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  • FIRST POST
    • Marshall2260
    • By Marshall2260 17th May 18, 8:32 PM
    • 33Posts
    • 0Thanks
    Marshall2260
    Funding help for Private doctors?
    • #1
    • 17th May 18, 8:32 PM
    Funding help for Private doctors? 17th May 18 at 8:32 PM
    Hi, I suffer with ADHD and there are two particular medications I want to try that NHS ADHD nurses donít prescribe currently. One is Dexedrine which I believe is available on the NHS and one is Adderall which isnít. Both apparently are addictive and so that is part of the reason they donít like to prescribe.
    It will cost me £500 for an initial consultation with Dr. Giaroli in London who is an ADHD specialist. If I want Adderall then just for one tablet a day it will cost me around £480 a month!! I am pretty sure Dexedrine is available on the NHS though so following on from the inital £500, follow up appointments are £250. BUT at the moment Iím not currently in work. With ADHD being a pre-existing condition I have not been able to find a company to insure me to help fund these appointments. Does anyone here have any ideas? Iím desperate to find the right medication for me to get my life back in order as Iím a bit of a mess at the moment still. Any ideas how I could possibly fund this? They used to do a thing called a Community Care Grant that could help in exceptional circumstances. Now I believe theyíve changed that to a Community Support Grant which only helps with white goods like fridge, oven, washing machine etc.

    Any advice much appreciated guys, thanks!
Page 1
    • Cyclizine
    • By Cyclizine 18th May 18, 5:57 AM
    • 72 Posts
    • 79 Thanks
    Cyclizine
    • #2
    • 18th May 18, 5:57 AM
    • #2
    • 18th May 18, 5:57 AM
    In short, no there is not any special funding. If you choose to go private, then you go private for everything. You would be better to ask for a review with your Consultant on the NHS, or ask your GP to refer you. I appreciate this might be a long wait, but realistically you are not going to be able to get dexamphetamine privately.
    • Sncjw
    • By Sncjw 18th May 18, 9:42 AM
    • 1,915 Posts
    • 1,127 Thanks
    Sncjw
    • #3
    • 18th May 18, 9:42 AM
    • #3
    • 18th May 18, 9:42 AM
    Even if you got insurance there will be a clause you can!!!8217;t claim on it for so long after taking it out.
    • Toothsmith
    • By Toothsmith 18th May 18, 10:53 AM
    • 8,939 Posts
    • 10,662 Thanks
    Toothsmith
    • #4
    • 18th May 18, 10:53 AM
    • #4
    • 18th May 18, 10:53 AM
    What does your NHS GP say about it?

    If there are good clinical reasons to prescribe it, I'm sure they could find some way to?

