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  • FIRST POST
    • soolin
    • By soolin 2nd Feb 09, 5:27 PM
    • 63,141Posts
    • 45,580Thanks
    soolin
    Fibromyalgia (part 2)
    • #1
    • 2nd Feb 09, 5:27 PM
    Fibromyalgia (part 2) 2nd Feb 09 at 5:27 PM
    Starting a fresh thread as promised.

    Thank you
    I'm the Board Guide for the Ebay Board , Charities Board , Dosh & Disability , Up Your Income and the Local MoneySaving-England board which means I volunteer to help get your forum questions answered and keep the forum running smoothly. However, do remember, board guides don't read every post. If you spot an illegal or inappropriate post then please report it to forumteam@moneysavingexpert.com (it's not part of my role to deal with this). Any views are mine and not the official line of MoneySavingExpert.com
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Page 202
    • Paparika
    • By Paparika 19th Aug 09, 9:41 PM
    • 2,390 Posts
    • 2,352 Thanks
    Paparika
    Hiya everyone, i hope your all behaving...

    sorry not been on for a while, kinda had a few down self pity days and have just spent all last week in France with my parents, (came back yesterday).

    The weather was perfect, we even saw the shooting stars to nights running, just in time for my parents wedding anniversary,

    And omg what a surprise to find this morning checking my bank, dla have awarded me, higer mobility and middle carers i can't believe it, i was so chuffed, all they wanted was a report from my gp, no medical needed, i was worried they would say no after all the scarey stuff i have read on here with us fibro sufferers.

    my consultant rang me just before i went away to confirm that they cannot rule out ms now :confused: so will see him in a matter of weeks and his partner wants to see me too :confused:.

    all in all a bit up and a bit down, but today was a good day, dla wise and getting my lovely perry the pup back from boarding kennels and who is presently on my lap sulking for leaving him for a week.
    Life is about give and take, if you can't give why should you take?
    • purplecatlover
    • By purplecatlover 20th Aug 09, 5:34 AM
    • 6,585 Posts
    • 78,317 Thanks
    purplecatlover
    morning all

    pap sounds like france was a nice break, and thats great news about the dla.

    sue how are you this morning?

    kass how was pilates?
    • black paw
    • By black paw 20th Aug 09, 11:51 AM
    • 1,775 Posts
    • 1,147 Thanks
    black paw
    wow
    Hiya everyone, i hope your all behaving...

    sorry not been on for a while, kinda had a few down self pity days and have just spent all last week in France with my parents, (came back yesterday).

    The weather was perfect, we even saw the shooting stars to nights running, just in time for my parents wedding anniversary,

    And omg what a surprise to find this morning checking my bank, dla have awarded me, higer mobility and middle carers i can't believe it, i was so chuffed, all they wanted was a report from my gp, no medical needed, i was worried they would say no after all the scarey stuff i have read on here with us fibro sufferers.

    my consultant rang me just before i went away to confirm that they cannot rule out ms now :confused: so will see him in a matter of weeks and his partner wants to see me too :confused:.

    all in all a bit up and a bit down, but today was a good day, dla wise and getting my lovely perry the pup back from boarding kennels and who is presently on my lap sulking for leaving him for a week.
    Originally posted by Paparika
    wonderfull news with DLA it does make a different in helping out with the day to day life.
    Glad you had nice holiday .. am trying to save up for short 3-4 days break in the uk lots offers on on the coach deals seen 5 days for 145 b/b and evening meal and 2 outings in norfolk . is just getting round to book it. may leave to last min for more money off.
    love and kisses to perry pup
    the truth is out there ... on these pages !!
    Last night I lay in bed looking up at the stars in the sky and I thought to myself, where the heck is the ceiling.
    • LameWolf
    • By LameWolf 20th Aug 09, 11:54 AM
    • 10,977 Posts
    • 120,638 Thanks
    LameWolf
    Sue OMG your poor head! I was going to mention the possibility of concussion, but Auntie Axe beat me to it. You will promise to take it easy, won't you? And if you still feel queasy, PLEASE get yourself checked over.
    Doc gave me some "hormone" tablets a while back (just realised, it's at least a couple of years ago!!), and they turned me into a veritable fire-breathing dragon. So I told her I'd rather put up with the ...er... "irregularity" iykwim rather than put Mr LW through that. Might be different tablets from the ones you've got, also even if same, you might get on better with them than I did. Best of luck, in any case.

    Paparika nice to see you back. I hope your week in France has done you good. Great news on your DLA. I wish you all the best for your appt with the consultant. And please give Perry Puppy a cuddle for me.

    Pcl the delivery men assembled the bed for us and took the old one away, all we had to do was put the bed linen on, which took about 10 mins. It's lovely and comfortable, and has now been thoroughly tested.

