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  • FIRST POST
    • pollyanna 26
    • By pollyanna 26 11th Sep 16, 8:56 PM
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    pollyanna 26
    OS ways and Poor Health
    • #1
    • 11th Sep 16, 8:56 PM
    OS ways and Poor Health 11th Sep 16 at 8:56 PM
    Earlier today I joined a very good new thread on getting back to old style ways . I managed to take it in another direction by mentioning how ill health can impact on doing everything the old style way . As this was off topic to the original post . I will be posting on the original topic but without going off in another direction
    This seems to happen a lot of the time across the threads as many old stylers do have to cope with this problem .
    Many moons ago PREPARE AT HOME began a lengthy thread on being os with health problems and there have been a couple of other threads over the years .
    I am wondering if the time is right for another thread on the subject with the proviso it is not offering advice on medical subjects as that is for the professionals . We all do many things day to day to minimise fatigue and pain and though they are little things we have developed them to cope and others may not be aware of how helpful the little changes can be .
    I would be interested to see if others would like to join such a thread . I am not very techie as you will gather from my rambling post and have never started a thread before - I hope this posts !
    polly
Page 104
    • ailz95
    • By ailz95 15th Feb 19, 12:33 PM
    • 236 Posts
    • 1,807 Thanks
    ailz95
    Mothernerd - I was in Wrightington in 1957/8 as a 3 year old when it was a tb sanotorium.

    I'm a bit bog eyed at the moment - last Monday 4th I drove from Kent to Manchester alone, at night as my mother was dying. I have a motorised wheelchair with a hoist in the car - I only got it in August and it's been a godsend to me. I stayed with her at the hospital overnight and on Tuesday morning - she died just after I left her. I drove home on Wednesday and have been exhausted ever since.

    Hope everyone is coping. The weather here is gorgeous, though we've just been into our local town which was very foggy
    'Proud To Be Dealing With My Debts' DFW Nerd club member No. 1028.
    DMP Mutual Support member No. 429

    DFD 10.9.14.

    Live Simply not Simply Live
    • elona
    • By elona 15th Feb 19, 5:44 PM
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    elona
    ailz95

    I am so sorry for your loss and you must be physically and mentally exhausted. Thank heavens for the hoist etc which gives you independence.
    "This site is addictive!"
    Wooligan 2 squares for smoky - 3 squares for HTA
    Preemie hats - 2.
    • candygirl
    • By candygirl 15th Feb 19, 8:50 PM
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    candygirl
    Aww I'm so sorry about your Mum Ailz
    "You can't stop the waves, but you can learn to surf"

    (Kabat-Zinn 2004)
    • LameWolf
    • By LameWolf 16th Feb 19, 1:54 PM
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    LameWolf
    Ailz I am so sorry for your loss.

    I read Day 11- a monologue and found it helpful . Then Listen to your body . I think Wolfy and myself are the worst here when it comes to pacing . Sometimes unavoidable but in my case I try to catch up on stuff when there's nowhere we need to go instead of having a bit of rest and recovery .
    Originally posted by pollyanna 26
    You're not wrong there, Polly. I've never yet gotten the hang of pacing. Now Mr Wolf's been told to "pace himself", too. And of course we are now each others' sole Carers. I've told him he's in charge of monitoring the spoons for both of us!

    Actually I only realised this morning, even before I became so poorly, back in the 1980's I used to literally keep going til I dropped. I was married to the lazy good-for-nothing wotnot Ex at the time, so everything fell to me - housework, shopping, cooking, gardening - even though I was working full time, and I can recall many occasions I would go outside to dig the garden, and continue and continue and continue, until my legs were shaking so much that I had to use the garden fork to support my weight, as opposed to actually digging with it. So..... Pacing? Forget it!!!
    LameWolf
    If your dog thinks you're the best, don't seek a second opinion.
    • Tink_04
    • By Tink_04 24th Feb 19, 4:26 PM
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    Tink_04
    Wow so much to catch up on!

    I hope everyone is ok! It's has been half term week and we have as usual been full of busy.
    It has been nice to have the kids off for the week and the weather has been really mild.

    I have been a bit all over the place since the beginning of the year but feel I'm picking up a bit and getting stronger each day (ok not every day yet) I have been on a behaviour activation cousre and it's really helped. It has given me lots to think about and made me look at how I tackle certain aspects of my life.

    We are busy getting some work done to the house so everything is all over and workmen are in and out, it will be worth it when it finished tho. I'm really looking forward to getting out in the garden, I think having a project and things to plan are helping me.

