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waiting lists/help!/VENTING!

Please nobody laugh, it's not a laughing matter if you live with this. And please don;t say ''it's only snoring''.

My OH has sleep apnea (we found out today). He first starting having this investigated in 1994. He went through the system had an operation on his nose (which didn't help) and continued to complain of the same symptoms to a number of GPs until it was finally investigated again (start of 2003). He has been referred on by 3 consultants from ENT to thorax (?) to lung/breathing dept.. Because this is an inter-hospital referral they are not obliged to stick to the 16 weeks time-scale and so it's taken until today from feb 2003 to see the right guy. He confirmed from the tests that OH has sleep apnea and he also had it back in 1994 but it wasn't as bad as it is now :mad: [so why didn't they sort it in 1994 and save us both a hell of a lot of problems!]Anyway he needs a machine to use when he sleeps. Great! finally they are going to sort it out. Only thing is we have to wait a further 3 months for a machine. 'hopefully' we won't wait more than 3 months but he also said for us to come back in 7 months and 'hopefully' we'll have received the machine by then [so are we waiting 3 months or 7!!!] I am so upset. it has taken so long to find out the problem and they are making us wait even longer for the machine. I expected the doc to confirm the diagnosis and arrange for OH to have a machine given to him in about a week or 2.

I am really upset at having to wait 3-7 months longer. The main problem with sleep apnea is he is always tired (and gave up work because of this along with him having M.E.) obviously we would like him to feel better because of this. He snores absolutely terribly. SO bad like you wouldn't believe. I can hear him at the other end of the house. It is unbearable. I am woken up 6-10 times a night with it and i sleep at the other end of the house with as many shut doors as possible. The kids are also woken up several times a night with the noise. I've made him sleep in the car or shed some nights it is so bad. I've had 3 nervous breakdowns in the time we've been together. Lack of sleep (with hindsight) was the final straw. My health has deteriorated due to lack of sleep and i believe the children are being affected by their sleep pattens being disrupted. We have even discussed us splitting up just so he doesn't sleep in the same house as us. BTW we have been told this machine will completely stop the snoring and mean his airways are kept open. So you can see why we are so keen to get this as soon as possible. I am absolutely desperate to have this problem resolved and i think we have waited long enough to have the problem resolved.

Any tips on how to get this damn machine quicker? Who do we contact to pressure? [other than GP]

Thanks for listening

Comments

  • italiastar
    italiastar Posts: 1,448 Forumite
    My daughter fractured her arm today. They put a temporary splint on it, but no plaster as this has to be done by the fracture clinic - this has a TWO WEEK wait !!!!
  • Zziggi
    Zziggi Posts: 2,487 Forumite
    Part of the Furniture 1,000 Posts Combo Breaker
    italiastar wrote:
    My daughter fractured her arm today. They put a temporary splint on it, but no plaster as this has to be done by the fracture clinic - this has a TWO WEEK wait !!!!

    sorry to hear that italiastar. when this happened to me i had to go back in 3 days time - and i thought that was bad as i couldn't see why they couldn't do it there-and-then. Two weeks is just ridiculous.

    I know my OH's problem isn't life threatening but we have waited long enough and it is causing us other problems. I literally can't cope with a further 3-7 month wait.
  • SnowyOwl_2
    SnowyOwl_2 Posts: 5,257 Forumite
    1,000 Posts Combo Breaker
    Hi there

    It is not funny, nobody is going to laugh. This topic has been discussed before, see this thread:



    http://forums.moneysavingexpert.com/showthread.html?t=22261&highlight=sleep+apnoea

    Maybe a private message or two to some of those who have been through what you are going through might be of use.

    There is information on www.britishsnoring.co.uk about sleep apnoea, the possible consequences of it and why it is imperative to have a machine if you are a sufferer. Maybe with some facts you can return to your doctor and put pressure on him/her to get the machine for your husband. The doctors you have seen seem to have been rather dismissive of you and your husband. Don't let them fob you off, you need to get this problem sorted sooner rather than later.

    Sorry, I don't know very much about this topic, but maybe you will find some information in these links which will help you speed things up.
  • Zziggi
    Zziggi Posts: 2,487 Forumite
    Part of the Furniture 1,000 Posts Combo Breaker
    Seems i "vented" too soon. Letter through the post today to tell him to go back 1st week in august. You have no idea how relieved i am that it isn't 3-7 months!

    Thanks for letting me vent!
  • Bossyboots
    Bossyboots Posts: 6,760 Forumite
    Part of the Furniture 1,000 Posts Name Dropper Combo Breaker
    italiastar wrote:
    My daughter fractured her arm today. They put a temporary splint on it, but no plaster as this has to be done by the fracture clinic - this has a TWO WEEK wait !!!!

    Is this actually a two week wait for a slot or a two week wait for the arm to settle. It can be very dangerous plastering an arm too soon in case it swells. I have noticed more and more people starting with splints and then plaster which I thought was for this reason.

    I think it also depends on the type and location of break as my daughter, my mum and my MIL all had different scenarios for their various mishaps in relation to when and how limbs were immobilised and then plastered.
  • Somerset
    Somerset Posts: 3,636 Forumite
    Part of the Furniture Combo Breaker
    My O/H has sleep apnea too. Went through the system ( GP referral, overnight stay/tests, consultant,machine ). He tried the machine for about a month but couldn't stand it. He said it was ' too uncomfortable to sleep in'.
    I wish your O/H better luck !!!
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