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  • FIRST POST
    • catswhiskers4
    • By catswhiskers4 16th Mar 17, 2:05 PM
    • 91Posts
    • 41Thanks
    catswhiskers4
    Any positive stories changing from DLA to PIP?
    • #1
    • 16th Mar 17, 2:05 PM
    Any positive stories changing from DLA to PIP? 16th Mar 17 at 2:05 PM
    My husband has had the dreaded letter through that he needs to move to PIP. He currently receives DLA middle for care, lower for mobility. He receives it for mental health problems, including severe anxiety so you can imagine what effect the letter has had. Does anyone have any positive stories of moving? All I've heard are bad stories so I'm really really worried about it.




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    Last edited by MSE Andrea; 29-03-2017 at 12:31 PM.
Page 2
    • missysmum
    • By missysmum 17th Mar 17, 9:13 AM
    • 30 Posts
    • 16 Thanks
    missysmum
    I was on DLA 15 years,high rate mobility component,indefinite, no care.

    Applied for PIP, was assessed without any evidence,was given standard rate on both.

    My motability car had to be returned. I appealed. Mandatory Reconsideration was successful, high rate mobility was awarded.

    We purchased our own car.

    My husband can now claim carers allowance. We are financially much better off than what I was on DLA.

    I think that if things hadn't changed,I would never have been reviewed by the DWP. No one reviewed me in all of the 15 years and I didn't think to ask for one.

    I'm happy.
    • rockingbilly
    • By rockingbilly 17th Mar 17, 9:44 AM
    • 708 Posts
    • 223 Thanks
    rockingbilly
    Maybe she asked for one.........
    Originally posted by bspm
    Silly me for not coming up with that gem!

    Obviously you have to ask for one, but it would be most helpful to know what the criteria is that you would be entitled to one.
    • rockingbilly
    • By rockingbilly 17th Mar 17, 9:50 AM
    • 708 Posts
    • 223 Thanks
    rockingbilly
    I was on DLA 15 years,high rate mobility component,indefinite, no care.

    Applied for PIP, was assessed without any evidence,was given standard rate on both.

    My motability car had to be returned. I appealed. Mandatory Reconsideration was successful, high rate mobility was awarded.

    We purchased our own car.

    My husband can now claim carers allowance. We are financially much better off than what I was on DLA.

    I think that if things hadn't changed,I would never have been reviewed by the DWP. No one reviewed me in all of the 15 years and I didn't think to ask for one.

    I'm happy.
    Originally posted by missysmum
    That's good. You are one of the lucky ones in that your difficulties must have fitted the descriptors. Like you I too had been on DLA for years on and off. Since 2011 I had High Mobility/Middle Care indefinitely, but on transfer to PIP the DWP considered that I was no longer disabled enough to fit any of the descriptors so ended up with '0'.
    The only thing that keeps me sane when trying to understand it all is that I am not alone, 25% of all of those being transferred get no award for PIP.
    As a side issue, did you get any help either with the initial claim form or the MR?
    • Barneyboyz336
    • By Barneyboyz336 17th Mar 17, 9:52 AM
    • 15 Posts
    • 2 Thanks
    Barneyboyz336
    Please try not to worry. Can I ask if your husband sees a cpn? My wife does and her cpn was called by pip and she didn't even have to attend a face to face. This puts too much stress on someone with mental health problems. I really hope you get this sorted soon. All the best!
    • bspm
    • By bspm 17th Mar 17, 9:59 AM
    • 370 Posts
    • 527 Thanks
    bspm
    Silly me for not coming up with that gem!

    Obviously you have to ask for one, but it would be most helpful to know what the criteria is that you would be entitled to one.
    Originally posted by rockingbilly
    Just thought that someone who didn't read his completed (by someone else) application for PIP might not have thought you had to ask for a home assessment too.

    After all if you don't get a home assessment, even after not asking for one, it gives you something else to moan about surely.

    Have a nice day we are off out in our Motor home.

    • WantToBeSE
    • By WantToBeSE 17th Mar 17, 10:02 AM
    • 7,545 Posts
    • 30,538 Thanks
    WantToBeSE
    My son moved from DLA to PIP really quickly and easily. No face to face assessment, no long wait, and he went from HC, LM on DLA, to enhanced on both for PIP.

    Edit- Also wanted to say that my sons is based on Mental Health, mainly Anxiety.
    Last edited by WantToBeSE; 17-03-2017 at 10:06 AM.
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    • Stoodles
    • By Stoodles 17th Mar 17, 10:10 AM
    • 680 Posts
    • 8,984 Thanks
    Stoodles
    Do you think it makes a difference whether you are assessed by Atos or Capita? I know I read that the likelihood of getting a home visit differs between the two providers

    There is a map at https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/455036/pip-postcode-map.pdf to check provide by postcode.
    • missysmum
    • By missysmum 17th Mar 17, 11:42 AM
    • 30 Posts
    • 16 Thanks
    missysmum
    That's good. You are one of the lucky ones in that your difficulties must have fitted the descriptors. Like you I too had been on DLA for years on and off. Since 2011 I had High Mobility/Middle Care indefinitely, but on transfer to PIP the DWP considered that I was no longer disabled enough to fit any of the descriptors so ended up with '0'.
    The only thing that keeps me sane when trying to understand it all is that I am not alone, 25% of all of those being transferred get no award for PIP.
    As a side issue, did you get any help either with the initial claim form or the MR?
    Originally posted by rockingbilly
    No outside help, just my husband,with both the PIP claim and MR.
    • rockingbilly
    • By rockingbilly 17th Mar 17, 11:48 AM
    • 708 Posts
    • 223 Thanks
    rockingbilly
    Just thought that someone who didn't read his completed (by someone else) application for PIP might not have thought you had to ask for a home assessment too.

