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Anyone have experience of marfan syndrome?

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  • hi gang
    i dont know if you are aware that we do have a marfan forum here in the UK ,not knocking this site or anything .
    if anyone would like details please contact me
    we probably can not offer anymore financial advice etc which is found here ,we are there for support etc

    take care
    andy

    ps the website link is on my profile
  • Hello,

    I have Marfans and if i can be any help answering any questions from the point of view of someone who has this. Please message or email me.
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