    If there aren't - Then the same reasons would (or should!!) apply to you having it privately as well.
    How to find a dentist.
    1. Get recommendations from friends/family/neighbours/etc.
    2. Once you have a short-list, VISIT the practices - dont just phone. Go on the pretext of getting a Practice Leaflet.
    3. Assess the helpfulness of the staff and the level of the facilities.
    4. Only book initial appointment when you find a place you are happy with.
    • Marshall2260
    • By Marshall2260 18th May 18, 1:39 PM
    • 33 Posts
    • 0 Thanks
    Marshall2260
    • #5
    • 18th May 18, 1:39 PM
    • #5
    • 18th May 18, 1:39 PM
    Really? How would you go about finding out when the clause comes into play?
    Iíve just been told by multiple insurance companies flat out that itís extremely rarely for any companies to insure for pre-existing conditions and that they wouldnít help with that.
    I was told by a lady about some minor funding scheme that she is signed up to but I really canít remember any of the details. I was sure I wrote it down but canít find it anywhere! If I remember correctly though it wouldíve been a drop in the ocean with regards to Adderall costs on a monthly basis, which is what I was looking at at the time.
    • Marshall2260
    • By Marshall2260 18th May 18, 1:48 PM
    • 33 Posts
    • 0 Thanks
    Marshall2260
    • #6
    • 18th May 18, 1:48 PM
    • #6
    • 18th May 18, 1:48 PM
    My NHS GP doesnít really get involved with my ADHD. He referred me to a specialist Adult ADHD worker who tried me on a few of the weaker ADHD medications like Strattera, Methylphenidate and Elvanse which didnít have the desired affect for me. I am looking for a medication that helps me focus and gets me feeling energized, activated, motivated etc. and I knew really going into those courses that they would probably not do all those things sadly.
    She told me from the off that they couldnít prescribe Adderall because itís not available on her formula due to it not being on the NHS (I think because itís manufactured in the US and the costs arenít reasonable). Dexedrine I was also told that she doesnít like to/doesnít prescribe from day one too but I am almost certain thatís not the case for all NHS ADHD practitions. She only told me she doesnít prescribe it because it can be highly addictive...
    • ballisticbrian
    • By ballisticbrian 18th May 18, 2:01 PM
    • 3,451 Posts
    • 1,961 Thanks
    ballisticbrian
    • #7
    • 18th May 18, 2:01 PM
    • #7
    • 18th May 18, 2:01 PM
    looking for a medication that helps me focus and gets me feeling energized, activated, motivated etc.
    Yeah give me some of that lol, isn't that what everyone needs? :O
    Warning: any unnecessary disclaimers appearing under my posts do not bear any connection with reality, either intended, accidental or otherwise. Your statutory rights are not affected.
    • Marshall2260
    • By Marshall2260 18th May 18, 3:26 PM
    • 33 Posts
    • 0 Thanks
    Marshall2260
    • #8
    • 18th May 18, 3:26 PM
    • #8
    • 18th May 18, 3:26 PM
    Haha yeah I guess. Only difference being I was diagnosed with ADHD as a kid and Adult ADHD as an adult so I qualify for those meds!
    • ballisticbrian
    • By ballisticbrian 18th May 18, 3:31 PM
    • 3,451 Posts
    • 1,961 Thanks
    ballisticbrian
    • #9
    • 18th May 18, 3:31 PM
    • #9
    • 18th May 18, 3:31 PM
    I have many of the symptoms of fibroM plus back pain that I'm on this forum enquiring about. To be honest anything that can do all that sounds like it would fix me, but you do have to remember it's basically a class A drug which is extremely potent, and I know for a fact the street version really messes you up.
    Warning: any unnecessary disclaimers appearing under my posts do not bear any connection with reality, either intended, accidental or otherwise. Your statutory rights are not affected.
    • Marshall2260
    • By Marshall2260 18th May 18, 4:40 PM
    • 33 Posts
    • 0 Thanks
    Marshall2260
    Wish I could help you with that bro. R you sure youíre on the right forum for that though? Is this not a money advice forum?
    Iím sure if you soend long enough researching remedyís for FibroM and back pain on Giogme youíd find something. Youíd probably find forums specifically for those issues too! One thing I know can help any pain where ever located on the body is HgH. I've heard many stories of people having life-long or long-term pain yet after a month or so on a HgH course the pain almost completely disappears!
    Good luck anyway buddy, hope you find the answers you need.
    • Marshall2260
    • By Marshall2260 18th May 18, 5:00 PM
    • 33 Posts
    • 0 Thanks
    Marshall2260
    on *Google, not Giogme lol
    • Toothsmith
    • By Toothsmith 18th May 18, 5:09 PM
    • 8,939 Posts
    • 10,662 Thanks
    Toothsmith
    My NHS GP doesnít really get involved with my ADHD. .
    Originally posted by Marshall2260
    Might it be worth going to see him and explaining the problem? He might have some ideas how to get it prescribed for you?

