Disability Forums
Comments
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http://www.pituitary.org.uk/
The pituitary foundation.
A great source of information and support for pituitary patients, carers and GPs.0 -
https://www.stars.org.uk
syncope trust and reflex anoxic seizures, provides support and information for people with unexplained blackouts and those with a diagnosis of any type or syncope or RAS0 -
Here's my two-penneth for anything renal related....
http://www.britishrenal.org/
http://www.thetransplanttrust.org.uk/
http://www.kidneypatientguide.org.uk/site/contents.php
http://www.kidneyresearchuk.org/
http://www.livelifethengivelife.co.uk/index.php
http://www.kidney.org/patients/
http://www.uktransplant.org.uk/ukt/
http://www.britishkidney-pa.co.uk/
http://www.transplantsupportnetwork.org.uk/about.htm
http://www.transplantbuddies.org/
Hope this helps anyone....forums on most, help and useful advice on all......0 -
Can I suggest East Sussex Disability Association gets added to the list?
Our address is www.esda.org.uk:: No unapproved links in signatures please - MSE Forum Team ::0 -
Hiya Foxy
I've another http://www.islandoffog.org/forum/index.php for grown-ups only with ME; there are lots of forums for everyone with ME; this one excludes children; simply so that "we" I help run it can talk like grown-ups about being disabled; be honest about grown-up things
We are very small we actually like it that way there are other larger ME forums
Brainfog http://www.brainfog.org/phpBB2/index.
Foggy Friends http://www.foggyfriends.org/forum/0 -
Does anyone know of a forum to exchange knowledge about travelling by air with a disability? For example, facilities at airports (Heathrow T5 and Copenhagen in particular). Any experiences on the plane for those of limited mobility. Coping with luggage and so on.
I would be grateful for any pointers.0 -
Babshubbie wrote: »Does anyone know of a forum to exchange knowledge about travelling by air with a disability? For example, facilities at airports (Heathrow T5 and Copenhagen in particular). Any experiences on the plane for those of limited mobility. Coping with luggage and so on.
I would be grateful for any pointers.
When I've travelled by air; I've checked prices etc online; then just before I've booked I've phoned the company and double checked with them; I manage at home and in the very very small town I live in, not to need a wheel chair; but I do need one in busy places; i.e. Cities and Airports; they've always been brilliant; I check-in, usually with a friend; they sort my luggage; get me a chair and a "pusher" and at the other end I'm met with a pusher and luggage carrier; until I get handed over to who-ever is picking me up. I get put onto the plane 1st, usually off last; but I've never been made to feel as if I'm trouble0 -
http://www.rnib.org.uk/messageboard/
I couldn't see it listed so I have posted liink to RNIB forums.GC 2011 Feb £626.89/£450 NSD3/7 March £531.26/£450 April £495.99/£500 NSD 0/7 May £502.79/£500
June £511.99/£480 July £311.56/£4800 -
Millburn_farm wrote: »When I've travelled by air; I've checked prices etc online; then just before I've booked I've phoned the company and double checked with them; I manage at home and in the very very small town I live in, not to need a wheel chair; but I do need one in busy places; i.e. Cities and Airports; they've always been brilliant; I check-in, usually with a friend; they sort my luggage; get me a chair and a "pusher" and at the other end I'm met with a pusher and luggage carrier; until I get handed over to who-ever is picking me up. I get put onto the plane 1st, usually off last; but I've never been made to feel as if I'm trouble
That is very useful. I plan to take my wife to Copenhagen. She cannot walk unaided but with my help she can walk slowly about 25 yards. We have a light fold-up wheelchair and my plan is to be driven to Heathrow and get the driver to help with our two cases while I push the wheelchair to check-in. I hope BA ( or BAA) will then take over and help us to the gate and then the aircraft, the cases having been checked in. I then expect to be helped to our seats and the wheelchair taken off us to be returned in Copenhagen where I trust there will be help to baggage reclaim and on to a pre-arranged car. The same in reverse on return.
I shall prearrange as much as I can, but I value hearing of your experience. I suppose I am nervous as it will be the first time we have been away since my wife's accident two years ago. In any event I should add we are elderly. I am 82 and not as able to lug cases around as I used to be. I believe Denmark is user friendly regarding disabilities.
Thank you, Millburn farm for your help.0 -
Millburn_farm wrote: »Hiya Foxy
I've another http://www.islandoffog.org/forum/index.php for grown-ups only with ME; there are lots of forums for everyone with ME; this one excludes children; simply so that "we" I help run it can talk like grown-ups about being disabled; be honest about grown-up things
We are very small we actually like it that way there are other larger ME forums
Brainfog http://www.brainfog.org/phpBB2/index.
Foggy Friends http://www.foggyfriends.org/forum/
Thanks for the links Millburn xxx:T
(The brainfog one does not seem to be working):smileyheaMagenta0
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