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    • catswhiskers4
    • By catswhiskers4 16th Mar 17, 2:05 PM
    • 94Posts
    • 47Thanks
    catswhiskers4
    Any positive stories changing from DLA to PIP?
    • #1
    • 16th Mar 17, 2:05 PM
    Any positive stories changing from DLA to PIP? 16th Mar 17 at 2:05 PM
    My husband has had the dreaded letter through that he needs to move to PIP. He currently receives DLA middle for care, lower for mobility. He receives it for mental health problems, including severe anxiety so you can imagine what effect the letter has had. Does anyone have any positive stories of moving? All I've heard are bad stories so I'm really really worried about it.




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    Last edited by MSE Andrea; 29-03-2017 at 12:31 PM.
Page 4
    • Crazycollielady
    • By Crazycollielady 29th Mar 17, 5:10 PM
    • 16 Posts
    • 7 Thanks
    Crazycollielady
    Legggyloo - I have ushers syndrome which is sensineural hearing loss from birth and later retinitis pigmentosa which is degenerative damage to the retinas. I'm not sure what your daughter would get for being deaf On its own - I know how hard a struggle it is even with hearing aids and being outside in busy places and even communication can be difficult but from a pip point of view I couldn't say - I was surprised to be awarded pip ( new first time claim last June) as I didn't know if they would award deafblind amd no face to face assessment

    That's not to say your daughter won't get anything but I honestly do not know - I can say years ago I tried a couple of times to claim dla for being deaf when I was alot younger and was turned down both times
    • rockingbilly
    • By rockingbilly 30th Mar 17, 11:06 AM
    • 838 Posts
    • 247 Thanks
    rockingbilly
    With regards to a home visit, my daughter is able-bodied, works full time but has hearing impairment. She is having a home visit next week and no, she never requested it, it was arranged by DWP and the date was sent to her in a letter.

    Has anyone else had success in getting PIPs for deafness ?
    Originally posted by legggyloo
    The simple answer for me is NO.
    I was assessed by the NHS and supplied with two hearing aids a year ago. My hearing was severely restricted in both ears.
    At best I would/should have had points for the aids but didn't. And after doing some reading up on this I realised that as I now have aids it is assessed that I no longer have any difficulties with hearing.
    Much like medication, if you are on pain relief medication it is deemed that pain will no longer be a barrier. Well that is what I have been told, be it right or wrong I don't know.
    Suffice it to say that I did have DLA (High Mobility/Middle Care) but on transfer to PIP I got nothing.
    • mcculloch29
    • By mcculloch29 30th Mar 17, 11:24 AM
    • 4,558 Posts
    • 44,796 Thanks
    mcculloch29
    I'm currently in receipt of higher rate mobility DLA with zero for care. My mobility has decreased and my care needs increased over the last few years but I've decided not to tempt fate by asking to be moved to PIP prior to my invitation.

    A young friend who has the same disability as me (hemiplegia) but is affected slightly differently (she has mild learning difficulties, I have severe arthritis) has just received higher rate mobility and middle rate care PIP on her transfer from DLA.

    I do have some negative stories of genuine claims being rejected and overturned on appeal, and outright lies from assessors, but there are many successful claims, and we do need to hear about these.

    For my first DLA claim I kept a slips, trips and falls diary and still do.
    I would recommend diary keeping as a way of monitoring and recording how you are affected by your conditions on a daily basis.

    I've read the descriptors very carefully and I believe I should receive some PIP for care.
    It's less common to get higher rate mobility and nothing for care, as I do. On DLA assessment I put myself across as coping really well with restricted mobility, probably too well, hence no care component!
    Erma Bombeck, American writer: "If I had my life to live over again... I would have burned the pink candle, sculptured like a rose, that melted in storage." Don't keep things 'for best' - that day never comes. Use them and enjoy them now.
    • rockingbilly
    • By rockingbilly 30th Mar 17, 12:06 PM
    • 838 Posts
    • 247 Thanks
    rockingbilly
    [/B][/B]