    We have booked to take the kids away to the caravan this year again too. I'd love to go abroad but think the money is a push this year again. They don't mind as we have lots of things they can do and just love spending the time together. We have decided no birthday parties this year either as we have too much to pay out this year with the house and I'm still not back to work.

    My shopping and meal planning has been going well and I feel a little bit more in control rather than everything spiralling.

    Off to catch up properly! Lovely to see some of you back and some new faces too!

    Tink xx
    Living the simple life
    2 savings challenge
    • Tink_04
    • By Tink_04 8th Mar 19, 5:18 PM
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    Tink_04
    Hey!

    Just popping in to see how everyone is doing.
    I've been quite busy! I've arranged to go back to work next month and have sorted my phases return out so I'm hoping this helps easy me back in as I've been off for a while.

    The house is getting there - all the messy work has been done so I feel a bit better and can relax in it. I hate getting work done but it's a nesessity!

    DD was off school today so had a rare day in the house just us - I baked cookies with what ingredients we had in and everyone loved them. I'm really pleased as big a great baker but was a simple oat cookie recipe. I just bunged them in the oven while I was cooking the jacket potatoes for tea.

    I'm getting better at cooking - shopping and planning our meals too! I really struggled for a while but feel I have more control and I'm actually back to making lists! This is huge as allows me to control my days and not hide away feeling overwhelmed.

    I hope everyone is ok and managing well - loving seeing new people on the thread too

    Take care - Tink
    Living the simple life
    2 savings challenge
    • maddiemay
    • By maddiemay 8th Mar 19, 7:09 PM
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    maddiemay
    Hi all, things ticking over O.K. here, had so much family stuff going on since Christmas, much resolving itself, some ongoing. I had what I thought was a mild cold/virus thing in January, the symptoms were indeed very mild, but it knocked me for six and drained all my energy for quite a few weeks, felt very low too, which is unusual for me.

    For the last 2/3 weeks my energy levels have been much better and like you Tink I have been more organised and am doing quite a lot of baking and preparing more varied and tasty meals

    At my February check up with the immunologist I was told that my levels were good, no change in meds for the time being.

    I completely agree with comments about pacing oneself, something which is very much a work in progress and an apt term would be "could do better"

    Hugs and spoons a plenty.

    MM
    The best thing about the future is that it comes one day at a time. (Abraham Lincoln)
    • Prinzessilein
    • By Prinzessilein 9th Mar 19, 7:36 AM
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    Prinzessilein
    Morning all!

    Pacing is NOT easy!...And when you DO try and pace yourself life throws all sorts of stuff at you that needs to be done by yesterday so all your good ideas go out of the window!

    Actually, I WILL be taking a short, enforced, rest in a week or so....the appointment for my lump-removal has finally come through...all things being well it will be day surgery followed by recovery at home...the specialist is 'fairly certain' the lump is 'nothing to worry about' - but it is a little large and may well require a slightly deeper incision, still I am just grateful that I will be rid of it in a couple of weeks (I can feel it 'pulling' and it gives a nagging ache)

    The freezer is getting depleted...so that means finding the energy to do a spot of batch cooking.

    With the weather getting warmer (ever so slightly!!) it is time to start thinking about getting 'Spring' clothes out of the cases and putting away the 'Winter' ones...sadly this means that my burgundy cords will probably be washed and put in the 'Charity' bag...they are so loose that I can't jiggle the hips too much or they fall down...but they are SO comfy-soft and a lovely shade of red!

    Supportive hugs to all!
    • maddiemay
    • By maddiemay 9th Mar 19, 8:17 AM
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    maddiemay
    Prinzessilein I just read your post on another thread and was reminded that I had meant to congratulate you on your weight loss and enquire if you managed to have a successful little buying spree?

    I am having a "me day" today, OH is going cycling and I will shower, hair wash and style, do a face mask, perhaps paint my finger and toenails, do a paraffin bath on my hands, knit, read, make something easy for supper. All the above are negotiable except for the shower and hair wash and the supper, I fully intend to do as the mood takes me and that might even involve watching James Martin on TV
    Many hugs and spoons. x
    The best thing about the future is that it comes one day at a time. (Abraham Lincoln)
    • mothernerd
    • By mothernerd 9th Mar 19, 12:19 PM
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    mothernerd
    I introduced myself and then went awol, sorry. I have been having a challenging few weeks. The sprained ankle has not 'resolved' iteself within the alloted six week time frame so still strapping it up and using mum's spare walker to go and carry shopping (as much as possible being delivered).

