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    • meltler
    • By meltler 6th Oct 19, 2:19 PM
    • 12Posts
    • 0Thanks
    meltler
    Deleting or changing medical records
    • #1
    • 6th Oct 19, 2:19 PM
    Deleting or changing medical records 6th Oct 19 at 2:19 PM
    Has anyone ever managed to get any information removed or changed from their medical record? i have never actually heard of a case where this has happened but i still am interested in trying.

    I recently got a copy of my medical record for the past 10 years and i am not happy at what i have seen.

    For my situation, i attended some psychotherapy appointments around 8 years ago because i was going through a difficult time with some OCD. At the time i was told that this information would not get put on my medical record if i didn't want it to be and i chose not to. The information is also not completely correct, i was misunderstood by the adviser.

    I also understand that medical records can be helpful in future situations, but in this instance it will not help at all and i personally think that anyone who reads it will just get confused.

    I may write to my GP, or is there a better way to go about this?
Page 1
    • Chapter24
    • By Chapter24 6th Oct 19, 2:39 PM
    • 44 Posts
    • 42 Thanks
    Chapter24
    • #2
    • 6th Oct 19, 2:39 PM
    • #2
    • 6th Oct 19, 2:39 PM
    Yes write to your GP in the first instance.


    I've got a somewhat similar issue, except that I am the one who is mentioned on someone else's medical records (as their carer) and I have my suspicions they have written stuff about me that is inaccurate or just plain wrong. But because it's someone else's records, and that 'someone else' is only allowed to access them at the hospital with a member of staff there looking over their shoulder while they do so, there's sod all I can do about it, it seems


    Basically, your NHS file is a government record, it belongs to them, not you, and what's on it doesn't get changed or altered. That's why it pays to be a little bit careful what you say to medics.. sorry to sound negative but that's the way things are run in this country!
    • Undervalued
    • By Undervalued 6th Oct 19, 4:58 PM
    • 4,414 Posts
    • 3,832 Thanks
    Undervalued
    • #3
    • 6th Oct 19, 4:58 PM
    • #3
    • 6th Oct 19, 4:58 PM
    Has anyone ever managed to get any information removed or changed from their medical record? i have never actually heard of a case where this has happened but i still am interested in trying.

    I recently got a copy of my medical record for the past 10 years and i am not happy at what i have seen.

    For my situation, i attended some psychotherapy appointments around 8 years ago because i was going through a difficult time with some OCD. At the time i was told that this information would not get put on my medical record if i didn't want it to be and i chose not to. The information is also not completely correct, i was misunderstood by the adviser.

    I also understand that medical records can be helpful in future situations, but in this instance it will not help at all and i personally think that anyone who reads it will just get confused.

    I may write to my GP, or is there a better way to go about this?
    Originally posted by meltler
    Remember the record records what the doctor / medical professional thought at the time, be that right or wrong!

    Subsequent investigation may lead to a different diagnosis. Or, in certain circumstances, the record may help to show that the medic was negligent or incompetent. If that happened and you wanted to make a claim then you would be glad that the record could not easily be deleted!

    As I mentioned in your other recent thread, unless you and the doctor can agree to change the record your only option generally is to ask for a statement of your views to be added alongside the disputed record.
    • meltler
    • By meltler 6th Oct 19, 5:05 PM
    • 12 Posts
    • 0 Thanks
    meltler
    • #4
    • 6th Oct 19, 5:05 PM
    • #4
    • 6th Oct 19, 5:05 PM
    Thank you Undervalued for your help.
    • theoretica
    • By theoretica 6th Oct 19, 8:40 PM
    • 6,060 Posts
    • 7,514 Thanks
    theoretica
    • #5
    • 6th Oct 19, 8:40 PM
    • #5
    • 6th Oct 19, 8:40 PM
    The medical system is so busy nowadays that I imagine few records from eight years ago ever get read.
    But a banker, engaged at enormous expense,
    Had the whole of their cash in his care.
    Lewis Carroll
    • dekaspace
    • By dekaspace 6th Oct 19, 11:33 PM
    • 5,156 Posts
    • 4,895 Thanks
    dekaspace
    • #6
    • 6th Oct 19, 11:33 PM
    • #6
    • 6th Oct 19, 11:33 PM
    Based on what happened to a relative, I wouldn't trust information to not be used against you. In this case it was that when they were a child they jumped off a slide in the days before there was that foam/rubber and it was just concrete and broke their leg. The doctor at the time put it down as suspected child abuse by the father who at the time was working 40 miles away! This information was used against the family when a custody hearing came up for his child(I mean the one who by now was grown up and had child of his own) as a risk!!!


