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    • Vix76
    • By Vix76 8th Jul 18, 2:32 PM
    • 6Posts
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    Vix76
    DLA before diagnosis
    • #1
    • 8th Jul 18, 2:32 PM
    DLA before diagnosis 8th Jul 18 at 2:32 PM
    Hi my daughter is at the very start of getting assessed for Aspergers..we are looking at least another 18 months of examinations etc..Has anyone ever sucessfully received DLA for their child?if so what kind of proof will i need to send with the claim
Page 1
    • NeilCr
    • By NeilCr 8th Jul 18, 2:40 PM
    • 1,940 Posts
    • 2,614 Thanks
    NeilCr
    • #2
    • 8th Jul 18, 2:40 PM
    • #2
    • 8th Jul 18, 2:40 PM
    General guide to claiming DLA here

    https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/disability-living-allowance/help-with-your-dla-claim/help-with-dla-form/

    There is a link half way down to a long but very good and detailed guide to completing the form. Plus comments on evidence needed
    • Nannytone
    • By Nannytone 8th Jul 18, 2:42 PM
    • 114 Posts
    • 182 Thanks
    Nannytone
    • #3
    • 8th Jul 18, 2:42 PM
    • #3
    • 8th Jul 18, 2:42 PM
    What care or mobility needs does she have over and above another child of her age ?
    • Mojisola
    • By Mojisola 8th Jul 18, 2:57 PM
    • 29,478 Posts
    • 75,240 Thanks
    Mojisola
    • #4
    • 8th Jul 18, 2:57 PM
    • #4
    • 8th Jul 18, 2:57 PM
    DLA before diagnosis

    Health benefits are given on need, not diagnosis. People with the same diagnosis can have very different care needs.
    • GwylimT
    • By GwylimT 8th Jul 18, 3:07 PM
    • 6,142 Posts
    • 11,556 Thanks
    GwylimT
    • #5
    • 8th Jul 18, 3:07 PM
    • #5
    • 8th Jul 18, 3:07 PM
    An autism diagnosis (the UK no longer diagnoses aspergers) should only take a few weeks, an appointment with an ed psych followed by a call/meeting with the childs ped. Around eight weeks from start to finish.

    DLA is based on need, not diagnosis. You will need to prove that she had care or mobility needs that a typical child of her age wouldn!!!8217;t have.
    • _shel
    • By _shel 8th Jul 18, 4:22 PM
    • 1,230 Posts
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    _shel
    • #6
    • 8th Jul 18, 4:22 PM
    • #6
    • 8th Jul 18, 4:22 PM
    An autism diagnosis (the UK no longer diagnoses aspergers) should only take a few weeks, an appointment with an ed psych followed by a call/meeting with the childs ped. Around eight weeks from start to finish.

    DLA is based on need, not diagnosis. You will need to prove that she had care or mobility needs that a typical child of her age wouldn!!!8217;t have.
    Originally posted by GwylimT
    Diagnosis for children takes 18 months to 4 years depending on the NHS area you live in. Most authorities only accept a triple assessment, Speech & Language, Ed Psych and Pead then to a panel for decision. Ours took 2 years despite being relatively straight forward.
    • Prinzessilein
    • By Prinzessilein 8th Jul 18, 6:17 PM
    • 2,336 Posts
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    Prinzessilein
    • #7
    • 8th Jul 18, 6:17 PM
    • #7
    • 8th Jul 18, 6:17 PM
    Vix76 How old is your daughter?

    As other posters have said, DLA is given for need, not for a specific diagnosis....you can claim DLA BEFORE she is officially diagnosed.

    You will need to show she 'needs much more looking after than a child of the same age who does not have a disability' (quote is from the Gov.uk site)...this can be tricky - as ALL children need care, you need to be able to show that your girl needs substantially more than others her age.

    I asked about her age, because if she is of school age there may well be a SENCO (Special Educational Needs Coordinator) at the school who may be able to help you identify those areas where you can claim she needs the extra help.
    • GwylimT
    • By GwylimT 8th Jul 18, 6:29 PM
    • 6,142 Posts
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    GwylimT
    • #8
    • 8th Jul 18, 6:29 PM
    • #8
    • 8th Jul 18, 6:29 PM
    Diagnosis for children takes 18 months to 4 years depending on the NHS area you live in. Most authorities only accept a triple assessment, Speech & Language, Ed Psych and Pead then to a panel for decision. Ours took 2 years despite being relatively straight forward.
    Originally posted by _shel
    I worked in this area and it would typically take eight weeks, we had a few take four if the ed psych was available earlier. Most authorities have ditched SALT as they are irrelevant where ASD is concerned.
    • kingfisherblue
    • By kingfisherblue 8th Jul 18, 8:12 PM
    • 7,796 Posts
    • 17,020 Thanks
    kingfisherblue
    • #9
    • 8th Jul 18, 8:12 PM
    • #9
    • 8th Jul 18, 8:12 PM
    I worked in this area and it would typically take eight weeks, we had a few take four if the ed psych was available earlier. Most authorities have ditched SALT as they are irrelevant where ASD is concerned.
    Originally posted by GwylimT

    My son took two years to diagnose. This was after a number of years of being told that there was no problem. He has been 'different' since he was a baby, and I had sought help several times. At ten, he was diagnosed with depression, and again I was told that he wasn't autistic, although I was able to give plenty of examples of his traits and the concerns that I had.



    It was only when he was fifteen and self harmed that CAMHS actually listened. Almost immediately I was told that his history meant that they were thinking of an Asperger's diagnosis. It took another twenty three months before we were told that he has high functioning autism (as it is no longer called Asperger's Syndrome).



    I've never applied for DLA or PIP for my son, although I receive it for my other son, who has complex needs.
    • Electrum
    • By Electrum 12th Jul 18, 11:02 AM
    • 214 Posts
    • 73 Thanks
    Electrum
    You can indeed apply before the diagnosis

    If you fill in the forms honestly and think carefully how many times a night you have to get up for the child things like that.

    I got lowest level DLA, and am still on the long waiting list for a diagnosis

    I have a question about how long you get it for? Im fully expecting it to stop or get a letter asking for more information.

    How long does a claim useually last for?

    Do they check to see if the child is still in the same condition?
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