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Page 477
    • MrsLurcherwalker
    • By MrsLurcherwalker 19th Apr 17, 8:38 AM
    • 11,717 Posts
    • 162,772 Thanks
    BURTHA last year we were faced with that exact situation, the 20 week scan threw up a cleft palate and the possibility of all sorts of syndromes and problems ahead which absolutely blitzed us, I came here to find the comfort of my online friends and the support you all gave me during the 3 week wait for all the test results to come back from the amniocentesis and genetic checks actually stopped me from being totally desperate and out of control emotionally. I send you and yours all the love I can muster M'dear in this so trying of times. We are very fortunate in that when Orley was born in late December his only problem is a cleft lip which will be operated on some time next month, the palate etc. are sound and will require nothing doing so the result need not be as devastating as your fears are telling you it is right now. The teams of hospital folks were as kind, thorough, gentle and supportive with DD2 and hubby as it was possible to be, the kindness and consideration they were given was second to none and the help available is amazing, even down to the Consultant telling DD that when Orley is 18 he automatically qualifies for a nose reconstruction as one nostril is slightly constricted due to the cleft. My heart is with you all and my prayers are for this to have the best possible outcome for all of you, we'll be with you all the way as you were for us, bless you all! xxx.
    Thumpers mum was right - if you can't find anything nice to say don't say anything at all!
    • ivyleaf
    • By ivyleaf 19th Apr 17, 9:05 AM
    • 5,440 Posts
    • 58,158 Thanks
    Thinking of you burtha xx
    • monnagran
    • By monnagran 19th Apr 17, 9:42 AM
    • 3,689 Posts
    • 48,796 Thanks
    It never rains but it pours, does it burtha? The waiting time is sheer hell and there is no wrapping that up.
    Don't hesitate to come on here and unload when you feel like it. We may not be able to do a thing to help but we can hold your hand while you are living through it.

    I believe that friends are quiet angels
    Who lift us to our feet when our wings
    Have trouble remembering how to fly.
    • nursemaggie
    • By nursemaggie 19th Apr 17, 2:07 PM
    • 2,188 Posts
    • 28,856 Thanks
    Thinking of you Burtha.
    • Knit Witch
    • By Knit Witch 19th Apr 17, 2:15 PM
    • 3,434 Posts
    • 31,334 Thanks
    Knit Witch
    Just sending hugs Burtha
    V3ry - 389.60
    • burtha
    • By burtha 19th Apr 17, 9:09 PM
    • 612 Posts
    • 6,658 Thanks
    Thanks all, just had a long day , 6 hour travel , with a very long funeral in between , but it was a nice send of and just what they wanted , so not long back and headache from hell , so meds taken and bed soon .
    They have found something wrong with baby's heart , poss half missing or valves not there , but we will find out soon . If it was anything else I would be overjoyed . Dd is amazing and coping well, but we will see with more news how it goes , just feel **** for them , life has a habit of kicking you in the shins .
    • Floss
    • By Floss 19th Apr 17, 9:51 PM
    • 4,518 Posts
    • 40,394 Thanks
    Burtha the paediatric cardiac Drs can do wonders nowadays, usually within a few days of the birth once they are aware of the need. Big hugs for you all xx
    • Jazee
    • By Jazee 20th Apr 17, 8:57 AM
    • 4,438 Posts
    • 52,009 Thanks
    Hugs Burtha.
    Savings 2018: 1573.11
    • silvasava
    • By silvasava 20th Apr 17, 3:11 PM
    • 3,698 Posts
    • 59,366 Thanks
    Hugs for you and the family Burtha xx
    Small victories - sometimes they are all you can hope for but sometimes they are all you need - be kinder than necessary, for everyone you meet is fighting some kind of battle
    • mcculloch29
    • By mcculloch29 20th Apr 17, 3:29 PM
    • 4,776 Posts
    • 47,173 Thanks
    Oh Burtha, there are no words.
    Huge hugs, that's not just a kick in the shins, it's a mighty hack coming in from a hefty booted barsteward of a defender.
    Erma Bombeck, American writer: "If I had my life to live over again... I would have burned the pink candle, sculptured like a rose, that melted in storage." Don't keep things 'for best' - that day never comes. Use them and enjoy them now.
    • nannywindow
    • By nannywindow 20th Apr 17, 3:37 PM
    • 740 Posts
    • 9,939 Thanks
    Burtha many, many hugs for you and the family.

