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  • FIRST POST
    • Ron2017
    • By Ron2017 13th Mar 17, 6:13 AM
    • 11Posts
    • 3Thanks
    Ron2017
    Pip eligibility
    • #1
    • 13th Mar 17, 6:13 AM
    Pip eligibility 13th Mar 17 at 6:13 AM
    Hello, i wonder if someone can help me as I am currently getting a headache about pip. I applied back in April last year and haven't even had an assessment yet as they have kept messing things up, but that's a whole book in itself but i wont go into that. I don't think i will get pip as i cannot prove I'm unwell if that makes sense.
    For the past six years i have been unable to work. It first started out with dizziness and pain in my chest, i never for one minute considered my heart as the pain lasted for hours at a time and i was only 32 at the time. To cut a long story short I have had every heart test you can imagine, most neurological tests but they still cannot find out what's wrong with me. They know it's something as i have passed out quite a few times and one neurologist said i have autonomic dysfunction when he examined me.
    Most of my time is spent lying down as I'm either in pain or so dizzy i cannot really stand, but on the odd occasion i feel reasonably okay i can easily prepare meals or walk 200 metres etc. The majority of the time i cannot do those things but I'm not sure if that will be considered. It also doesn't help that the doctors seem to be at a loss, i am still under cardiology as i have a recording device in my chest. After that i have no idea where they will refer me next.
    Basically any help is appreciated with regards to if I'm eligible for pip or not?
    Thank you.
Page 3
    • Muttleythefrog
    • By Muttleythefrog 15th Mar 17, 12:07 AM
    • 9,157 Posts
    • 17,112 Thanks
    Muttleythefrog
    Let me start again as this is getting very complicated.

    I applied for pip in April 2016, actually after a nurse told me i should be getting it. After everything i have read about ATOS i was not going to bother but though the esa people may think it strange. To be honest I am surprised i have received ESA for so long without them once enquiring more about my condition.

    Forms went missing according to dwp so had to fill them out again. Hence why this has all took so long.

    Received a letter from dwp in November saying claim disallowed as failed to attend interview with ATOS. Mandatory reconsideration failed but won at tribunal.

    Man from DWP called and asked for bank details after telling me about tribunal decision etc. He was definitely from dwp and i am 100% sure of this.

    Rang ATOS to make sure there would not be another mistake and they offered me an appointment in Ilford in two days(not two days from now but two days from when i rang). I told them there is no way I'm going there. Even if i do venture out it's not far as pain/dizziness can hit me at anytime. Ilford is in Essex and i live in the suburbs of south east London, so quite far really.

    Sorry for the confusion.
    Originally posted by Ron2017
    No worries. But when was the ATOS appointment due? It's unclear as to whether the expectation is you're making a new appointment with them (as the location proposed is too far away) or if you're going to land up with a potentially new issue of failure to attend although 2 days notice isn't sufficient.. they should give 7 days notice I understand otherwise you'd be able to accept shorter if you were happy to do so. You expressed unhappiness so I presume this was not a formally arranged appointment at any time... but again... we're blind to things here.. this is a confusing claim.

    On the ESA they may be stalling on reassessment due to backlogs... I was due a year ago for reassessment but likely they've just let it lie for another 3 years... you may be facing similar. You don't detail your ESA claim.. it may be that details of why you qualify for that could be useful and any underlying reports. PIP criteria is different but it looks like DWP concluded significant disablement for ESA. I would be wanting to get hold of any reports that are in play for ESA award... but like I say if you've imminent assessment for PIP you may not have time for great preparations and plans at this point.
    Last edited by Muttleythefrog; 15-03-2017 at 12:19 AM.
    "Do not attribute to conspiracy what can adequately be explained by incompetence" - rogerblack
    • GlasweJen
    • By GlasweJen 15th Mar 17, 4:55 PM
    • 6,012 Posts
    • 10,821 Thanks
    GlasweJen
    I was booked referred to one about four years ago but then i was sent off in a different direction. But no doubt they will get around to it, to be honest it's the one test i dread as i feel dizzy enough as it is, without them trying to make me dizzy.
    Originally posted by Ron2017
    It won't necessarily make you dizzy, mine knocked me unconscious within 9 minutes but it got the answers. A lot of doctors these days will go straight to LINQ or REVEAL devices and by-pass HUTT testing as it's seen as primitive but it gets the job done.
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    • Ron2017
    • By Ron2017 17th Mar 17, 8:39 PM
    • 11 Posts
    • 3 Thanks
    Ron2017
    Hi everyone,