    BZ any luck on the underwear front yet? Ooh, that was an unfortunate way of putting it, wasn't it? LOL

    to everyone else; hope you're all having a pain-free and stress-free day.
    LameWolf
    If your dog thinks you're the best, don't seek a second opinion.
    • black paw
    • By black paw 20th Aug 09, 11:57 AM
    • 1,775 Posts
    • 1,147 Thanks
    black paw
    sue You poor love! Please do take it easy for a day or two at least. If you still feel sicky, it's not beyond the realms of possibility that you have a concussion.
    Will you promise me to make sure that DH keeps an eye on you tonight please?Lots of hugs.
    Originally posted by Careful with that Axe
    i agree with cwta you can get concussion .. take care and stay in and rest for day or so , and report to doctor if get worse.
    the truth is out there ... on these pages !!
    Last night I lay in bed looking up at the stars in the sky and I thought to myself, where the heck is the ceiling.
  • kassandra
    I didn't go pcl. Was quite relieved actually as I was in quite a lot of pain but there was no way I was going to back out. My friend wasn't feeling up to it so we're going tomorrow afternoon instead. There's also one on a Monday morning but I'm not really friends with mornings so I think I'll leave it to Tuesday nights and Friday aft's.

    That's great news pap, I'm thinking about claiming again now that I've been seen by rheumy and they've confirmed fibro and extreme hypermobility. I've been referred for physio and to fibro clinic too so it should all go toward proving I'm not making it up! I'm glad you didn't struggle.
  • kassandra
    Hope you're feeling ok today suep xxxx
    • bigzippy
    • By bigzippy 20th Aug 09, 1:55 PM
    • 4,033 Posts
    • 15,643 Thanks
    bigzippy
    That's good news about !!!B bz. Bet she was cacking herself about not finding one in time. I might start my own underwear range for fibromites/lupines/chronic pain sufferers! Is your dress strapless/off the shoulder bz?
    Originally posted by kassandra
    Sounds like a wonderous idea dude! My dress is currently strapless, but I'm getting them to put straps on it. You've seen the pics, right?
    It's still not in the shop...I saw the assistant manager in the shop on tues and she promised me she was chasing it. She rang today to say it's on it's way...we'll see.:rolleyes:

    Take it easy BZ, as long as you can just wave at us from time to time, don't stress about replying to everything.
    Sulk? You? I didn't have you pegged as a Bridezilla.
    Originally posted by LameWolf
    Cheers dude. I'm actually managing to keep Bridezilla at bay atm...I think because I know that it's no fun for ppl around you if you turn into one, and cos it would negatively affect my health if I was stressed all the time...
    I was sulking tho...I hate underwear shopping, and I hate that the illness has made me fat as well as pained, so even when I find one that "fits" it's pretty much gauranteed that it's either minging or really uncomfortable...or both o' course:rolleyes: I had a bit of a sulky paddy about it the other night, having spent about 1.5hrs in Bravissimo trying to find something
    "I am indelibly stained by hope and longing" - Nuts in May
    • bigzippy
    • By bigzippy 20th Aug 09, 2:02 PM
    • 4,033 Posts
    • 15,643 Thanks
    bigzippy
    And omg what a surprise to find this morning checking my bank, dla have awarded me, higer mobility and middle carers i can't believe it, i was so chuffed, all they wanted was a report from my gp, no medical needed, i was worried they would say no after all the scarey stuff i have read on here with us fibro sufferers.
    Originally posted by Paparika
    Well in dude!

    Pcl the delivery men assembled the bed for us and took the old one away, all we had to do was put the bed linen on, which took about 10 mins. It's lovely and comfortable, and has now been thoroughly tested.

    BZ any luck on the underwear front yet? Ooh, that was an unfortunate way of putting it, wasn't it? LOL
    Originally posted by LameWolf
    No need!!

    I've been referred for physio and to fibro clinic too so it should all go toward proving I'm not making it up!
    Originally posted by kassandra
    Ummm...."fibro clinic"?!? What's one of them?!:confused:
    "I am indelibly stained by hope and longing" - Nuts in May
    • purplecatlover
    • By purplecatlover 20th Aug 09, 2:10 PM
    • 6,585 Posts
    • 78,317 Thanks
    purplecatlover
    i saw a beautiful cat at the vets today...it was apparently a breed called ragdoll. such lovely eyes. had siamese colouring but long fur. i want!

