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  • FIRST POST
    dane-katie
    Bipolar support thread
    • #1
    • 7th Sep 09, 2:14 PM
    Bipolar support thread 7th Sep 09 at 2:14 PM
    I thought it might be best to have our own little thread, this is for everyone who has been, thinks they might be or just wants to generally chat about Bipolar.

    I myself have just been diagnosed and have loads of unanswered questions, but think it would be nice for a support thread so we can all help each other and understand BP more.

    If anyone has any great links to post for good late night reading i would be greatful.

    Im sorry i cant add more i am at the beginning of my journey, but im sure there is people out there far more experienced than me

    Is a Bipolar bear

Page 1
  • archived user
    • #2
    • 7th Sep 09, 2:17 PM
    • #2
    • 7th Sep 09, 2:17 PM
    I don't actually suffer from Bi-Polar but just wanted to recommended a support site for those who do http://www.mdf.org.uk/

    Hope that's ok It was recommended by a friend of mine who does have BP
  • dane-katie
    • #3
    • 7th Sep 09, 2:18 PM
    • #3
    • 7th Sep 09, 2:18 PM
    Thanks ill go have a read now

    Is a Bipolar bear

  • lellie
    • #4
    • 7th Sep 09, 2:43 PM
    • #4
    • 7th Sep 09, 2:43 PM
    Hey.

    I was diagnosed in March following years of undiagnosed illness. Still not reached the land of stability. Currently in a depressive episode and struggling.

    This morning I took part in Cardiff University's Mood Disorder Research. I thought some of you who have been diagnosed as Bipolar may be interested in taking part. There's no benefit to yourself, but it's interesting and could help pave the way for more understanding and eventually better treatments for those of us with Bipolar Disorder. It's the same research that Stephen Fry took part in as part of his "The Secret Life..." documentary. You can find out more here: http://www.cardiff.ac.uk/medic/subsites/bipolar/studies/index.html

    Other useful sites: http://www.rethink.org, http://www.mind.org.uk and http://www.time-to-change.org.uk
  • dane-katie
    • #5
    • 7th Sep 09, 3:01 PM
    • #5
    • 7th Sep 09, 3:01 PM
    Thanks, i have give them a ring, they are passing my details on to someone in Birmingham as its a little closer and they will get someone to ring me just hope im doing ok when they ring.

    Is a Bipolar bear

  • lellie
    • #6
    • 7th Sep 09, 10:20 PM
    • #6
    • 7th Sep 09, 10:20 PM
    Thanks, i have give them a ring, they are passing my details on to someone in Birmingham as its a little closer and they will get someone to ring me just hope im doing ok when they ring.
    Originally posted by dane-katie
    Yeah, I had someone from Birmingham interview me too. Good luck with it.
  • dane-katie
    • #7
    • 8th Sep 09, 12:40 PM
    • #7
    • 8th Sep 09, 12:40 PM
    Thanks i have it booked in, just a little worried about the blood test she wants to take, what is that for? i hope she is a nurse otherwise i wont let her do it.

    Is a Bipolar bear

  • dane-katie
    • #8
    • 8th Sep 09, 2:32 PM
    • #8
    • 8th Sep 09, 2:32 PM
    Been in touch with MDF bipolar organisation, they dont have a self help group within easy distance of me, they have one in Sheffield but im not too keen on travelling there by public transport. They are trying to organise a meeting in Rotherham but are now 1 volunteer short, is there anyone out there who would be willing to volunteer to get this group going? please pm me if you can x

    Is a Bipolar bear

  • lellie
    • #9
    • 8th Sep 09, 3:09 PM
    • #9
    • 8th Sep 09, 3:09 PM
    Thanks i have it booked in, just a little worried about the blood test she wants to take, what is that for? i hope she is a nurse otherwise i wont let her do it.
    Originally posted by dane-katie
    She isn't a nurse, but is trained to take blood. They need the blood so they can analyse it for genetic research. They are trying to find out if there is a specific gene or set of genes that cause Bipolar Disorder.

    If you don't want her to do it she may give you a blood pack which you take to your GP/practice nurse and they can do the sample then send it off for you. I've got to do that because my veins are terrible. No one can ever get blood out of my arm - always my wrist or hand.
    • Bufger
    • By Bufger 8th Sep 09, 3:25 PM
    • 1,743 Posts
    • 3,132 Thanks
    Bufger
    I'm not sure if i have or not, i know i have some of the symptoms but i havent ever bought myself to get diagnosed as i think im coping alright. Plus i have a very good job and i wouldnt want anyone at work to know, even my bosses.

    I have the highest highs and the lowest lows. Sometimes i can see the good in everything and i get really happy about the littleist of things. I even tell my OH not to worry about insignificant things. I go from that to completely depressed, i have time on my own sitting in my room watching tv or playing on the xbox. I dont want to see anyone and i would be quite contempt with living on my own.

    I wasnt sure if it was autism at one point as i often concentrate on one thing and put all of my effort into it ignoring everything else (like a project with work or even making something at home). I go from one random hobby to the next!

    Its completely opposite and changes quite quickly. My OH often jokes that i must be bipolar which did lead me to think about it. I think whatever it is about me that does this does make me an interesting person. I have some really profound moments and i feel like i value life much more than people that just walk through it day by day.

    Maybe i'm bipolar and maybe im not. Still im quite happy with who i am and where im going in life at the moment.
  • dane-katie
    Hi Bufger glad your in a happy place with your life, mine got so bad it effected everything and everyone around me thats why i sought my GP's help and also the hospitals, if you find you have any questions feel free to ask im not as experienced as others but im sure we could answer your questions.

