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  • FIRST POST
    • pollyanna 26
    • By pollyanna 26 11th Sep 16, 9:56 PM
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    pollyanna 26
    OS ways and Poor Health
    • #1
    • 11th Sep 16, 9:56 PM
    OS ways and Poor Health 11th Sep 16 at 9:56 PM
    Earlier today I joined a very good new thread on getting back to old style ways . I managed to take it in another direction by mentioning how ill health can impact on doing everything the old style way . As this was off topic to the original post . I will be posting on the original topic but without going off in another direction
    This seems to happen a lot of the time across the threads as many old stylers do have to cope with this problem .
    Many moons ago PREPARE AT HOME began a lengthy thread on being os with health problems and there have been a couple of other threads over the years .
    I am wondering if the time is right for another thread on the subject with the proviso it is not offering advice on medical subjects as that is for the professionals . We all do many things day to day to minimise fatigue and pain and though they are little things we have developed them to cope and others may not be aware of how helpful the little changes can be .
    I would be interested to see if others would like to join such a thread . I am not very techie as you will gather from my rambling post and have never started a thread before - I hope this posts !
    polly
Page 74
    • pollyanna 26
    • By pollyanna 26 2nd Dec 17, 9:13 PM
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    pollyanna 26
    Very familiar with brain fog spelling and words . Can see the word in my head but can't carry it to the keyboard .

    I knew you'd be stressing about tomorrow so remember we and others will be beside you all the way in spirit and support .

    We've found it depends on who does the scans . The ones for barbotage were done by the specialist who did the procedures at two later dates so he could give an instant diagnosis and view of the screen to confirm . Some staff don't have the qualifications to discuss results .

    The whole awful scenario on Wednesday was like a very bad farce .
    Doesn't inspire any confidence when you are better informed than a Consultant . We'll start with our Dr on Friday . I've suggested we bullet point this and dd hands it to the Dr to save his ears and any confusion . He already had set a plan in motion for some talking therapy in the surgery as dd was starting to struggle and the old agrophobia was creeping back .
    I hate feeling angry so we're trying to look for solutions . We can't change what happened but we'll make sure it wont happen again .
    I can still see dds arm being bent and forced up her back and that is unacceptable .

    And breathe . Good luck and decent weather tomorrow . Try to get some sleep if you can .

    polly xx
    • Wednesday2000
    • By Wednesday2000 3rd Dec 17, 1:26 PM
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    Wednesday2000
    .
    It just went on and on . DD was stressed , in pain and exhausted and burst into tears . Lo and behold the Dr went to fetch the Consultant who should have been present .
    Downhill from there . No she can't prescribe for pain because dd shouldn't have pain with PsA ( contrary to all symptoms of the disease ) Long lecture on Calcification for Dummies . We found all that information over a year ago when Rheumo weren't responding .
    The whole tone was try harder , exercise hard and push yourself on . Throw in lecture designed for drug addicts and dd left the room in tears . I'd followed the whole thing all the way through and it was nasty , judgemental and damaging for someone trying to cling to a few shreds of self belief or validation ,
    Originally posted by pollyanna 26
    God, that sounded bluddy awful! I'm sorry you both had to go through that.xxx


    Still - I managed to get to the posh afternoon tea last week...and this was with a couple of lovely supportive people (one in particular is just so understanding!)...it was a really nice afternoon....
    Originally posted by Prinzessilein
    That sounds lovely.

    I am trying (and failing) to not think about tomorrow; I am beyond scared; specially as you can bet your boots they won't tell him anything; they'll just do the CT scan and sent it along to the consultant. Not looking forward to driving again, either; but we did a recce yesterday and know where we need to go, and I have taken detailed notes of where to turn, which way, and also the names of the roundabouts so hopefully I shan't get lost.
    Originally posted by LameWolf
    I hope it goes okay.xxx
    "It doesn't cost any more to dream big."
    • LameWolf
    • By LameWolf 3rd Dec 17, 2:28 PM
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    LameWolf
    CT scan all done; as we suspected, there's no information for Mr LW, it will all go to the consultant for him to look at. We just have to wait for appointments for the other two tests now.