    kass enjoy the pilates today instead
    • LameWolf
    • By LameWolf 20th Aug 09, 2:58 PM
    • 10,977 Posts
    • 120,638 Thanks
    LameWolf
    i saw a beautiful cat at the vets today...it was apparently a breed called ragdoll. such lovely eyes. had siamese colouring but long fur. i want!
    Originally posted by purplecatlover
    I think Whitney and Chloe might have something to say about that.
    LameWolf
    If your dog thinks you're the best, don't seek a second opinion.
    • purplecatlover
    • By purplecatlover 20th Aug 09, 3:27 PM
    • 6,585 Posts
    • 78,317 Thanks
    purplecatlover
    I think Whitney and Chloe might have something to say about that.
    Originally posted by LameWolf
    indeed they would although whitney wouldnt care too much so long as it left her alone lol
  • Trialia
    i saw a beautiful cat at the vets today...it was apparently a breed called ragdoll. such lovely eyes. had siamese colouring but long fur. i want!
    Originally posted by purplecatlover
    Ragdoll cats are adorable. They really are like rag dolls- pick one up and sie will flop all over you in whatever position, they don't care. It's so cute. <3
    Homosexual, Unitarian, young, British, female, disabled. Do you need more?
  • suep
    Thanks for caring everyone not much chance of dh keeping an eye on me, he's not even talking to me at the moment, I dont know what im supposed to have done this time, but Im seriously getting peee'd off with him atm. Also I didn't get a chance to rest today as I had gd, but didnt pick her up until 3 then as she kept going on about fish I put Finding Nemo on for her and she loved it, for the first 10 mins then fell asleep so it was an easier afternoon than normal. I feel ok, but my heads still sore and the lumps still there. Im staying home tomorrow and resting as Im in quite a bit of pain, hope the bump and fall hasn't set off a flare.

    PAPRIKA well done with the DLA, it's good to hear that some people are still getting it.

    PCL Ive seen ragdoll cats before, they are beautiful aren't they, but I think your two wouldn't agree.

    I got a text from Unity today, the hotels wonderful, so hopefully she will take it easy and come back feeling better.

    CWTA when are you home ?
    Real stupidity beats artificial intelligence every time.
    Terry Pratchett ( Hogfather)
  • kassandra
    Ummm...."fibro clinic"?!? What's one of them?!:confused:
    Originally posted by bigzippy
    I don't know to be honest, I'm quite intrigued cos my gp didn't know either!

    i saw a beautiful cat at the vets today...it was apparently a breed called ragdoll. such lovely eyes. had siamese colouring but long fur. i want!

    kass enjoy the pilates today instead
    Originally posted by purplecatlover
    It's tomorrow

    Ragdolls are gorgeous aren't they! I want a bengal but I have morals that state I can't have a breed grrrr bloody morals. I thought about searching rescue centres to find one but would end up with loads of cats. Think I'll wait until the youngest are a little older and get an ex queen cos they don't want them once they can't breed them anymore. There's quite a few breeds on our street that are just let out to wander which is nice cos you don't normally see that do you. They're usually kept in the house. There's a bengal (might be cross) a ragdoll and is it a siamese? The really thin ones that are a sort of cream and grey/blue?

    Anyhoo, I'm off. Glad you're ok suep, if you want me to beat your dh into submission just give me a shout. Actually, best not, that may be why none of my relationships work out
  • Trialia
    What's "fibro clinic"?

    I don't know to be honest, I'm quite intrigued cos my gp didn't know either!
    Originally posted by kassandra
    by bigzippy
    Fibro-specific hospital outpatient clinic. They exist, but there are less than half a dozen. There's a petition up at the Number 10 website to get more.
    Homosexual, Unitarian, young, British, female, disabled. Do you need more?
    • bigzippy
    • By bigzippy 21st Aug 09, 2:06 AM
    • 4,033 Posts
    • 15,643 Thanks
    bigzippy
    I don't know to be honest, I'm quite intrigued cos my gp didn't know either!
    Originally posted by kassandra
    Sounds about right! You'll have to fill us in kass!

    I'll try and keep this short and sweet, as i'm doin it from my phone again, in bed whilst DF is wakin himself up with his own snoring... :rolleyes: then snuggles up to me in his sleep, hogging yet more of the bed! Typical man.

    Got my nephew here today, which is why i've not been on much today- that and being wiped out as tho i have an infection -and i'm takin him for his suit fitting tomorrow. Should be fun... :rolleyes:
    "I am indelibly stained by hope and longing" - Nuts in May
  • kassandra
    Aaaaaaww how sweet is DF!!!!!!!

    I'm off to try and catch an hours sleep before the kids wake me up at some ridiculous hour wanting to play out!!
    • purplecatlover
    • By purplecatlover 21st Aug 09, 7:25 AM
    • 6,585 Posts
    • 78,317 Thanks
    purplecatlover
    bz hope you managed some sleep despite df being sweet and cuddling. hope you dont have an infection starting, you really dont need another one, though if you have to ahve another one before the wedding i guess now is better than in two weeks time.

    kass yup the siamese are the really thin ones, creamy white with black pointing i think its called on thier face and short hair. my aunt used to breed them. hope the kids didnt get you up too early, or they let you go back for a nap this morning. hows charlie these days?
    enjoy the pilates today

    sue i hope your feeling better today, and dh stops sulking.

    tria i had a friend who had a cat who did that, the most sweetest lovely natured cat i have ever met, i wonder if she was a ragdoll.
  • suep
    Morning all, more hassle at home, ds1 came round to stay last night after another row with his girlfriend, he's gon back today to get the rest of his stuff but Im hoping they will sort things out again. I just feel sorry for my dg as this is happening almost every other week lately. Families
    Real stupidity beats artificial intelligence every time.
    Terry Pratchett ( Hogfather)
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