We’d like to remind Forumites to please avoid political debate on the Forum.
This is to keep it a safe and useful space for MoneySaving discussions. Threads that are – or become – political in nature may be removed in line with the Forum’s rules. Thank you for your understanding.
📨 Have you signed up to the Forum's new Email Digest yet? Get a selection of trending threads sent straight to your inbox daily, weekly or monthly!
Fibromyalgia
emilyt
Posts: 2,051 Forumite
Just wondered if anyone else suffered from this illness. How long you have had it and has anything helped you relieve the pain of this condition. I know many doctors don't understant it. Would love to hear of anyone else's experiences. Thanks in advance
When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile 
0
Comments
-
My mum has suffered with this for approx 6 years. Not many pain killers touch it. Sometimes her muscles go into spasm which make her drop things etc.
She finds it very annoying at times cos as you say not many people understand that the aches and pains are always there.
How long have you had the illness?😁0 -
If you GOOGLE "fibromylagia vitamin D deficiency" you will find lots of information.
Are you getting enough vitamin D in the summer and more important the winter?
The disease if often misdiagnosed Vitamin d deficiency.
https://www.vitamindcouncil.com is an excellent place to start.Are U getting enough Vitamin D in your life!?0 -
Is fibromyalgia just a vitamin D deficiency
and
Two More Diseases That Could Be Treated With Vitamin C
Although zipvit are reasonable for vitamin c their vitamin d is the wrong sort. The best sort is Vitamin d3 which is the same as your skin makes on direct exposure to sunshine. Until September you shouldn't need to buy vitamin d3 cholecalciferol as you can make around 12,000iu in half an hours sun bathing providing you expose as much skin as possible. DON'T ever get SUNBURNT as occassional sunbathing which results in burning is linked to melanoma. REGULAR SUNBATHING without burning is linked to fewer breast cancers fewer colon cancers fewer prostate cancers and I'll spare you the rest of cancers but won't let you forget the MS connection. The more your child gets outside the lower will be their risk of getting MS in later life. If you have MS the higher your vitamin d3 level the fewer bad patches will occur.
I haven't made a mistake putting links to both vitamin d and vitamin c. Fibromyalgia is thought to be an autoimmune condition and therefore vitamins which support the immune function and are anti-inflammatory and promote collagen formation will help. Bill Sardi links to Ascorbate which is a book about vitamin c you can download for around £3ish. It's a bit heavy going, but it is very interesting and it explains why the research findings for HIGH DOSE vitamin c present a somewhat confused picture. The authors others book about vitamin c explains why the current recommendations for Vitamin c are fundamentally flawed. Again detailed reading for the enthusiast but still interesting.
[SIZE=+3]'Ridiculous Dietary Allowance'
[/SIZE][SIZE=+3]As you are aware we aren't allowed to give anything that resembles medical advice here so the above is simply information which may be moneysaving if it helps you spend your money on supplements which you don't have to pay for, because you get them free from the sunshine, or which are cheap and known to be effective if taken in effective amounts.
Making sure you understand how vitamin c depletes once you've swallowed it also enables you to use it in a moneysaving most effective manner. The Hickey/Roberts books explain how the half life (time it takes your body to lose half the supplement just taken) is only half and hour. This means taking it in one dose means you lose most of it. You therefore need to either use slow release vitamin c or stage your intake through the day. I'm now taking 500mg every 4 hrs at 7am 11am 3pm 7pm and 11pm. that way my blood level of ascorbate shouild stay at a higher level than can be achieved by taking a large dose in the morning, or even 2 larger doses morning and night.
[/SIZE][SIZE=+3]
[/SIZE]My weight loss following Doktor Dahlqvist' Dietary Program
Start 23rd Jan 2008 14st 9lbs Current 10st 12lbs0 -
It might be worthwhile asking the GP to refer you to a physio; they can advise you on different methods of pain relief and can talk to you about stretching and graded exercise. I know exercise might sound like the last thing you would want to try but it can really help. There are also support groups that can be a good source of advice and information.0
-
see www.thirdage.com they have an article about it0
-
A former colleague who had this was referred to the Pain Management Clinic and spent quite a useful week there, I believe.Signature removed for peace of mind0
-
i have it,have been very bad for the past few yrs.constant pain, nothing touches it.better in warmer weather.very bad during periods.i'm on crutches now.
its quite depressing as you look well and gp's do'nt really understand it.
If you are in a lot of pain try a pain management clinic via gp referral.?The expert patient programme can also help a lot with support.
http://www.ukfibromyalgia.com/forums/index.php
http://en.wikipedia.org/wiki/Fibromyalgia
http://www.coventrypainclinic.org.uk/musclepain-fibromyalgiasyndrome.htm
http://www.fibromyalgia-associationuk.org//index.php?option=com_content&task=view&id=28&Itemid=44
good luck!!!.It is liveable with but takes a lot of effort from you,friends and family.Every day above ground is a good one
0 -
did you find the article it should have been https://www.thirdage.com/health/0
-
I was diagnosed with FMS last year, I thought I was destined to sit on my sofa forever, I managed to get better, not 100% but managing the pain and working again with an employer who appreciates that some days I get more done than others. I lost 1 and a half stone which has helped, still got a few lb to go to get to my goal weight, I know I am lucky as some people have a much worse time than I have.0
-
Thankyou to everyone. I can't believe how many of you have replied to my thread. I have been suffering now for nearly 4 years. I had to give up my job as a carer which i loved. I am still not fit enough to work. I consider myself very lucky as i have a very supportive family. I am 37 and my husband and 2 daughters aged 16 and 19 are brilliant. I do get very down but it helps to share a problem. I don't know anyone else who suffers with it. I appreciate everyone being so honest and open. As crutches said we look alright but the pain is unbearable. I have had physio and accupuncture. Also been pain management. I recently went to the rheumatologist who suggested i joined a gym and went swimming. This hasn't helped and i feel so much worse. I do take vitamins. i just live a day at a time and if i can't do that i just get through a hour at a time. I'm hoping that one day it will actually not rule my life as much. Sorry to sound so depressing. But a big thankyou to all of you who have responded. I hope and pray that the doctors will find a miricle cure soon. The rheumatologist also suggested i took anti depressant which i said no to. I am not depressed just feel down because of the pain. Has anti depressant helped anyone else.When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile
0
This discussion has been closed.
Confirm your email address to Create Threads and Reply
Categories
- All Categories
- 354.8K Banking & Borrowing
- 254.6K Reduce Debt & Boost Income
- 455.6K Spending & Discounts
- 247.7K Work, Benefits & Business
- 604.6K Mortgages, Homes & Bills
- 178.7K Life & Family
- 262.3K Travel & Transport
- 1.5M Hobbies & Leisure
- 16.1K Discuss & Feedback
- 37.7K Read-Only Boards