    Mum is still not fully recovered from the bug but is bright enough to remember all the things she wants doing (not in a particularly rational or in order of importance). She only has to think of these things, not actually do them and the random orders and obsessions have been driving me crazy.

    I'm into week 5 of the bug from hell (technically starting week 6 as I started on a Saturday) my house is a disaster zone and am getting to the sitting on the floor and crying stage (I refuse to feel sorry for myself and hardly ever cry - it's a bit like not throwing plates when you are mad because you will be the one who has to go and sweep it up later) so gave in and went to see the doctor.

    He had a student nurse and someone who will be working in the walk-in centre with him, so everyone got to play with me. Had a throat swab, visit to the vampires for bloods and a chest x-ray (bought breakfast and lunch from the 'friends' cafe and a hot chocolate - not allowed but just what I wanted/ needed - as had drunk the water and diet coke I had taken with me) and a prescription for tamiflu and a warning that if I did not get better, I had to go to hospital.

    So every incentive to get better. Got mum's prescription but mine had to be ordered. Picked them up yesterday morning (persuaded the driver to wait for me, then take me to mum's) and they do seem to be helping. The sleep is wonderful. Still being woken by my own coughing but lovely warm deep sleep for the first time in weeks (have been sleeping half sat up and curled to one side just to get any sleep).

    House is a tip. Occupational therapist visited a month ago and basically the house is a trip hazard, possible fire hazard and maybe health hazard (mould patches from roof repairs that still need doing not rats or anything). Sorry but having been reading up on definitions of hoarders (american ones I suspect) and they seem to involve escalating quantities of disorder and quantities of out of control animals.

    OT can probably give me things that help but house is too full so the hazards would increase. I have had a man and van to take away some items (including the bed head and foot boards hidden under my bed) and I've been chipping away at rubbish, recycling, charity donations and now putting small diy items (leftovers from some work done 3 years ago and saved for Justin) into the newly acquired space in the backyard (rolled and covered mattress was the biggest thing out there).

    THe OT also found a cleaning service (no cash help but she might be able to negotiate a deal) and that was also slightly reassuring. The thorough spring clean covers all the things like windows, sills, light switches, inside cupboards and all appliances (except inside the oven) - all the things I have been saving for a 'good' day and then suddenly realised I'm not going to get back to where I can do those things unless I spend all day on one small thing and am inventive with what I use to do it. Think I also need a few hours of 'special help' (not a hoarder just too many things in a small house and 2 supposed adults who are more hindrance than help and avid 'collectors' too).

    In addition to the bug, sprained ankles, long-term health issues, I have the 'lurching dizziness' (slight dizziness is a side effect of one of the pills but occasionally it's really bad - last week I had to sit down again every time I got out of bed and keep having to stop and hold onto convenient lamp-posts or walls), and I tipped my chair over and fell on the floor (got myself up).

    So chipping away at the general mess and my own stuff (ruthless head on) and being passive aggressive with their stuff - washed lots of bags for life and am sorting into labelled bags 'DS3 clean clothes', 'Beloved clean clothes', 'their bedding', 'dark washing', 'light washing' plus stuff to be donated and all the usual recycling categories. Recycling goes to relevant bins and their stuff (in bags) will be deposited inside 'their' room (mostly Beloved's room as DS3 sleeps on the spare bed downstairs when he takes a break from working on the computer - self-employed, making more money than me but not enough to be independent).

    Promised myself the 'one-time cleaners' but waiting to negotiate DS3 paying for it - I did raise the possibility of him cleaning the windows and some of the other jobs I can no longer do, he might prefer to pay.

    Today I am grateful for lovely sunshine, a fresh breeze and good books. Not planning to do much (would love a bath if I can summon the energy to get out of it again without asking for help). Best wishes with the lumpectomy and a good recovery.
    Changing to a Life of Simplicity and Serenity with added rainbows
    NST Jun #13 SFD 5/15 Food 53.46/160 Travel 13.60/20 Ent 0/12 Diy 10/10 Ext trainers, sodastream
    No Debt No mortgage
    • Tink_04
    • By Tink_04 10th Mar 19, 6:10 PM
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    Tink_04
    Hope things start improving soon for you mothernerd!

    I find filling a charity bag & a rubbish bag once a week really helps clear the clutter. It also makes you think about what you need and use.

