Has anybody taken Roaccutane???

mae

No I've got a boy and a girl and don't want anymore. Thankyou so much for the info I will look at it but I just can't jusitfy shelling anymore money out on my skin without any guarantees.. I was told that Nlite really works I paid £400 and nothing at all changed..Funny how nobody offers money back on these expensive treatments if they fail to work..

impy78

Hiya Mae,
I am presuming you are a fellow girlie because of your name, so apologies if you aren't!!

I had terrible acne on my back and my chest and I tried anti biotics and all that mullarky, with no result at all.

My doctor put me on Dianette, an oral contraceptive, and it did wonders for my skin.

I still get one or two, but that's sort of it.

It does have side effect though - weight gain, irritability, and you cn't take it if you have high blood pressure, or a history of thrombosis in your family, but I have found it to be the only thing that works for me.

But the best thing is, because it's a contraceptive, it's free.


My husband was on roaccutane (before he met me), and he had very raw skin and photosensitivity. But it did work for him in the end.

But, as points out, it has been known to cause side effects like terrible depression and suicide in some cases.

*Sparkle*_3

:rolleyes2 Nlite- also know as IPL we curently offer this treatment but not for ACNE!! we use it for broken capilleries. :rolleyes2

Well its up to you at the end of the day, make sure you have reserched all the risks and side effects.
In our clinic,We cant treat anyone that has been on roaccutane they need to have been off of it for 6 months with a letter from the doctor.

Let me know how it goes, keep us updated as a professional i'd be interested to see how your treatment goes.

PS i'm also on dianette!

Lady_K

My daughter changed her birth control pill and this completely wrecked her hormones. She had never had problems with her skin before but this completely changed her. She went to hell and back and to have a skin problem like that is absolutely devastating to say the least!

We went to the doctor who misprescribed her steroid cream to put on her face 3 times a day she did that religiously for 4.5 months and only later did we find out by accident that it thins the skin and did absolutely nothing for her but make it worse and we found that if its used for 6 months it leaves permanent damage. She was given a number topical treatments all guessing the condition, one guess was rosasea, all wasted time and suffering. In the end we ended up going to a private dermatologist. He talked about roaccutain but suggested trying the longer way first.

Birth control pill DIANETTE(now changed to yasmin its safer)

1 minocin each day

a special wash cleanser(max twice a day)

and Retin A(of which she used for the least time possible as long term its aging and can cause pigment loss)

It took a few months to kick in but evenutually it improved and luckily she has no scars because we acted quickly

I read through the papers we got about roaccutain and the side effects really worried me. The main one is the depression it can be dangerous if you are prone to depression and people have been known to comit suicide whilst on it. But I do know the way we felt then. If the other way had not worked I'm almost sure she would have tried it because she was completely desperate and the condition had taken her life away really. But I would have watched her very closely for early problem signs and made sure she had checkups regular. If you take it make sure you have the support of close family.

My daughters is really being controlled by the yasmin now, she did try to come off it once and the problem started coming back when she had been off the pill for about 6 weeks. With roaccutain from what I've read once youve had it, it more or less clears you of the problem for life but some side effects can remain like permanentally dry lips

mae

Awe Thanks for all your replies... Yes it is horrible living with this condition I know some people would consider it trivial in medical terms which I suppose it is but it can be really embarrassing and cause lack of confidence at the very least..
I have tried Dianette years ago but it made me very nauseaus?? Also I know that the pill comes with its own set of side effects and warnings..I don't have to take the pill as my husband has had a vasectomy but I would take it if it agreed with me and helped my skin.. I'll see what the dermatologist says when I see him.No idea how long the waiting list is??

Lady_K

If you go through referal the doctor I would think the waiting list would be long. I know someone with really extremely severe skin problems and he had to wait 10 months just to get his first consultation then the appointments were so hard to fit in thy were 6-9 months apart. The doctor confirmed this would be the case for my daughter too if he refered her. So we then asked for his recommendation for a private dermatologist which he gave and we got an appointment the very next day. If the problem reccured we wouldn't mess about we would definitely go to a private dermatologist recommended by the doctor rather than go through the stress of waiting for nhs, sad as that is. I wouldn't just get one out of the paper

mae

Yeah I wouldn't mind paying to see a dermo privately but not sure if my doctor could recommend one because when I went to see him the other day he said he was new and new to the area and also he hadn't even heard of roaccutane when I mentioned that the only thing I hadn't tried (strange). He just said he would write off to the hospital..
I live near Manchester if anybody can recommend a good private Dermatologist??

Lady_K

I'm not sure how true this is but I read that Doctors get trained for 7 years and during that time they only do 2 weeks training on skin conditions. I think the full training has dropped to 5 years though now. They can't know everything about everything but it is surprising that he doesnt know what raoccutane is though.

The dermo cost £70 per appointment but this was in Aug 2002 so it's probably increased by now. Any treatment is on top of that. He took a blood test to see if her liver was healthy enough to be able to go on Roaccutane if she decided she wanted to and that was £19. Also the prescriptions were not covered by NHS either as it's a private dermo but he did advise us to go to the doctor and explain to him and he may prescribe what was needed and this is what the doctor did after that so they kind of worked together to help her. But Raoccutane is not covered by NHS anyway, its expensive but you prob already know that

accountnurse

British Association of Dermatologists

http://www.bad.org.uk/about/

Explains how to find a Dermatologist and what qualifications to look for.

Good luck

mae

accountnurse wrote:

British Association of Dermatologists

http://www.bad.org.uk/about/

Explains how to find a Dermatologist and what qualifications to look for.

Good luck

Thanks I've emailed them and they are sending me a lists od derms in my area.