    Just a suggestion - you know the people caring for you better than me, but it might throw up a different avenue you could try before having to fund it yourself?
    How to find a dentist.
    1. Get recommendations from friends/family/neighbours/etc.
    2. Once you have a short-list, VISIT the practices - dont just phone. Go on the pretext of getting a Practice Leaflet.
    3. Assess the helpfulness of the staff and the level of the facilities.
    4. Only book initial appointment when you find a place you are happy with.
    • Sncjw
    • By Sncjw 19th May 18, 6:55 PM
    • 1,915 Posts
    • 1,127 Thanks
    Sncjw
    The clause will be in the terms and conditions. If they accepted a claim so soon after claim starting and the person knows there!!!8217;s a claim coming up everyone would do it and they would loose out on money.
    • Sncjw
    • By Sncjw 19th May 18, 7:01 PM
    • 1,915 Posts
    • 1,127 Thanks
    Sncjw
    Also they won!!!8217;t insure you for pre exsisiting conditions due to the costs involved in the care for those.
    • FBaby
    • By FBaby 20th May 18, 8:51 AM
    • 16,939 Posts
    • 41,813 Thanks
    FBaby
    You need to trust your consultant, she is the expert. If the drug is highly addictive, it could end up messing you up more than the effect of ADHD, especially if your main issue currently is lack of energy and motivation, which many people with no diagnosis of ADHD suffer from to.

    You need to speak with her again and weigh the pros and con of any medication. If she feels that everything has been tried and that you symptoms are affecting you more than the side effects of other drugs, she might agree on a trial basis. You need to work with her. Self-medicating with any addictive medication is a recipe for disaster. Don't do it.
    • Marshall2260
    • By Marshall2260 20th May 18, 9:10 PM
    • 33 Posts
    • 0 Thanks
    Marshall2260
    Yeah Iíve definitely asked him before obviously but I have made a next appointment with him to see if he knows of any NHS ADHD nurse who would prescribe it. Cheers pal
    • Marshall2260
    • By Marshall2260 20th May 18, 9:14 PM
    • 33 Posts
    • 0 Thanks
    Marshall2260
    Might it be worth going to see him and explaining the problem? He might have some ideas how to get it prescribed for you?

    Just a suggestion - you know the people caring for you better than me, but it might throw up a different avenue you could try before having to fund it yourself?
    Originally posted by Toothsmith

    Yeah Iíve definitely asked him before obviously but I have made a next appointment with him to see if he knows of any NHS ADHD nurse who would prescribe it. Cheers pal
    • Marshall2260
    • By Marshall2260 20th May 18, 9:21 PM
    • 33 Posts
    • 0 Thanks
    Marshall2260
    You need to trust your consultant, she is the expert. If the drug is highly addictive, it could end up messing you up more than the effect of ADHD, especially if your main issue currently is lack of energy and motivation, which many people with no diagnosis of ADHD suffer from to.

    You need to speak with her again and weigh the pros and con of any medication. If she feels that everything has been tried and that you symptoms are affecting you more than the side effects of other drugs, she might agree on a trial basis. You need to work with her. Self-medicating with any addictive medication is a recipe for disaster. Don't do it.
    Originally posted by FBaby

    Hi FBaby, Itís not a case of not trusting her, but they simply do not prescribe it for whatever reason. Many places do though while the drug I want, Adderall is the most commonly prescribed drug of choice in America but unfortunately it isnít available on the NHS over here. Dexedrine is the closest thing to Adderall. I definitely will not be self medicating!! I will either get it from an NHS nurse or a professional ADHD worker privately.

    Thanks for your concern
    • Starrystarrynight1
    • By Starrystarrynight1 21st May 18, 11:27 AM
    • 225 Posts
    • 363 Thanks
    Starrystarrynight1
    You say your ADHD worker doesn't like to prescribe the Dexedrine from day one, but it sounds like you have tried other medications and these haven't worked. Can't you ask the nurse again about Dexedrine again, now that you've gone through the first 'level' of drugs?
    -------------------------------------------------------------------------------------------------
    I used to be Starrystarrynight on MSE, before a log in technical glitch!
    • dawyldthing
    • By dawyldthing 21st May 18, 9:13 PM
    • 3,006 Posts
    • 2,989 Thanks
    dawyldthing
    I'd stick with trying the NHS options tbh. Private doctors can charge what they want. Finding £500 just for the meds each month is really tough, like a second rent let's be honest.

    If one of the meds aren't suiting you ask for the alternatives
    roll on end of April 2019 *8 done* = *32 to go*
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