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  • FIRST POST
    • soolin
    • By soolin 25th Jul 10, 5:35 PM
    • 62,930Posts
    • 45,304Thanks
    soolin
    The (not so old) Crocks Cafe -Part 2
    • #1
    • 25th Jul 10, 5:35 PM
    The (not so old) Crocks Cafe -Part 2 25th Jul 10 at 5:35 PM
    With thanks to zzzLazyDaisy for the original thread, this is part 2:

    Part 1 can be found here: http://forums.moneysavingexpert.com/showthread.php?t=1224675




    *Raises the shutters*

    *puts out tables and chairs outside to take advantage of the October sunshine*

    *Puts out sign saying 'open for business'*

    Anyone for afternoon tea and a chat?

    Members of the Crocks Club
    Last edited by soolin; 25-07-2010 at 5:42 PM.
    I'm the Board Guide for the Ebay Board , Charities Board , Dosh & Disability , Up Your Income and the Local MoneySaving-England board which means I volunteer to help get your forum questions answered and keep the forum running smoothly. However, do remember, board guides don't read every post. If you spot an illegal or inappropriate post then please report it to forumteam@moneysavingexpert.com (it's not part of my role to deal with this). Any views are mine and not the official line of MoneySavingExpert.com
    New to Forum? Guide
Page 2
  • Invasion
    Off you go to the doctors SH

    I'm a pretty simple bean, although my main diagnosis seems to be a bit up in the air at the moment, which is ME, currently awaiting further test and scan results.. My ME doesn't seem to follow the normal pattern, currently I'm doing better, but my legs have not heard this news, and I've been unable to walk much more than around 30 metres or so with crutches for a couple of years, so mostly wheelchair dependant, muscle specialist suspected myasthenia gravis, as even she said my muscles don't work like those with "CFS" normally do, but EMG came back normal so she got fed up of me cos ME's boring

    I also have half diagnosed fibro (neuro mentioned it in passing the other day) after suspecting that for ages, chronic pain, migraine, iron dependent anaemia, aswell as hypermobile joints (not to be confused with HMS!) which I'm having fun with currently.. Oh, and I'm the baby of the group at 18
    • Peanuckle
    • By Peanuckle 26th Jul 10, 12:16 PM
    • 470 Posts
    • 918 Thanks
    Peanuckle
    Anyone object if I hide in the corner and feel sorry for myself for just one day?


    I really really need a shower or bath but since my DH is away at the moment that isn't gonna happen til at least tomorrow. Can't complain too much as I have a house full of teens (my 3 plus the lodger) who help with everything else, just can't bring myself to ask them to help me out of the bath

    Guess it's time for me to admit that my MS is getting worse and I'm going to have to bite the bullet and visit the GP. Been avoiding them since I moved up here as half my medical records are lost and they want to have a meeting to fill the gaps. I think I'm more terrified of them wanting yet another lumber puncture if those results aren't there. The 4 I had originally were hell and I'm not going there again.
    • Indie Kid
    • By Indie Kid 26th Jul 10, 12:25 PM
    • 21,629 Posts
    • 29,326 Thanks
    Indie Kid
    Anyone object if I hide in the corner and feel sorry for myself for just one day?
    Originally posted by Peanuckle
    We all have days like this, I'm sure!
  • ash4becks
    having a good day todays about bloming time but for the wrists and back but that will do me fine, would love to go out but trying to behave

    just got my blue badge decsion thought was decined, so any help with this would be great, this was on a good day doped up to the 9's

    justifacation of decision-

    based on the information provided during your assessment it would appear that you are not dependent on the need to park close to any public building. it was evident that, while having a permanent disabliity, it does not result in an inability to walk or cause considerable difficulty in walking

    the docs letter i included stated that i was in pain all of the time and felt that 50 meters is as far as i can walk