    After all if you don't get a home assessment, even after not asking for one, it gives you something else to moan about surely.

    Have a nice day we are off out in our Motor home.

    Originally posted by bspm
    It's of no consequence for my PIP transfer as a decision has already been made without being offered any face to face assessment.
    I only ask as a matter of interest. From what I have read you have to have your GP confirm that you would be unable to travel to a centre and as they have the GP visit them at home, a home assessment is the only option available to them.
    For your information, and as mentioned earlier, the guy at the Jobcentre entered in the box on the PIP2 that I wanted to go to an assessment centre - without even suggesting that I had another option (home visit).
    • rockingbilly
    • By rockingbilly 17th Mar 17, 11:51 AM
    • 708 Posts
    • 223 Thanks
    rockingbilly
    Do you think it makes a difference whether you are assessed by Atos or Capita? I know I read that the likelihood of getting a home visit differs between the two providers

    There is a map at https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/455036/pip-postcode-map.pdf to check provide by postcode.
    Originally posted by Stoodles
    I didn't know that their were two different assessors? I believed it was all dealt with by ATOS.
    Ah, yes my area is ATOS
    • rockingbilly
    • By rockingbilly 17th Mar 17, 11:59 AM
    • 708 Posts
    • 223 Thanks
    rockingbilly
    No outside help, just my husband,with both the PIP claim and MR.
    Originally posted by missysmum
    Thanks, well he seems to be in the know, far better than the guy I had fill my form in and he is employed by the DWP at the Jobcentre.

    I could understand the descriptors but not how you are supposed to work them into fitting your difficulties. Just couldn't get me head round the safety, reliable etc bit. It all seemed a bit contrived to me. I just couldn't see how the DWP could believe me if I said I could do a thing, then in the next breath say that it is difficult to do it and then expect to be told that I couldn't do it.
    Could I walk 20 metres - yes
    Could I do it without stopping - no
    Answer - no I can't walk 20 metres!!!
    Seems a ridiculous way to explain things.
    But hey ho, no worries I have got over the rejection - others worse than me also fail.
    • TELLIT01
    • By TELLIT01 17th Mar 17, 12:06 PM
    • 3,320 Posts
    • 3,430 Thanks
    TELLIT01
    For your information, and as mentioned earlier, the guy at the Jobcentre entered in the box on the PIP2 that I wanted to go to an assessment centre - without even suggesting that I had another option (home visit).
    Originally posted by rockingbilly
    Home visits are intended for those who are unable to leave home. As you were seen at the JC that obviously didn't apply to you, therefore the assessment centre was the obvious decision. A home visit can't be opted for as a lifestyle choice.
    • rockingbilly
    • By rockingbilly 17th Mar 17, 12:35 PM
    • 708 Posts
    • 223 Thanks
    rockingbilly
    Home visits are intended for those who are unable to leave home. As you were seen at the JC that obviously didn't apply to you, therefore the assessment centre was the obvious decision. A home visit can't be opted for as a lifestyle choice.
    Originally posted by TELLIT01
    Right, so I was right then. You only get a home visit if your GP believes that you cannot leave your home for any reason(mental/physical difficulties).
    Then I wonder how people manage to get help to fill in the forms - presumably the CAB or other agency also makes home visits?
    • NeilCr
    • By NeilCr 17th Mar 17, 1:03 PM
    • 758 Posts
    • 758 Thanks
    NeilCr
    Right, so I was right then. You only get a home visit if your GP believes that you cannot leave your home for any reason(mental/physical difficulties).
    Then I wonder how people manage to get help to fill in the forms - presumably the CAB or other agency also makes home visits?
    Originally posted by rockingbilly
    We can do sometimes. We have links to other organisations who help and they can visit at home, too

    It's going to depend on the area and resources available. We are heavily volunteer dependent and recruiting and retaining them can be hard
    • _CC_
    • By _CC_ 17th Mar 17, 1:33 PM
    • 231 Posts
    • 192 Thanks
    _CC_
    I could understand the descriptors but not how you are supposed to work them into fitting your difficulties. Just couldn't get me head round the safety, reliable etc bit. It all seemed a bit contrived to me. I just couldn't see how the DWP could believe me if I said I could do a thing, then in the next breath say that it is difficult to do it and then expect to be told that I couldn't do it.
    Could I walk 20 metres - yes
    Could I do it without stopping - no
    Answer - no I can't walk 20 metres!!!
    Seems a ridiculous way to explain things.
    But hey ho, no worries I have got over the rejection - others worse than me also fail.
    Originally posted by rockingbilly
    If you can't stand and then move more than 20 meters, either aided or unaided, you would be entitled to 12 points for the mobility section (with some caveats in terms of timings / reliability) i.e. an enhanced award.