    So anything can be used right or wrong.
    • meltler
    • By meltler 7th Oct 19, 5:06 PM
    • 12 Posts
    • 0 Thanks
    meltler
    • #7
    • 7th Oct 19, 5:06 PM
    • #7
    • 7th Oct 19, 5:06 PM
    Based on what happened to a relative, I wouldn't trust information to not be used against you. In this case it was that when they were a child they jumped off a slide in the days before there was that foam/rubber and it was just concrete and broke their leg. The doctor at the time put it down as suspected child abuse by the father who at the time was working 40 miles away! This information was used against the family when a custody hearing came up for his child(I mean the one who by now was grown up and had child of his own) as a risk!!!


    So anything can be used right or wrong.
    Originally posted by dekaspace
    This is what i mean, you may think that no one gives a damn but sometime in future it could affect you in some way. I have had staff reading my record before seeing me and then behaving differently, whereas before the information it was on my record they didn't even remember me! and i've been visiting the surgery for decades.
    • Undervalued
    • By Undervalued 8th Oct 19, 10:50 AM
    • 4,414 Posts
    • 3,832 Thanks
    Undervalued
    • #8
    • 8th Oct 19, 10:50 AM
    • #8
    • 8th Oct 19, 10:50 AM
    This is what i mean, you may think that no one gives a damn but sometime in future it could affect you in some way. I have had staff reading my record before seeing me and then behaving differently, whereas before the information it was on my record they didn't even remember me! and i've been visiting the surgery for decades.
    Originally posted by meltler
    That, to be fair, is normal and to be expected. If you think how many patients a GP has on the books then realistically the only way they can appear to "know" you and be your local friendly doctor is to have something to remind them. The patient tends to think the GP will somehow remember every detail of a 10 min consultation several weeks ago despite having seen literally hundreds of patients since!

    Getting past history from the patient, if there were no records, will take far longer than looking at the brief notes on the system.

    Yes, I fully understand and share your concern if there is something wrong on the system which is likely to prejudice the doctor's approach. It can be extremely difficult to get that changed. Ultimately who decides? If the patient is of one opinion but the doctor takes a different view then how should that be resolved?

    One (expensive) solution is to see a GP privately (c. 100 for 30 mins). They won't have access to your NHS record so will be starting with a clean sheet of paper and basing everything on what you tell them and the result of any new tests they conduct.
    • suki1964
    • By suki1964 9th Oct 19, 1:08 PM
    • 12,318 Posts
    • 32,865 Thanks
    suki1964
    • #9
    • 9th Oct 19, 1:08 PM
    • #9
    • 9th Oct 19, 1:08 PM
    Whatever you revealed in your therapy sessions will have an impact on how you are treated, of course it will

    I have a long history of Alcoholism, I managed to conceal it for years from my GP and even my psychiatrist - I was diagnosed as borderline personality disorder and treated accordingly. Totally the wrong diagnoses, wrong treatment, so it allowed me to carry on boozing till I near enough ended up dead - seriously ill, in liver failure, enlarged heart etc etc etc

    Roll on 20 years and the Alcohol dependency is still very pertinent to anything wrong with me today. Yes its a pain in the arris when the first thing Im asked is how much am I drinking at the moment , but if Im not honest, so that they know what they are looking for, how can I expect to receive the correct diagnoses and treatment?

