might be worth asking your GP about this and try to get referred to a different consultant who might be more sympathetic.

The groups cover most areas and there are all ages. Whereabouts do you live?

Hi
I live in Kent. I did have a look on there website, and then called them yesterday. They gave me so much more info that my consultant did, they were great!!
They sent me lots of leaflets to read through, and i was also advised to buy a book by Dr gomez that alot of people swear by. Its £12.99 in a book store or 1p on Amazon (plus £2.45 delivery). I also received a Radar Key too this morning, ehich puts my mind at ease slightly if i need to use a public toilet. Considering i called them yesterday, i cant belive i recieved everything today!!

PetuliaGristle

Hi Becky, I have Ulcerative Colitis and found this website Crohns Disease in the UK a great source of practical information and support from the forum. The site is a non-profit support/informational site and set up by Caroline, a patient with Crohns disease in the UK. They run the group on a voluntary basis to provide information and support to patients, partners, carers or friends of people with IBD (IBD is the family of diseases including Crohns and Colitis). The information provided is designed to support, not replace the relationship that exists between a patient/site visitor and his/her existing physician. And I always have to double check the spelling of Crohns . Wishing you all the best, GirlySquare xx

P.S. I forgot there's a good overview of symptoms etc. on NHS Direct.