    I suspect there's more to it? E.g. you can still walk the distance, but need to stop, but it takes you no longer than twice an abled person, or the condition fluctuates...
    • Penitent
    • By Penitent 17th Mar 17, 2:39 PM
    • 631 Posts
    • 1,671 Thanks
    Penitent
    I only ask as a matter of interest. From what I have read you have to have your GP confirm that you would be unable to travel to a centre and as they have the GP visit them at home, a home assessment is the only option available to them.
    Originally posted by rockingbilly
    Right, so I was right then. You only get a home visit if your GP believes that you cannot leave your home for any reason(mental/physical difficulties).
    Originally posted by rockingbilly
    No. My GP doesn't visit me at home and I'm not completely housebound. My GP asked them if they would grant me a home visit as I'm only able to go to essential doctor's appointments and he and I believed I would find going to the centre too distressing. They granted a home visit on this basis. (I did need a letter from him as they refused a home visit without a letter confirming I needed one.)

    Then I wonder how people manage to get help to fill in the forms - presumably the CAB or other agency also makes home visits?
    I would imagine many in my situation don't manage to get help (I didn't). I've since found out that if I decide to reapply, the local CAB and another local organisation might be able to do a home visit if they have someone available.
    • rockingbilly
    • By rockingbilly 17th Mar 17, 3:49 PM
    • 708 Posts
    • 223 Thanks
    rockingbilly
    If you can't stand and then move more than 20 meters, either aided or unaided, you would be entitled to 12 points for the mobility section (with some caveats in terms of timings / reliability) i.e. an enhanced award.

    I suspect there's more to it? E.g. you can still walk the distance, but need to stop, but it takes you no longer than twice an abled person, or the condition fluctuates...
    Originally posted by _CC_
    Actually I can walk the 20 metres but from the start I am in pain due to the damage to my lower spine. I have to stop at least once probably twice if going uphill so that the pain subsides then start off again. As for how long it takes I have no idea. And when measuring 20 metres that is the side of our home plus the front porch. (my daughter measured it for me). If doesn't fluctuate - I'm in agony in bed or out, hence why I have to have sedatives at night so as to get some sleep.
    But getting back to the descriptor - "of course I can walk 20 metres, if I couldn't I would be in a wheelchair obviously doh!" which is how I explained it to the Jobcentre guy!
    Last edited by rockingbilly; 17-03-2017 at 3:53 PM.
    • catswhiskers4
    • By catswhiskers4 17th Mar 17, 3:54 PM
    • 91 Posts
    • 41 Thanks
    catswhiskers4
    Barney, yes he has a CPN, I've given her details. Plus his psychiatrist. Hopefully he'll not need an assessment, but if they decide he does, he has dissociative seizures and involuntary jerking when he's very stressed so going for an assessment would mean they get to see exactly how bad his anxiety is. He would almost definitely have one during the assessment.
    • Tobermory
    • By Tobermory 17th Mar 17, 4:01 PM
    • 47 Posts
    • 59 Thanks
    Tobermory
    There is a section on the PIP form (page 36 of 40) requesting you "Tell us about any help you would need if you have to go for a face-to-face consultation". We put "Disabled parking, access and toilet for wheelchair user", and hey presto we were given a home visit without asking/any Doctor intervention.
    • Gypsywoman
    • By Gypsywoman 17th Mar 17, 4:48 PM
    • 18 Posts
    • 54 Thanks
    Gypsywoman
    I was on DLA HR care and mobility, for physical and mental disabilities. I just got my award letter today for Enhanced care and mobility for 3 years. I cannot see much changing except for the worse and I am 64 just 6 months after the 3 years. So thought perhaps they like to check before you are 64.

    The assessment went well and the assessor was good and there was no trick questions. You do only hear about the 'bad cases' or the 'not successful cases'. Just be truthful and you should get the award to which you are entitled.

    I was not allowed a 'home visit'. although they offered to pay for a taxi, that was not appropriate. My CPN rang then to ask why and it was because I had several sections, a good few years ago now, and also I had stated 'I did not like people coming to my home' - that should have been expanded on, for it meant 'unexpectedly' and was to do with my incontinence pads and if there was any clothing in the bathroom sink.

    I have only ever been a danger to myself, but they would not have known that. So my CPN insisted that they make an appointment at the centre so that she was available to bring me in her car and stay with me. My CPN, carer and many others come to my home alone, but I realise ATOS is bound by health and safety. So it all worked out, in the end and like I say the assessor just asked me about my form and what I had answered and I replied and expanded if needed.

    My CPN spoke also around the support that is available to me and she prompted me when I forgot things. It was always planned she would be there. So if your husband does have a CPN, their input can be invaluable.

    It was only around 40 minutes and the assessor stopped it because he could see I was in pain and I really was in bad pain. I did not know it had shown though, but he saw it and said he had all he needed.

    I hope your husband is awarded what he is entitled to.
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