    I also have a cleaner who comes once a fortnight to do the big jobs I can't manage. These small changes really help chip away at the madness.

    Tink
    Living the simple life
    2 savings challenge
    • pollyanna 26
    • By pollyanna 26 8th Apr 19, 1:07 PM
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    pollyanna 26
    Finally back . I've barely posted on the forums recently . Lots of stuff going on including more appts after we were just getting used to less .
    Recent problems with meds supply, the ones that can't be stopped suddenly, took up a lot of time and energy . So pretty much no spoons for a while.
    I've just noticed on another thread candy that you've lost your beloved Zeus. I remember remarking here a while ago on his beautiful , soulful eyes when you posted a pic. I'm so very sorry for your loss There are some pets that live on in our hearts forever and I expect Zeus will be one . Gentle hugs to you and Bonnie.
    .


    Thoughts as always are with dear Wolfy and her husband . I hope things are going ok with our friends here . The weather has been lovely and sunny here the last few days and the days lengthening have helped to lift the spirits .


    Still no response from DWP following the return of the shorter PIP reassessment form . Dds monthly payment is still going in to her account so no panic there.


    Take care all

    pollyx
    Last edited by pollyanna 26; 08-04-2019 at 1:30 PM.
    • LameWolf
    • By LameWolf 8th Apr 19, 1:38 PM
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    LameWolf
    I've just got back from dumping Mr Wolf at the horse-piddle for his visit to the neurologist. He has instructions to tell them about the motility issue that prevented a fully successful colonoscopy last week, as the people at the endoscopy dept said his Parkinson's may well be a factor.

    I've spent most of the last three days flat out on the sofa with barely the energy to lift a glass of water; and I've barely eaten in that three days either - simply can't face food.

    However, I have to just get on with it; Mr Wolf needs me in better form than this; and Bluebell arrived this morning for her holiday.

    Candy I am so very sorry to learn that Zeus has crossed Rainbow Bridge; that just is so unfair. I hope Bonnie is coping ok (and you too, of course).
    LameWolf
    If your dog thinks you're the best, don't seek a second opinion.
    • candygirl
    • By candygirl 8th Apr 19, 1:57 PM
    • 27,380 Posts
    • 116,482 Thanks
    candygirl
    Thanks Ladies.We are still gutted and in shock Bon is clinging to me 24/7 as She lost her big Bro Buddy in Sept, then Zeus, n prob thinks I'm gonna leave her next
    "You can't stop the waves, but you can learn to surf"

    (Kabat-Zinn 2004)
    • pollyanna 26
    • By pollyanna 26 8th Apr 19, 2:31 PM
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    pollyanna 26
    candy I was remembering Buddy when I read your latest news . So much grief in a short time. Words aren't a great deal of help to you at the moment and sadly in Bonnie's case all the hugs and loving words you give her can't help her understand .


    Once you've brought Mr W home make sure you rest when possible Wolfy . I've been flat out a number of times recently , insomnia and no appetite . I rather unwillingly started an iron and vitamin supplement a few weeks ago on the advice of the practice manager and the last few days sleep has improved and appetite is picking up too It's just herbal . I don't feel ready to zoom around like the duracell bunny but am dealing with things bit by bit.
    Enjoy your time with Bluebell .
    polly
    • pollyanna 26
    • By pollyanna 26 8th Apr 19, 8:18 PM
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    pollyanna 26
    I'm just catching up on all the posts I missed . I've got one eye on the TV . If anyone is interested in social history I'm watching"A house through time" on BBC2 . I watched the 1st series a couple of years ago which featured a house in Falkner St Liverpool It follows the history of the house since first built to the present day The Liverpool one started with the cotton trade , slave trade etc and told the stories of all who lived in the house to today

    This new one is set in Newcastle . I found the last series fascinating as it tracked wealth and poverty and documented history .
    polly x
    • pollyanna 26
    • By pollyanna 26 8th Apr 19, 9:23 PM
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    pollyanna 26
    New series was worth watching It makes me quite glad I've never been wealthy .The big bank crashes in the 1800s led to poverty for one of tonights wealthy inhabitants as it did for another in the Liverpool series .


    mothernerd I've been wondering how the plate spinning was going. Just read todays post on the other thread . Forget any thoughts of doing the admin tonight and get thee to bed. I feel exhausted just reading all the things you do so please cut yourself a bit of slack when you can. I understand the admin thing I hate having stuff hanging over whether in my head or on some list I keep losing .