    • VJsmum
    • By VJsmum 20th Apr 17, 9:38 PM
    • 5,145 Posts
    • 75,686 Thanks
    Hugs Burtha

    Apologies to any I may have offended re Sir Terry Wogan especially VJsMum . I was continuing the banter and only realised my sadly judged error when oil on troubled waters was mentioned .
    Never let me do a dance marathon again!!! The grey cells are dodgy enough without shaking them up .

    I also seem to have misread Burthas post about DD . I thought both daughter and dog had given birth . I thought she seemed remarkably calm!

    Have done a lot of fleecing and placing of cloches and temperature is diving down . Stay warm all , I don't think we will go down as far as Mar , hope you get the downie balance sorted and get to sleep .

    Have just had a marathon phone conversation with middle daughter so will say goodnight and head for bed .
    polly x
    Originally posted by pollyanna 26
    Sorry. Not been off in a huff - i have been on my holidays with little Internet. Spent last night in Colditz castle but escaped this morning. One bus and 5 trains later we are nearly home.

    I have never read Terry Pratchett, which I fear is my loss....
    You're out with a friend in the capital, I'm a thousand leagues under the sea
    You're hovering worriedly over your eggs, And I'm pondering trees
    I'm wandering long, And I'm pondering trees
    For you and me
    Guy Garvey
    • Floss
    • By Floss 20th Apr 17, 9:46 PM
    • 4,518 Posts
    • 40,394 Thanks
    ...I have never read Terry Pratchett, which I fear is my loss....
    Originally posted by VJsmum
    Most definitely. I suggest you try The Hogfather, but leave it a bit nearer to Christmas
    • burtha
    • By burtha 21st Apr 17, 12:55 AM
    • 612 Posts
    • 6,658 Thanks
    Just an update, as at the moment don't know what else to say ,
    They have been offered these outcomes ,
    1 . It could be all over very soon ,if they wish
    2. It could be over within the next 16 ish months, if that , if baby makes it through to labour , then at least one operation for a short term fix
    3. Makes to labour and have op and find heart transplant ( slim chance)

    Trying to hold everything together for them , whatever happens will end up with the same outcome

    • candygirl
    • By candygirl 21st Apr 17, 2:20 AM
    • 26,027 Posts
    • 106,139 Thanks
    Sending love and hugs, to you and your family BURTHA, n am also really sorry about little pup xxx
    "You can't stop the waves, but you can learn to surf"

    (Kabat-Zinn 2004)
    • camelot1001
    • By camelot1001 21st Apr 17, 6:28 AM
    • 3,836 Posts
    • 46,079 Thanks
    Sorry to hear that burtha, such a difficult time for you all. Sending much love.
    • mardatha
    • By mardatha 21st Apr 17, 7:07 AM
    • 14,827 Posts
    • 141,511 Thanks
    That's so hard. Sending you all love, light, & strength to cope with this Burtha.
    • Floss
    • By Floss 21st Apr 17, 7:23 AM
    • 4,518 Posts
    • 40,394 Thanks
    Burtha, strength and hugs to you all xx
    • monnagran
    • By monnagran 21st Apr 17, 7:42 AM
    • 3,689 Posts
    • 48,796 Thanks
    burtha, I have a card which I wish I could send you. It says........

    I promise not to say
    'It will be OK' or
    'it's not fair.'

    (and if you need me to punch the next person that does,
    just let me know)

    That's just how I feel for you.

    I believe that friends are quiet angels
    Who lift us to our feet when our wings
    Have trouble remembering how to fly.
    • ancientofdays
    • By ancientofdays 21st Apr 17, 7:50 AM
    • 1,603 Posts
    • 19,038 Thanks
    Burtha I'm thinking of you and your family xx
    I was jumping to conclusions and one of them jumped back
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