    All wrong information,please ignore
    Originally posted by bspm
    And how on earth do you know me or my circumstances?
    I submitted the audio report etc from the hospital - I was awarded 0 points - fact
    I had been told that if the disability/disappears completely by using aids or with medication then no points can be awarded for that disability (obviously my hearing is as good as normal all of the time provided I use my aids) as per advice given by the DWP PIP help line - fact.
    Now if you want me to prove that I will upload a copy of that audio report on here.
    • bspm
    • By bspm 30th Mar 17, 12:11 PM
    • 394 Posts
    • 601 Thanks
    bspm
    The simple answer for me is NO.
    I was assessed by the NHS and supplied with two hearing aids a year ago. My hearing was severely restricted in both ears.
    At best I would/should have had points for the aids but didn't. And after doing some reading up on this I realised that as I now have aids it is assessed that I no longer have any difficulties with hearing.
    Much like medication, if you are on pain relief medication it is deemed that pain will no longer be a barrier. Well that is what I have been told, be it right or wrong I don't know.

    Suffice it to say that I did have DLA (High Mobility/Middle Care) but on transfer to PIP I got nothing.
    Originally posted by rockingbilly
    It did not highlight the correct passages I said were all wrong. Now it has.
    • bspm
    • By bspm 30th Mar 17, 12:15 PM
    • 394 Posts
    • 601 Thanks
    bspm
    And how on earth do you know me or my circumstances?
    I submitted the audio report etc from the hospital - I was awarded 0 points - fact
    I had been told that if the disability/disappears completely by using aids or with medication then no points can be awarded for that disability (obviously my hearing is as good as normal all of the time provided I use my aids) as per advice given by the DWP PIP help line - fact.
    Now if you want me to prove that I will upload a copy of that audio report on here.
    Originally posted by rockingbilly
    I was NOT querying your hearing impairment, I do not query ANY of your illnesses, what I was pointing out to posters, posters who do not know you, is that you give total !!!!!!!! answers, you are a very stupid man.

    You pointed out that you did not get any points even though you wear hearing aids, giving the impression that that is the reason you did not get any points, when really you should be saying that you did not get any points because you made a balls up of the form, you are a dangerous poster.
    • fredandwilma
    • By fredandwilma 30th Mar 17, 12:17 PM
    • 938 Posts
    • 1,297 Thanks
    fredandwilma
    Just a reminder, this thread is for posting positive stories changing from DLA to PIP.

    Any other enquiries, comments, or negative changes from DLA to PIP, may be posted elsewhere on the forums.
    Fred - Where's your get up and go?

    Barney - It just got up and went.



    Carpe diem
    • Stoodles
    • By Stoodles 30th Mar 17, 12:22 PM
    • 681 Posts
    • 8,993 Thanks
    Stoodles
    The Assessors Guide at https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/547146/pip-assessment-guide.pdf
    makes it clear that someone who NEEDS a hearing aid could be expected to score 2 points


    B Needs to use an aid or appliance to be able to speak or hear. 2 points
    For example: may apply to claimants who require a hearing aid or an electro larynx.
    If the claimant is not using a prescribed hearing aid, ask why. If there is a good medical reason such as chronic ear infection, function without the aid should be assessed. If there is not a good reason, expected function with the aid should be assessed.

    and

    When considering whether a claimant requires an aid or appliance, HPs should distinguish between:
    • an aid or appliance that a claimant must use or could reasonably be expected to use, in order to carry out the activity safely, reliably, repeatedly and in a timely manner; and

    • an aid or appliance that a claimant may be using or wish to use because it makes it easier to carry out the activity safely, reliably, repeatedly and in a timely manner.