    I rang ATOS yesterday and they told me i have an appointment booked for the 28th March, I still haven't received anything in the post.
    I asked them what i should bring to help prove that I'm unwell and explained I have e no diagnosis. They told me they only want to ask how my illness affects me and do not need to see medical evidence. I asked if they had already received that from my doctor and they told me they have no need to contact my doctor and will go off what i tell them. Does not sound right to me but there you go.
    • Ron2017
    • By Ron2017 17th Mar 17, 8:43 PM
    • 11 Posts
    • 3 Thanks
    Ron2017
    It won't necessarily make you dizzy, mine knocked me unconscious within 9 minutes but it got the answers. A lot of doctors these days will go straight to LINQ or REVEAL devices and by-pass HUTT testing as it's seen as primitive but it gets the job done.
    Originally posted by GlasweJen
    Saw my gp today and mentioned a tilt table test and was told there is no need of repeat it as it was negative before. I then told him that i never had one and when he rechecked it turns out I was right. No wonder I don't have a diagnosis yet
    But they are referring me again and also to the ent, I asked him why as surely my ear nose and throat would not cause all my symptoms. He said no but they might discover the cause of my dizziness, i said but surely they are all linked. He asked why i thoguht that and i said because they all started at the same time. I sometimes wonder why i bother lol.
    Thanks
    • Muttleythefrog
    • By Muttleythefrog 17th Mar 17, 9:02 PM
    • 9,157 Posts
    • 17,112 Thanks
    Muttleythefrog
    Hi everyone,

    I rang ATOS yesterday and they told me i have an appointment booked for the 28th March, I still haven't received anything in the post.
    I asked them what i should bring to help prove that I'm unwell and explained I have e no diagnosis. They told me they only want to ask how my illness affects me and do not need to see medical evidence. I asked if they had already received that from my doctor and they told me they have no need to contact my doctor and will go off what i tell them. Does not sound right to me but there you go.
    Originally posted by Ron2017
    They should be in receipt of completed PIP2 form and any evidence you've supplied.. but this case has been a bit of a mess. I'd take any copies of PIP2 form and your evidence to the assessment. Prepare as best you can with details of what problems you have with the various activities and have in mind the descriptors applicable. Try to get someone to go with you and in advance you might be able to agree with ATOS that they'll reimburse taxi fares (as opposed to standard reimburse of things like bus fare) if applicable. Good luck.
    Last edited by Muttleythefrog; 17-03-2017 at 9:05 PM.
    "Do not attribute to conspiracy what can adequately be explained by incompetence" - rogerblack
    • Ron2017
    • By Ron2017 28th Mar 17, 9:55 PM
    • 11 Posts
    • 3 Thanks
    Ron2017
    Hi everyone,

    I had my assessment today but couldn't tell you how it went. I was just very honest and upfront. I'm almost sure I won't be awarded it, but as I have said previously you wouldn't look at me and think I had anything wrong. I told them that depending on the day/time I can do most things that normal people can do even though I may pay for it later. I had the physical, which is nothing my neurologist has not done before and that was over in minutes. It's difficult to put across that if i was having a bad day I couldn't have even got there let alone done all that.
    They were quite thorough in asking me questions and also the trick questions as well. I asked them why they asked if i could use a phone/tablet and she said that would show i had good dexterity in my hands, which i have never claimed otherwise. She also told me the exact distance i had walked to get to her office lol.
    Anyone know how long it takes to hear from the DWP?
    Many thanks for all the help so far!
    • Muttleythefrog
    • By Muttleythefrog 28th Mar 17, 11:05 PM
    • 9,157 Posts
    • 17,112 Thanks
    Muttleythefrog
    Hi everyone,

    I had my assessment today but couldn't tell you how it went. I was just very honest and upfront. I'm almost sure I won't be awarded it, but as I have said previously you wouldn't look at me and think I had anything wrong. I told them that depending on the day/time I can do most things that normal people can do even though I may pay for it later. I had the physical, which is nothing my neurologist has not done before and that was over in minutes. It's difficult to put across that if i was having a bad day I couldn't have even got there let alone done all that.
    They were quite thorough in asking me questions and also the trick questions as well. I asked them why they asked if i could use a phone/tablet and she said that would show i had good dexterity in my hands, which i have never claimed otherwise. She also told me the exact distance i had walked to get to her office lol.
    Anyone know how long it takes to hear from the DWP?
    Many thanks for all the help so far!
    Originally posted by Ron2017
    I would expect a decision to be taken in weeks rather than days... but probably not that many weeks. What you could do in the meantime is tomorrow call the DWP and ask for a copy of the assessment report.. the PA4 consultant report. That will tell you how the assessment went and will detail the descriptors (disabilities) that were deemed applicable. The DWP will likely use this report as their primary evidence in making a decision... and in many if not most cases their decision will replicate it. Give any updates here and people will no doubt offer advice.
    Last edited by Muttleythefrog; 28-03-2017 at 11:08 PM.
    "Do not attribute to conspiracy what can adequately be explained by incompetence" - rogerblack
    • retro2016
    • By retro2016 29th Mar 17, 7:35 AM
    • 1 Posts
    • 1 Thanks
    retro2016
    Look up vasovagal syncope on Wikipedia. There are a lot of variations on this, but it seems very difficult to get a diagnosis. I suffer from a similar condition that, although more frequent than you describe, seems very similar. It took almost 2 years to diagnose as in my case it was the brain function not working correctly, rather than a problem with the heart, and this is apparently very unusual. I did find, though, that cardiologists seem slightly more familiar than neurologists and a tilt table test is certainly the way to go to get them to take you seriously. I did get awarded DLA, though, once finally diagnosed as none of the available treatments worked in my case. I am now transitioning to PIP, which means more explanations to people who have never heard of this condition and tend to put the problems down to conditions they have heard of rather than do any research.

    Good luck in any case.
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