Irlen's Syndrome

CharlieRabbit01

Hi I have to have tinted lenses also I see a private optician who has a specialist trained in testing for the coloured lens.

In my experience try calling different opticians and ask if they know about Irlen and or Colourimetry lens if they say we can do a tint similar I'd stay away but if they know what it is give them a try.

I see you are based in the north unfortunately my opticans don't go up that far, but I used to get mine from Dolland and Atchison.

I'm lucky to have a small head so manage to get a away with cheaper teenage/children's frames and my total cost for frames, lens, tints and prescription was £180 plus £30 for the test.

I would highly recommend getting the glasses as the overlays are not specifically prescribed for your sons exact colour issue they make such a big difference.

I wear mine for all concentration activites, ie reading, writing, computer work, even video games.

(assuming your son is a child, apologies if not bear in mind when he gets older from child/teen to adult his colour may change (usually within the same spectrum of colour) when I was diagnosed I had mine narrowed down to 2 colours pink and green, the pink worked best for me but about a year ago my eyes started hurting etc so I went to be re-tested and now have bottle green lens.

If you have any questions please feel free to ask, I've had the glasses for 12 years now.

CharlieRabbit01

KHV wrote: »

I have just qualified as an Irlen Screener. Beware that there are two different types of coloured lenses/glasses. Colourimetry, which is done by a machine at an Opticians produces results where the wearer can see everything in the colour of the prescribed lenses. The Irlen Screening proceedure results in glasses where the wearer can see everything in normal colours. Irlen diagnosticians can provide a range of 53,000 different colour combinations! Colourimetry is far more limited in it's range of colours.

I completely agree this should be available on the NHS as the difference it makes to people's lives is astronomical.

I have mine from an optician (trained at Irlen) and I see everything in normal colour.

theoretica

I don't know if the tint is accurate enough for this use, but if you just want 'green' or 'pink' the website I get my glasses from has various tints available and I think tinted glasses can be had from £20 and might be better than nothing? Selectspecs.com - but I presume the other cheap glasses sites offer something similar, as they all seem fairly alike.

CharlieRabbit01

theoretica wrote: »

I don't know if the tint is accurate enough for this use, but if you just want 'green' or 'pink' the website I get my glasses from has various tints available and I think tinted glasses can be had from £20 and might be better than nothing? Selectspecs.com - but I presume the other cheap glasses sites offer something similar, as they all seem fairly alike.

Thank you for the website, but unfortunately this kind of tint is not appropriate, it appears to be more of a sunglasses tint.

telfordtrio

Hi my 13 year old daughter has recently been diagnosed with irlen syndrome through school. After really struggling for several years and having behaviour issues we came across an excellent senco when she started at high school who has given her amazing support, my daughter is now being recognised for the wonderful person she truly is. She has just started wearing prescription glasses, without a tint. Emily plays a lot of sport, mainly football and I would like to hear from anyone who has the tinted contact lenses. Thank you.:)

telfordtrio

I forgot to say, she doesn't wear the glasses all the time, just when doing school work.

floss2

For anyone who is, or has a child who is, a student, financial support (Disabled Student Allowance) can be applied for for those with dyslexia and/or Irlen Syndrome.

Check out the Direct Gov website for more information here.

SusanD1408

I'm from the North West of England. My son has recently been tested and shown as "at risk" for dyslexia. It does however say in the report that he needs an Irlen test as he has vision problems when reading. The words jump around the page.

I've contacted a couple of places but including tinted glasses they are quoting £600!!!!!!!!!!

Does anyone have a place they can recommend that is cheaper?

I really want my son to have the glasses available to him but I'm not working as I have CFS but not getting benefits :-(

Sue

baranigirl

Hi

We are about to book our third assessment with irlen UK. The difference in the last 18 months for my daughter is amazing!!! We did a fundraiser to cover her first screening, frames and tints (around£500) and raised that through begging on social media sites, running a sponsored event and pestering family members!
My daughter is 14 and plays gk for her roller hockey team without the lenses she can't even see the black ball!!! Now we are looking into contacts as she plays at such a level her frames are being smashed to pieces (through a helmet and face guard)
I personally will stick with irlen UK as I feel she has benefitted so much from the advice and tints I am afraid to move anywhere else. Now I just suck up the assessment cost etc which is around the £200 mark for frames, lenses, tints and testing!

G8311374

If the lenses being tinted are vital for your daughters learning can she get them for through disabled students allowance at all? I may be talking utter rubbish with regards to the lenses, but if your child has dyslexia or any kind of illness, make yourself au fait with DSA as a mature student with health problems it is funding quite a lot of kit to help me through courses. It may also be worth speak to your local university disability department as they get a high volume of students in with irlen syndrome and dyslexia and they maybe be able to point you in the right direction as they will be used to dealing with students who don't have lots of cash to splash around.