    do you think this is a contradiction itself x
    • only_mee
    • By only_mee 26th Jul 10, 12:35 PM
    • 2,302 Posts
    • 2,518 Thanks
    only_mee
    Anyone object if I hide in the corner and feel sorry for myself for just one day?
    Originally posted by Peanuckle
    No we all feel like that some most of the time.
  • ash4becks
    No we all feel like that some most of the time.
    Originally posted by only_mee
    and dont i no it too, trying to get out of it dispite the pain so hard but i really want this
  • Trialia
    It is the overdoing it and then paying for it that is becoming the major problem right now, it used to be that I could bounce back much quicker but now, overdoing it for one afternoon and I pay for the rest of the week and am barely able to move without pain.
    Originally posted by SingleSue
    That's pretty much exactly how it is for me. I've had fibro for coming on 6 years now, and I've been using a cane for nearly two as my joint instability has gradually worsened.

    It took me a while to come to terms with knowing that I cannot go past a certain limit. I think I mostly have. Maybe it's harder for you because you've been pushing yourself past them for longer? You're more used to it than I am? I can't bounce back at all well. If I go out at night and come home around midnight, I won't be properly awake until at least 11 the following morning, and I'll ache for the rest of that day if I overdid it even a little. I've learned to try to stop setting myself off like that. But it's hard. And a lot of people, because they can't look at me and see my illness, still don't believe me when I tell them I have to stop...


    Peanuckle - I am very familiar with that feeling! My hair is in an awful state right now, needs washing, but I can't hold my arms up long enough, so I'm going to have to wait until my friend Kat can help me, and she's working at the moment...
    Homosexual, Unitarian, young, British, female, disabled. Do you need more?
    • Peanuckle
    • By Peanuckle 26th Jul 10, 1:15 PM
    • 470 Posts
    • 918 Thanks
    Peanuckle
    thanks guys, guess I'm just having one of those down days. Daughter spent last night with her boyfriends family after a party and she would normally help me with washing my hair to help me feel half human so tbh it hasn't seen a brush yet today.

    Think it's time for a lay down as I seem to be sniping at people on here instead of just reading a post and muttering about it before closing the window.

    *Peanuckle wanders off muttering about people using their brains instead of scaring folks and others who should stop seeing themselves as the centre of the universe (noone in here btw )
  • Careful with that Axe
    Peaknuckle. If things are difficult for you, bite the bullet and go to GP? Nothing will improve until you do? I totally understand how you may not be feeling up to it emotionally today, but sometime soon?

    No-one can MAKE you have a lumbar puncture. Perhaps if you mention that you're so scared because of previous bad experiences and you don't think it'll achieve much, they'll listen to you?

    I'm lucky that I have a fabulous GP but if you go, you may find you have one too?

    In the meantime, here's a cushion to sit on and a nice cup of tea and some choccie cake. Don't spill crumbs please.
    I must go, I have lives to ruin and hearts to break

    My attitude depends on my Latitude 49 55' 0" N 6 19' 60 W
    • Indie Kid
    • By Indie Kid 26th Jul 10, 2:27 PM
    • 21,629 Posts
    • 29,326 Thanks
    Indie Kid
    Off you go to the doctors SH
    Originally posted by Invasion
    *sighs* There are no appointments until next week. Tonight is going to be fun - I need to have a shower and I currently have the use of one arm.
    • Breast Cancer Survivor
    • By Breast Cancer Survivor 26th Jul 10, 8:17 PM
    • 10,055 Posts
    • 26,602 Thanks
    Breast Cancer Survivor
    *sighs* There are no appointments until next week. Tonight is going to be fun - I need to have a shower and I currently have the use of one arm.
    Originally posted by sh1305
    If you stand in the garden I could hose you down with the hosepipe.



    I need a shower/bath too but my problem isn't physical as in I can't do it but more mental as in I can't be bothered.

    I feel really embarrassed admitting that.
    I'd rather regret the things I've done than regret the things I haven't done.
    Lucille Ball
    • Indie Kid
    • By Indie Kid 26th Jul 10, 8:21 PM
    • 21,629 Posts
    • 29,326 Thanks
    Indie Kid
    If you stand in the garden I could hose you down with the hosepipe.