    If what has been written is onerous, then do go back and discuss it and ask for its removal or get a statement added. But if in fact its correct , why would you want to?
    if you lend someone 20 and never see that person again, it was probably worth it
    • kirtondm
    • By kirtondm 9th Oct 19, 3:37 PM
    • 274 Posts
    • 194 Thanks
    kirtondm
    Unless the information recorded is wrong you have no right to have it changed / deleted.
    • meltler
    • By meltler 9th Oct 19, 5:51 PM
    • 12 Posts
    • 0 Thanks
    meltler
    Unless the information recorded is wrong you have no right to have it changed / deleted.
    Originally posted by kirtondm
    And if i were to say it's wrong would that even mean anything? i'm assuming only the person who recorded it can change/delete it and the chances of that happening are very unlikely. I guess i have learned my lesson and will be cautious in future!
    • suki1964
    • By suki1964 9th Oct 19, 6:01 PM
    • 12,318 Posts
    • 32,865 Thanks
    suki1964
    And if i were to say it's wrong would that even mean anything? i'm assuming only the person who recorded it can change/delete it and the chances of that happening are very unlikely. I guess i have learned my lesson and will be cautious in future!
    Originally posted by meltler
    Hiding details in therapy isn't helpful at all. You need to be honest to get the best from treatment
    if you lend someone 20 and never see that person again, it was probably worth it
    • meltler
    • By meltler 9th Oct 19, 6:06 PM
    • 12 Posts
    • 0 Thanks
    meltler
    Hiding details in therapy isn't helpful at all. You need to be honest to get the best from treatment
    Originally posted by suki1964
    Oh so i hid details during therapy back then?

    Mods please close this thread, nothing else left to be said/
    • suki1964
    • By suki1964 9th Oct 19, 9:08 PM
    • 12,318 Posts
    • 32,865 Thanks
    suki1964
    Oh so i hid details during therapy back then?

    Mods please close this thread, nothing else left to be said/
    Originally posted by meltler
    I never said you did?????

    I don't know why you are getting snippy with me, Ive not been at all rude to you and have even offered up my own experience to try to help you

    Still, I guess they weren't the answers you wanted
    if you lend someone 20 and never see that person again, it was probably worth it
    • meltler
    • By meltler 11th Oct 19, 5:21 PM
    • 12 Posts
    • 0 Thanks
    meltler
    I never said you did?????

    I don't know why you are getting snippy with me, Ive not been at all rude to you and have even offered up my own experience to try to help you

    Still, I guess they weren't the answers you wanted
    Originally posted by suki1964
    It's just the way you worded it made it sound like you were saying that.

    Never mind, apologies if i caused any upset.
    • Murphybear
    • By Murphybear 20th Oct 19, 8:34 AM
    • 5,044 Posts
    • 9,504 Thanks
    Murphybear
    Have you checked to see if your psychotherapy treatments/appointments are kept separately.

    I had a gynaecological problem a couple of years ago and on the follow up outpatients appointment was told they held separate records for gynae.

    Given the sensitive nature of mental health issues I am wondering if they do the same, it’s worth checking.
    • Undervalued
    • By Undervalued 21st Oct 19, 1:50 PM
    • 4,414 Posts
    • 3,832 Thanks
    Undervalued
    Have you checked to see if your psychotherapy treatments/appointments are kept separately.

    I had a gynaecological problem a couple of years ago and on the follow up outpatients appointment was told they held separate records for gynae.

    Given the sensitive nature of mental health issues I am wondering if they do the same, it’s worth checking.
    Originally posted by Murphybear
    Interesting but if so, where do they draw the line?

    Many medical problems are embarrassing to the patient, and some people are far more bothered than others.

    Are men's problems more or less embarrassing than women's?

    Are mental health issues more embarrassing than urological ones?
    • suki1964
    • By suki1964 21st Oct 19, 4:08 PM
    • 12,318 Posts
    • 32,865 Thanks
    suki1964
    Interesting but if so, where do they draw the line?

    Many medical problems are embarrassing to the patient, and some people are far more bothered than others.

    Are men's problems more or less embarrassing than women's?

    Are mental health issues more embarrassing than urological ones?
    Originally posted by Undervalued

    When I worked in the NHS, Mental health and Obs & Gynae notes were kept in their departments, until the patient was discharged when they were sent to record to be amalgamated
    if you lend someone 20 and never see that person again, it was probably worth it
    • speedfreek1000
    • By speedfreek1000 22nd Oct 19, 8:47 AM
    • 346 Posts
    • 267 Thanks
    speedfreek1000
    You can not get anything deleted as once it exists it exists. That's basically what it says in the NHS guide to your medical records

    You can ask for a covering note/letter to be placed on the report that gives your version of things.

    You can also influence information flow via official complaint.

    All reports/outcomes from a hospital or specialist or other appointment should be (unless there's a safeguarding issue) sent both to yourself and your GP practice.

    Things get missed out or lost in translation and giving your version can often be the only way to stop dangerous narratives snowballing.
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