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  • FIRST POST
    • B12LIFE
    • By B12LIFE 19th Apr 17, 11:25 AM
    • 3Posts
    • 2Thanks
    B12LIFE
    Vitamin B12 Deficiency
    • #1
    • 19th Apr 17, 11:25 AM
    Vitamin B12 Deficiency 19th Apr 17 at 11:25 AM
    Hi everyone - I am new here

    I have a vitamin B12 deficiency and whilst I take supplements and try to eat a good diet, it's something that I have to live with and try to keep on top of. I guess that I have been focussing too much on other things recently and I haven't been looking after myself as I should, so as a result I've had a real slump in energy and my symptoms have worsened over the past week. I have upped my B12 supplements and I am eating a really B12-rich diet this week in an attempt to counteract the effects, but I know that this will take a bit of time to get back to where I need to be. As a result I am feeling pretty run down and lethargic - but I am working on it (and kicking myself for ignoring the signs).

    Anyway although there's lots of information / facts and figures etc available online, I can't seem to find much in terms of other people blogging or talking about their experience with B12 deficiency. So if anyone else has this issue and wants to chat about it, I would be really keen to hear about other people's experiences.

    Thanks!
Page 1
    • A.Penny.Saved
    • By A.Penny.Saved 19th Apr 17, 6:05 PM
    • 1,672 Posts
    • 876 Thanks
    A.Penny.Saved
    • #2
    • 19th Apr 17, 6:05 PM
    • #2
    • 19th Apr 17, 6:05 PM
    If you are very deficient and your doctor has tested and confirmed this then your GP should be able to give you a B12 injection which can provide far more B12 than oral B12 which requires stomach acid and intrinsic factor.

    There is meant to be some B12 with intrinsic factor which should help improve absorption but could be very expensive. The injections are probably your best bet.

    My blood B12 levels were off the chart when I was tested but my digestive system is highly permeable which causes other problems.

    Getting some 5mg (not micrograms!) B12 tablets might help a little but they are dependent on intrinsic factor for absorption. Sublingual tablets could improve things.

    I get mine from Health monthly which offer fairly low prices. They take about 3 days for delivery.
    • Mojisola
    • By Mojisola 19th Apr 17, 6:09 PM
    • 29,965 Posts
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    Mojisola
    • #3
    • 19th Apr 17, 6:09 PM
    • #3
    • 19th Apr 17, 6:09 PM
    There's a B12 Deficiency UK Facebook group that may be of use.
    • Pop Up Pirate
    • By Pop Up Pirate 20th Apr 17, 7:59 AM
    • 680 Posts
    • 1,839 Thanks
    Pop Up Pirate
    • #4
    • 20th Apr 17, 7:59 AM
    • #4
    • 20th Apr 17, 7:59 AM
    The best B12 to take is Sublingual METHYLCOBALAMIN.

    'Ordinary' B12 off the shelf will do no good whatsoever

    Look up the MTHFR gene mutation as that is closely connected to B12.
    • B12LIFE
    • By B12LIFE 20th Apr 17, 8:39 AM
    • 3 Posts
    • 2 Thanks
    B12LIFE
    • #5
    • 20th Apr 17, 8:39 AM
    • #5
    • 20th Apr 17, 8:39 AM
    Thanks for your replies - much appreciated
    • teddysmum
    • By teddysmum 21st Apr 17, 8:23 PM
    • 9,134 Posts
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    teddysmum
    • #6
    • 21st Apr 17, 8:23 PM
    • #6
    • 21st Apr 17, 8:23 PM
    I was diagnosed after a full blood count for another condition.


    My neurologist said the level was very low and asked my GP to provide weekly injections for 3 months, after which the GP had no plans for more, but the consultant messaged that I need them for life, every 12 weeks or the level would crash again.


    Some injections are painful, but most are fine and all down to the administering nurse's skill. One told me the trick is to completely relax the arm being jabbed.
    • Paulaviki
    • By Paulaviki 21st Apr 17, 9:04 PM
    • 262 Posts
    • 300 Thanks
    Paulaviki
    • #7
    • 21st Apr 17, 9:04 PM
    • #7
    • 21st Apr 17, 9:04 PM
    I have a B12 deficiency, initially the GP suggested I try to eat more animal products and food rich in B12 and take supplements. But this didn't work and it turns out I can't absorb B12 from food so I have an injection every three months done by the nurse at my GP surgery.
    • UKTigerlily
    • By UKTigerlily 21st Apr 17, 11:45 PM
    • 4,421 Posts
    • 5,567 Thanks
    UKTigerlily
    • #8
    • 21st Apr 17, 11:45 PM
    • #8
    • 21st Apr 17, 11:45 PM
    I had this & had injections once a week for a month & that was all x
    • juliettet
    • By juliettet 26th Apr 17, 11:16 AM
    • 643 Posts
    • 4,107 Thanks
    juliettet
    • #9
    • 26th Apr 17, 11:16 AM
    • #9
    • 26th Apr 17, 11:16 AM
    Only a blood test will tell if you are B12 deficient. Only a GP can advise the best course of treatment.
    • Pop Up Pirate
    • By Pop Up Pirate 28th Apr 17, 8:15 AM
    • 680 Posts
    • 1,839 Thanks
    Pop Up Pirate
    Only a blood test will tell if you are B12 deficient. Only a GP can advise the best course of treatment.
    Originally posted by juliettet
    That's not entirely correct.

