Some advice needed 'what am I'

Horace

Paparika - feel free to send me a PM - be warned though I am off on my holibobs on Friday for a week so won't have any internet access so you can send me a PM before I go. Just wanted you to know really because I would hate to think that you thought I was ignoring you.

I have had uveitis since 1998 and it has been a right pain the bum I can tell you although now I am stress-free I am now uveitis-free (being kept under control with steroid drops) - I have anterior uveitis with secondary glaucoma, 99% vision loss in my left eye and cataracts (the one in my left eye needs to be done for medical reasons but the one in the right is mild so I won't have that one done for years).

Fantastic news on your redeployment too. Apply for DLA too - unfortunately, I am not considered bad enough to get it - the reason they gave me was that I didnt need a carer and could plan and cook a meal, I couldnt be bothered to appeal. Not saying that you won't get it because you have other symptoms which affect your mobility.

munchings-n-crunchings

Hello Paparika,

I would second what somebody_else has said. That sounds so weird!
Still apply for DLA, it's all about the care you need, for both care and mobility.
It will open up other options like disabled persons railcard and concessionary bus pass and blue parking badge if applicable, to name a couple...sorry my brain is rather slow at the moment.

There will be lots of advice from the forum members, so you have nothing to loose.

Munchie.

Paparika

Horace wrote: »

Paparika - feel free to send me a PM - be warned though I am off on my holibobs on Friday for a week so won't have any internet access so you can send me a PM before I go. Just wanted you to know really because I would hate to think that you thought I was ignoring you.

I have had uveitis since 1998 and it has been a right pain the bum I can tell you although now I am stress-free I am now uveitis-free (being kept under control with steroid drops) - I have anterior uveitis with secondary glaucoma, 99% vision loss in my left eye and cataracts (the one in my left eye needs to be done for medical reasons but the one in the right is mild so I won't have that one done for years).

Fantastic news on your redeployment too. Apply for DLA too - unfortunately, I am not considered bad enough to get it - the reason they gave me was that I didnt need a carer and could plan and cook a meal, I couldnt be bothered to appeal. Not saying that you won't get it because you have other symptoms which affect your mobility.

I'm supposed to be in remission too, but just as you know, it can and will come back when it wants to.

I do try to keep my self stress free :rotfl::rotfl::rotfl::rotfl::rotfl:
that never happens, but i have learnt to recognise when my body needs me to stop and rest etc etc, but i just hate the steroids i really really do.

The doctors seems confused between themselves of how and when i had and got posterior uveitis, some have said i was born with it, some have said it just happened.
Its frustrating but nothing i can do. the concern is the neurological problems i have, and if it points to MS but that is a long time being diagnosed and the attitudes of some doctors when i have asked about this (another doctor and eye expert told me i had it) i was given the attitude of well you don't have it so don't even go there.

I'll PM you later but it was just really to compare side effects from steroids becuase my gp refused to treat me as he said it was the eye hospitals responsibility as i was under there care, and yet the eye hospital said it was the gp's responsibility, so whilst both were pointing in the others direction, i was getting distressed and stressed and upset with the lack of care i was given, i didn't know if what was happening to me were side effects or me being ill with something else... as you can see i've had a bit of a battle with this.

Enjoy your holiday Horace and thanks again

Somebody-else thanks for the advice, i will at some point get myself organised and apply for DLA and see what happens, thank you for your help


Thank you all, today is a good day, i have a job and i feel health wise ok ish :T:T

Horace

You are welcome Paparika - I look forward to receiving your PM.

msflowerfairy

Hi,
I have just been diagnosed with Posner Schollsman Syndrome, and am currently sitting at home in the dark with the blinds drawn as i am having an attack.
I really think it is made worse by stress, and just wanted to know what is the best way to get an attack under control?
I am on Diamox, Cosopt, Celluvisc, Iopidine, Lumigan, and Pottasium tablets.
My eyes are very itchy, and swollen too.
Any help would be really appreciated.
Thanks.