    Descriptor advice in favour of an aid or appliance should only be given in the former case. An aid or appliance is not required in the latter.
    Where a claimant chooses not to use an aid or appliance that he or she could reasonably be expected
    to use and would enable them to carry out
    the activity without assistance, they should be assessed as needing an aid or appliance rather than a higher level of support.
    • cbrown372
    • By cbrown372 30th Mar 17, 12:47 PM
    • 1,192 Posts
    • 3,691 Thanks
    cbrown372
    The simple answer for me is NO.
    I was assessed by the NHS and supplied with two hearing aids a year ago. My hearing was severely restricted in both ears.
    At best I would/should have had points for the aids but didn't. And after doing some reading up on this I realised that as I now have aids it is assessed that I no longer have any difficulties with hearing.
    Much like medication, if you are on pain relief medication it is deemed that pain will no longer be a barrier. Well that is what I have been told, be it right or wrong I don't know.
    Suffice it to say that I did have DLA (High Mobility/Middle Care) but on transfer to PIP I got nothing.
    Originally posted by rockingbilly
    Get your stories right Andy, in fact you omitted to mention at all that you have hearing aids, funnily enough you only remembered you have hearing aids after reading a thread about it on here.

    http://forums.moneysavingexpert.com/showpost.php?p=72139604&postcount=30

    Now can anyone joining this thread from Martin's email please read the first post and let us know your positive experience and ignore this posters fairy tales.
    Its not that we have more patience as we grow older, its just that we're too tired to care about all the pointless drama
    • rockingbilly
    • By rockingbilly 30th Mar 17, 1:17 PM
    • 838 Posts
    • 247 Thanks
    rockingbilly
    I was NOT querying your hearing impairment, I do not query ANY of your illnesses, what I was pointing out to posters, posters who do not know you, is that you give total !!!!!!!! answers, you are a very stupid man.

    You pointed out that you did not get any points even though you wear hearing aids, giving the impression that that is the reason you did not get any points, when really you should be saying that you did not get any points because you made a balls up of the form, you are a dangerous poster.
    Originally posted by bspm
    The form was a mess, I see that now after reading the contents. But whether it was a mess or not the evidence from the hospital diagnosing hearing loss and the requirement to need to use two hearing aids to get my hearing back to normal was sent with the form! Surely it is not too much to ask for the assessor to look at the evidence even if I didn't mention it on the form.
    And the reason I didn't mention it was because I believed that having now got my hearing back, having the aids didn't matter.
    • rockingbilly
    • By rockingbilly 30th Mar 17, 1:19 PM
    • 838 Posts
    • 247 Thanks
    rockingbilly
    Get your stories right Andy, in fact you omitted to mention at all that you have hearing aids, funnily enough you only remembered you have hearing aids after reading a thread about it on here.

    http://forums.moneysavingexpert.com/showpost.php?p=72139604&postcount=30

    Now can anyone joining this thread from Martin's email please read the first post and let us know your positive experience and ignore this posters fairy tales.
    Originally posted by cbrown372
    Correct, it didn't dawn on me what the implications were at the time that I would get 2 points just by having them.
    • Ames
    • By Ames 30th Mar 17, 1:22 PM
    • 16,170 Posts
    • 28,214 Thanks
    Ames
    Rockingbilly - I thought you'd agreed to stop posting giving advice? It's very well established that your experience was completely different to every one else and so posting only serves to at best scare people, at worse cause them to give up or make mistakes in their own claim.

    By continuing to post you're causing a lot of damage.
    Unless I say otherwise 'you' means the general you not you specifically.

    Reading the alphabet in 2017. 21/100
    ABCDEFGHIJKLMNOPQRSTUVWXYZ
    • NeilCr
    • By NeilCr 30th Mar 17, 4:51 PM
    • 899 Posts
    • 953 Thanks
    NeilCr
    Rockingbilly - I thought you'd agreed to stop posting giving advice? It's very well established that your experience was completely different to every one else and so posting only serves to at best scare people, at worse cause them to give up or make mistakes in their own claim.