    Summon your inner Scarlett , after all tomorrow is another day.
    pollyx.
    • Tink_04
    • By Tink_04 21st Apr 19, 2:50 PM
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    Tink_04
    Hey everyone!

    It feels like it's been a while ... things are ok over this side. I have started new meds and although I'm only a week in I feel really good on them. I have been waking up early and ready to face the day. This is unheard of for me!

    The kids are off on Easter holidays and it's a scorcher! DH has been doing the garden and it looks beautiful, he has laid new turf and dug a new boarder. I think it's my favourite place to be!

    I'm still off work and after a family crisis involving my mum I won't be back for a while. She is a huge help to me but now she can't help me out as much so we need to be doing more for ourselves and the kids.

    Due to the delay I'm going back to work I have decided to pay of as much of our debts as possible all are 0% but just feel it may start to get tight if we don't get rid of some of the excess chunk! So have been working hard on that and reading a lot of the DFW board diaries.

    The children have had a lovely holiday from school (the weather is a huge help) and it's has just shown me we can do so much for very little .

    I hope everyone is still around as would hate this thread to die off ... it is always such a huge support to me when I'm struggling. Take care everyone and have a lovely Easter

    Tink
    Living the simple life
    2 savings challenge
    • mothernerd
    • By mothernerd 21st Apr 19, 8:45 PM
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    • 31,299 Thanks
    mothernerd
    Thanks for the advice pollyanna. Plate spinning has slowed down as I'm now on week 11 of the bug from heck. Doctor has given me tamiflu which helped and have had another course of antibiotics (which also helped). Doctor sent me for a chest x-ray (wants me to have another in 6 weeks) as there are some signs of infection in my lungs (maybe same as mum had) and blood tests - lots and lots of blood tests.

    I have raised ESR levels which indicates that there is inflammation somewhere so they are looking for rheumatoid arthritis and he has mentioned mum's myasthenia gravis . Trying to find an underlying cause for the bug and my permanent tiredness. Ordinary tests have come back and I've been put on high dose Vitamin D which gave me a boost last time I had it. Hoping the other tests show something (preferably something fixable).

    Had my sleep apnoea monitoring last week - of course I had a night when I barely slept.

    Been doing stage 2 of the grand declutterathon over the weekend. Donations to 3 different charity bins and one shoe recycling plus bag of carrier bags to YMCA. Identified a farmhouse chair, small fridge and large wheeled shopper which can be donated and DS2 came round and moved the cube shelves I emptied out of my bedroom. I have a list of 'next things' but couldn't get the couch potatoes to help - they did fill a bin bag with rubbish, a bag for life with cans and bottles and DS3 went out to the bin with 3 pizza boxes found after I'd taken the others.

    Came to mum's yesterday evening with 4 bags (2 food, one clothes, one laptop, books to read etc). Unfortunately I had buried the bag of paperwork underneath the things I moved off the cube shelves before moving them (completely emptied them weeks ago but have been using them as pigeonholes to sort remaining stuff into categories) so only have fun things to do with me. I am staying until at least Tuesday afternoon as we have mum's neurology check up on Tuesday morning.

    Will stay longer if mum needs me to, as her partner died last Thursday evening. It was expected. He went into a home nearly 2 years ago as he had dementia (mum had been caring for him for about 7 years to the great detriment of her own health). Until recently he pottered happily round the home and has had excellent care (they even gave him his own set of papers to play with when they were doing paperwork) and was happy to play when the youngest great-grandchildren visited.

    He became sick a few weeks ago, had no interest in anything, wanted to stay in bed and was barely eating. His family and mum have been visiting frequently over the last few weeks.

    Today I am grateful for good weather (had the door open all day but left the padlock on the gate), for good food (mostly cooked/ prepared by me) and for having left the paperwork behind.
    Changing to a Life of Simplicity and Serenity with added rainbows
    NST Jun #13 SFD 5/15 Food 53.46/160 Travel 13.60/20 Ent 0/12 Diy 10/10 Ext trainers, sodastream
    No Debt No mortgage
    • pollyanna 26
    • By pollyanna 26 17th May 19, 10:49 PM
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    • 26,394 Thanks
    pollyanna 26
    Just popping in to say I hope to catch up and post tomorrow.


    I hope things are improving for those struggling. I've glanced through the last few posts so hope your mum is ok and things are improving for her Tink also your mum mothernerd.


    If you read at the moment Wolfy .You and your husband have been very much in my thoughts as always.
    Take care all
    pollyx
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