    Please though if it does start to effect your life dramatically speak to your gp

    Is a Bipolar bear

  • dmg24
    Hi guys,

    I am bipolar, got diagnosed approx eighteen months ago. I take Lithium which helps, but am currently going through a 'non compliant' stage, because the weight gain became too much to handle. So now I just have to handle the crazy moods instead (currently spending like there is no tomorrow)!

    dane-katie, I can recommend the book 'An Unquiet Mind' by Kay Redfield Jamison. The author is a psychiatrist who has bipolar herself. I must have read it three times now, it is one of those books that you learn more from each time (and depending on your mood!).

    If I had a car I would happily come up to Roth to help with the group, but at the moment am reliant on others for transport - don't think they'd be too happy if I offered!
  • starnight
    'non compliant' stage?

    I also have gained too much weight and hate it. I have also had 6 fillings in the past year (having only ever had one 10 yrs ago in my entire life). Aparently the meds are giving me a dry mouth and all i get told is chew more gum...which gives e a tummy ache so I can't.

    I'm trying to pluck up the courage to tell my team I'm not happy with what the meds have done so far, plus I never remember to take them...I've even tried setting my alarm, but I just forget!!! I know when I forget it takes a week or two to hit then my family notice before I do and I start taking them again...but I'm struggling to find the point in it if I have to keep going through it, and it seems unreasonable for me to ask my family to phone me every night.

    Hmmm yep well I'm rambling now. I was diagnosed approx. 18 months ago also and am on lithium and ADs
  • dmg24
    'non compliant' stage?

    I also have gained too much weight and hate it. I have also had 6 fillings in the past year (having only ever had one 10 yrs ago in my entire life). Aparently the meds are giving me a dry mouth and all i get told is chew more gum...which gives e a tummy ache so I can't.

    I'm trying to pluck up the courage to tell my team I'm not happy with what the meds have done so far, plus I never remember to take them...I've even tried setting my alarm, but I just forget!!! I know when I forget it takes a week or two to hit then my family notice before I do and I start taking them again...but I'm struggling to find the point in it if I have to keep going through it, and it seems unreasonable for me to ask my family to phone me every night.

    Hmmm yep well I'm rambling now. I was diagnosed approx. 18 months ago also and am on lithium and ADs
    Originally posted by starnight
    I like being called 'non compliant', shows I've still kept my naughty side!

    I have a little pill box (v trendy and says 'My Chill Pills' on it!), and at the beginning of the week I fill it up with my pills for a week. I don't tend to forget so much, but sometimes can't be bothered to sort them out each day, so the pill box helps. At the moment it only has my levothyroxine and antihistamine it it though!

    My psych and I have decided that AD's are not suitable for me, as I have not got on with them before. It was decided that I would take an anti convulsant (can't remember the name!) as well as the Lithium, but I'm holding off because it can cause some pretty serious problems in pregnancy, and I would like to get pregnant ... eventually!
  • starnight
    lolz

    I have a pill box also, though it provides no help in reminding me to take meds, just shows what days I have forgotten!!! I'm still setting the alarm everday, it is so far the most effective method, though not very.
  • skipsmum
    The pharmacist blister packs mine for me with the day and time so they are all separate. I have 5 different things and 4 times of day and I was getting really confused. Boots will do this for you. DH sets my phone alarms for me as well.
    With Sparkles! And Shiny Things!

    • purplecatlover
    • By purplecatlover 8th Sep 09, 8:37 PM
    • 6,572 Posts
    • 77,789 Thanks
    purplecatlover
    my morning pills live on the counter beside my kettle so it is impossible to fail to see them which helps with remembering, only if i take them immediately i see them though. night pills live with cat treats in my bedside drawer, cats ask for treats so i cant miss my pills when sorting the cats out.
  • dmg24
    my morning pills live on the counter beside my kettle so it is impossible to fail to see them which helps with remembering, only if i take them immediately i see them though. night pills live with cat treats in my bedside drawer, cats ask for treats so i cant miss my pills when sorting the cats out.
    Originally posted by purplecatlover
    Someone else that relies on their cat to remind them! I take all of mine at night, and take them at the same time that I top up Moo's bowls of food (he has two - one in the kitchen and one in my bedroom!).

    I keep my pill box very much 'on display', as it helps me remember. If anybody comes round and feels uncomfortable about it, I figure that is their problem?

    On that note (and several hours too late) ... I'm off to take some pills!
  • lellie
    My psych and I have decided that AD's are not suitable for me, as I have not got on with them before. It was decided that I would take an anti convulsant (can't remember the name!) as well as the Lithium, but I'm holding off because it can cause some pretty serious problems in pregnancy, and I would like to get pregnant ... eventually!
    Originally posted by dmg24
    ADs are no good for me either. Too many bad experiences to count.

    I'm guessing the anti convulsant may be lamotrigine mentioning the pregnancy problems. It's okay as long as you come off it as soon as you know.
  • dmg24
    ADs are no good for me either. Too many bad experiences to count.

    I'm guessing the anti convulsant may be lamotrigine mentioning the pregnancy problems. It's okay as long as you come off it as soon as you know.
    Originally posted by lellie
    Yep, that's the one! My psych is concerned that because my periods are so random (just like the rest of me!), I may not realise for a while, and so any potential damage could be done. It's a shame, because there has been research in the US that points to it helping with the weight management problem too!

    asbokid, I'm sure you are trying to be helpful, but this thread is for support, not suggesting that people come off their meds. Your research has nothing to do with bipolar, and suggesting that people modify their diet rather than taking medication is very dangerous.
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