    By continuing to post you're causing a lot of damage.
    Originally posted by Ames
    Absolutely

    And the sad thing is that poor old rockingbilly's health problems have clearly led him to have a false memory of his PIP claim and the"alleged" completion of the form by DWP

    The much more likely scenario is that he completed it himself - has got confused and now believes that DWP did it for him - so it's all their fault
    • w06
    • By w06 30th Mar 17, 5:05 PM
    • 267 Posts
    • 385 Thanks
    w06
    With regards to a home visit, my daughter is able-bodied, works full time but has hearing impairment. She is having a home visit next week and no, she never requested it, it was arranged by DWP and the date was sent to her in a letter.

    Has anyone else had success in getting PIPs for deafness ?
    Originally posted by legggyloo
    legggyloo

    most of my PIP claim was for a different disability/illness however 8 of the daily living points awarded at the face to face assessment were for my deafness. I've no hearing (post lingually so my speech is reasonable), don't wear hearing aids and rely on lip reading/body language/context/other cues

    I was quite suprised how many points I scored on that as I'd made it clear to the assessor that I manage, I work, I teach, I socialise within the limits of my other brokenesses, and i spent over an hour talking with her. However she quite rightly pointed out that if she turned her back or covered her mouth, i have no idea she's talking let alone what's being said.
    • rockingbilly
    • By rockingbilly 30th Mar 17, 7:29 PM
    • 838 Posts
    • 247 Thanks
    rockingbilly
    Rockingbilly - I thought you'd agreed to stop posting giving advice? It's very well established that your experience was completely different to every one else and so posting only serves to at best scare people, at worse cause them to give up or make mistakes in their own claim.

    By continuing to post you're causing a lot of damage.
    Originally posted by Ames
    The question was asked and I gave info of what happened to my PIP claim for deafness. That is not giving advice, it's giving what happened to me as a fact.
    • rockingbilly
    • By rockingbilly 30th Mar 17, 7:33 PM
    • 838 Posts
    • 247 Thanks
    rockingbilly
    Absolutely

    And the sad thing is that poor old rockingbilly's health problems have clearly led him to have a false memory of his PIP claim and the"alleged" completion of the form by DWP

    The much more likely scenario is that he completed it himself - has got confused and now believes that DWP did it for him - so it's all their fault
    Originally posted by NeilCr
    Now who's being silly?
    It should be sufficient for you to accept what happened to my PIP claim. I do not have any 'false' memories about the Jobcentre filling in the form for me - it happened.
    Well I couldn't have done any worse if I had have filled it in?
    Personally I don't care what you think happened. I have given true facts and you either call me a liar or not.
    • NeilCr
    • By NeilCr 30th Mar 17, 7:45 PM
    • 899 Posts
    • 953 Thanks
    NeilCr
    But how do you know what happened for sure Rockingbilly

    By your own omission in 2014 you were diagnosed with a condition that causes confusion and dementia. That was three years ago so likely it can only have got worse. It may well be that you "believe' that the DWP completed the form for you but didn't. Who knows? You can't because of your illness. No-one else can because they know of your diagnosis and the very strong likelihood that what you think happened didn't

    Sad. But it is very important that posters on MSE looking for advice and support are aware that your illness will, for sure, impact on the veracity of anything you say
    • Brummie79
    • By Brummie79 30th Mar 17, 7:51 PM
    • 2 Posts
    • 5 Thanks
    Brummie79
    Support for completing PIP and ESA assessments
    The Advocacy charity I work for have developed an App to help people prepare for PIP and ESA assesment. I'm unable to post the link due to being a new user, C-App. It's also worth contacting your local Advocacy organisation to see if they offer Advocacy support at the assessment and your local CAB for supprt with filling out the forms.
    • NeilCr
    • By NeilCr 30th Mar 17, 7:55 PM
    • 899 Posts
    • 953 Thanks
    NeilCr
    Sounds good Brummie79.

    If you post (or pm me) the name of your advocacy group I'll see if I can post the link for you
    • NeilCr
    • By NeilCr 30th Mar 17, 10:18 PM
    • 899 Posts
    • 953 Thanks
    NeilCr
    This is the link Brummie79 mentioned

    http://www.c-app.org.uk

    I have no connection to this site at all. It's good that there are as many helpful resources as possible out there
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