    Originally posted by Breast Cancer Survivor


    Well, I managed just to wash myself. Still a bit sore though.
    • Indie Kid
    • By Indie Kid 26th Jul 10, 10:19 PM
    • 21,629 Posts
    • 29,326 Thanks
    Indie Kid
    Has anyone here had a sports massage or similar?
    • Breast Cancer Survivor
    • By Breast Cancer Survivor 26th Jul 10, 10:38 PM
    • 10,055 Posts
    • 26,602 Thanks
    Breast Cancer Survivor
    I am so mad I could slap someone.

    I might get banned tonight so if I don't appear tomorrow I haven't topped myself as I wouldn't give any of them the satisfaction.
    I'd rather regret the things I've done than regret the things I haven't done.
    Lucille Ball
    • Jojo the Tightfisted
    • By Jojo the Tightfisted 26th Jul 10, 10:41 PM
    • 25,775 Posts
    • 106,298 Thanks
    Jojo the Tightfisted
    Has anyone here had a sports massage or similar?
    Originally posted by sh1305
    I found it irritating, but when The Bloke (who is in a very select group) has been allowed to touch my hands (only DD, him and the guitar tutor have been allowed anywhere near my mitts - DD to hold hands, The Bloke isn't allowed to hold my hand at all), he has massaged every single individual bone, which has felt really weird, he has managed to free off a nerve and given me some extra sensation in my hand that I haven't had for years!

    But it was a REALLY strange feeling having him massage my hands in the first place - kept wanting to pull them away, but forced myself to tolerate it.


    I did have a shiatsu massage of my shoulders once - it really, really hurt at first, but slept like a baby that night.
    I could dream to wide extremes, I could do or die: I could yawn and be withdrawn and watch the world go by.

    Yup you are officially Rock n Roll
    Originally posted by colinw
    • Indie Kid
    • By Indie Kid 26th Jul 10, 10:43 PM
    • 21,629 Posts
    • 29,326 Thanks
    Indie Kid
    Thanks Jojo. Having problems with my neck again and don't want physio on it again. Physio left me in so much pain I couldn't walk.
  • dmg24
    Thanks Jojo. Having problems with my neck again and don't want physio on it again. Physio left me in so much pain I couldn't walk.
    Originally posted by sh1305
    It would be worth trying another physio. My best friend (what is the abbreviation for best friend?) is a physio and whilst she may have to do things to push her patients, she would be mortified if she ever left anyone in pain, so there are certainly more considerate ones out there!

    I had a massage from a man the other day - I don't normally like men touching me for non personal reasons but in the end it was probably the best massage I've ever had!
    • summerof0763
    • By summerof0763 26th Jul 10, 11:06 PM
    • 812 Posts
    • 825 Thanks
    summerof0763
    hi,please can i join,need a sane group,that offers support.
    would not say no to a white coffee.
    i came into the world with nothing,and guess what? i still have it!!!
  • ash4becks
    hi,please can i join,need a sane group,that offers support.
    would not say no to a white coffee.
    Originally posted by summerof0763
    i dont think sane applys tonite but coffee i plenty of supply think you might want it very strong thou after tonight on the board
    • Indie Kid
    • By Indie Kid 26th Jul 10, 11:10 PM
    • 21,629 Posts
    • 29,326 Thanks
    Indie Kid
    It would be worth trying another physio. My best friend (what is the abbreviation for best friend?) is a physio and whilst she may have to do things to push her patients, she would be mortified if she ever left anyone in pain, so there are certainly more considerate ones out there!

    I had a massage from a man the other day - I don't normally like men touching me for non personal reasons but in the end it was probably the best massage I've ever had!
    Originally posted by dmg24
    Thanks. I will do. I wasn't too happy that after 2 sessions they said I was fine.

    I've just made the mistake of reading up my diagnosis on Google. (the muscles in my neck are tight)
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