    As B12 is not a vitamin that you can easily overdose on, taking a supplement can only improve on the B12 in the diet.

    Anyone over 50 should take a B12 supplement, as well as vegans and vegetarians.
    • teddysmum
    • By teddysmum 28th Apr 17, 11:59 AM
    • 9,134 Posts
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    teddysmum
    I had this & had injections once a week for a month & that was all x
    Originally posted by UKTigerlily


    Have you been retested, though ?


    I was lead to believe that injections are for life (mine's due next Monday).
    • suejb2
    • By suejb2 28th Apr 17, 6:53 PM
    • 1,442 Posts
    • 2,193 Thanks
    suejb2
    B12
    I had a course of injections toward the end of my pregnancy 12 years ago. Bloods taken since then haven't highlighted the need to have them repeated.
    Life is like a bath, the longer you are in it the more wrinkly you become.
    • SamuelR
    • By SamuelR 13th Oct 18, 5:17 PM
    • 18 Posts
    • 3 Thanks
    SamuelR
    I used to have extremely low levels of B12 and Vit D. I had been in a fog, poor memory and concentration, fatigued, and significantly depressed. I thought it was depression but psych meds have not been working, so they ordered labs, and they came back with a REALLY low vitamin B12 deficiency. The article here he;ped a lot.
    • McKneff
    • By McKneff 13th Oct 18, 6:34 PM
    • 36,182 Posts
    • 46,649 Thanks
    McKneff
    If you have a b12 deficiency, ii is perniceous neamia. B12 can not be absorbed through the stomach
    You are wasting your money.

    Google it or at least ask your doctor
    make the most of it, we are only here for the weekend.
    and we will never, ever return.
    • KxMx
    • By KxMx 14th Oct 18, 11:19 AM
    • 7,469 Posts
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    KxMx
    The injections were never even mentioned for me, GP went straight to tablets. Two daily on prescription keep me topped up nicely.

    I've found out through supervised trial and error that is the best dose for me. If I reduce to one tablet my levels stay normal but start dropping quite a bit. If I stop then I quickly become deficient again.

    At a guess I'd say I have poor or reduced absorption rather that a total lack of.
    • poppy_f1
    • By poppy_f1 16th Oct 18, 7:18 PM
    • 2,606 Posts
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    poppy_f1
    i was advised i had a b12 deficiency when i was told i had a underactive thyroid, so had to take tablets every day
    about 1 year ago i wasnt getting them prescribed anymore as the GP said my levels were fine but i stil take a b vitamin so they wont drop again
    • Filo25
    • By Filo25 16th Oct 18, 7:59 PM
    • 1,682 Posts
    • 2,484 Thanks
    Filo25
    If you have a b12 deficiency, ii is perniceous neamia. B12 can not be absorbed through the stomach
    You are wasting your money.

    Google it or at least ask your doctor
    Originally posted by McKneff
    Is that definitely correct? I thought you can absorb a very small proportion of B12 through your gut, even if you didn't have intrinsic factor, it just means you will need to take regular high doses.

    I was deficient in spite of eating meat and dairy, but did resolve it with daily supplementation at reasonably high doses with no other treatment
    • UKTigerlily
    • By UKTigerlily 16th Oct 18, 11:30 PM
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    UKTigerlily
    All I know is mine went back to normal, and when I had my blood tested last in June it's fine (especially vigilant now since going Vegan)
    • maddiemay
    • By maddiemay 17th Oct 18, 8:01 AM
    • 3,662 Posts
    • 33,535 Thanks
    maddiemay
    B12 deficiency and Pernicious Anaemia have the same symptoms, but different causes. B12 def. can be caused by being vegan and other things, but Pernicious Anaemia is an auto immune disease whereby the body ceases to produce something called Intrinsic Factor which makes B12. This an awful over simplification, but no time to look up better worded info now.

    If no problems with absorption treatment with tablets/diet can work fine. In some cases though levels are so low that injections are needed to get back to a healthy range.

    With PA I could eat my body weight in appropriate foods and take tablets by the dozen, but would not be able to absorb enough B12 to live on, then the only treatment is by life long injection. As I understand it the absorption rate for those with PA is 1% or less - not enough to function on for long.
    The best thing about the future is that it comes one day at a time. (Abraham Lincoln)
    • Amanda4242
    • By Amanda4242 17th Oct 18, 9:26 AM
    • 451 Posts
    • 4,135 Thanks
    Amanda4242
    I have pernicious anaemia and found out because I had a great doctor. I went to the doctor originally many years ago with exhaustion. He sent me for blood tests and found my B12 to be very very low. He gave me a course of high dose B12 vitamins to take over a month I think. Then retested my blood again and my B12 had dropped, which proved I had PA. I get regular injections, but sometimes find that I have so little energy before my next shot. I know some people self inject but the cost is so expensive. If anybody has found any cheap alternatives to sourcing the B12 shots and needles I would love to know.

    The facebook group someone mentioned on here is also a wealth of knowledge.
    Official DFW Nerd Club - Member no 463 - Proud To Be Dealing With My Debts
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