    I managed the drive reasonably well; I didn't park back in our driveway when I got home, I parked by the hedge at the bottom of the close, because next door have relatives over most weekends, as well as two large cars themselves, neither of which has ever seen the inside of their garage, and they park so selfishly that I can't reverse out of our driveway without help. I suspect their son was somewhat put out, but tough - if he parked prettily to start with, there wouldn't be a problem.
    I was shaking like a leaf by the time I got back to the horse-piddle to collect Mr LW, though.
    LameWolf
    If your dog thinks you're the best, don't seek a second opinion.
    • Tink_04
    • By Tink_04 3rd Dec 17, 5:24 PM
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    Tink_04
    Afternoon everyone!

    Sorry Iíve been missing for a while - Iíll catch up properly soon.

    Had the living room and dining room decorated and it looks amazing! Really homely and like itís ours now. We got new curtains and cusions too and managed to get the tree up this weekend too so Iím really happy with it - feels like we are making progress now!

    We also got a new car which is so much bigger than the old one and is great for getting the kids around, I didnít like driving in the snow still tho but it did just come down so think and fast I donít think anything would have made me feel ok driving in it. We did get to use our £5 bargain snow shovel for the drive way tho so it was all cleared for me going out the next day.

    Iíve been struggling a bit not poorly as such just no energy and finding it difficult to get things done. Suppose itís the time of year and I have had a lot of with the house but itís just been hard to put one foot in front of the other recently!

    I was thinking about things I already do to make my life easier and thought Iíd go over stuff I do to Help me out when Iím like this.

    * online shop (I hate it) but it ticks the box and means I donít have to go out on my days off or after work.
    * pre prepped veg, diced meat etc all ready to chuck in the SC
    * prep meals the night before, put everything in a zip lock bag so itís ready to chuck in the SC before work
    * washing machine timer so I didnít forget to put it on
    * easy kids meals! Extras from the freezer or jacket potatoes/fee prepared mash for £1 is my life saver - 2 mins in the microwave and itís a nice warm tea for them
    * meal plan (I try my best) and prep as much as I can in advance either by batch cooking loads and having freezer meals ready or getting everything ready to chuck in.
    * stand by plans! Frozen pizza - frozen pie - ready made pasta - anything that cooks easily so we donít have to eat cereal for tea!

    I do try really hard but I can feel it slipping a lot - we have had turkey dinosaurs twice this week!!

    Work is not so bad Iím only there a few days a week so I get a lot of time I just feel like things are starting to build up again! Anyway thatís enough ranting from me Iím off to catch up with how everyone else is doing!!

    Tink x
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    • pollyanna 26
    • By pollyanna 26 5th Dec 17, 7:34 PM
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    pollyanna 26
    LW Glad to hear you survived the hospital trip , ok slightly shaken and stirred but you did it . Any sign of the other dates yet ? I'm sure once you both know how things are you'll be better able to cope .

    Tink you seem to be managing ok in view of your health . The odd quick bung it in meal is sometimes better than pushing too hard when you're exhausted already . Once the holiday is over and the children go back to school it might be worth looking at one of the few blogs I follow Mortgage free in three . I'm not sure if I've mentioned it before on here but there are loads of quick cheap recipes on there you can search her site via the headings at the top of the page . She's probably well known to others here as she used to post on the forums ( Memory Girl aka Elaine )
    My mentioning the stormy weather shawl reminded me as the pattern is in the make do and mend section along with upcycling furniture and lots of other things including crafts . She comes and goes according to how busy she is but most of her stuff is on the blog .

    Has anyone seen Cranky at all ? I've been wondering how she is .

    How are you AOT ? I know you read along but you've had some cold days in your neck of the woods lately .

    Wednesday and candy you sound to be managing well . It's amazing how you turned things around candy , you sound like a different woman .

    Thinking of you all . The letter from the awful appt was delivered yesterday and whatever planet that woman's on isn't ours . Lies and damn lies describes it best . Dr will have received his copy at the same time so plans are in progress , emails have been flying back and worth . Drs appt is Friday morning so bring it on .

    I was doing my moongazing in the early hours a few days ago with a clear view of that special moon . I thought of you all especially LW and her husband . At such times special and powerful things can happen .

    Take care
    polly x
    • Wednesday2000
    • By Wednesday2000 6th Dec 17, 9:53 AM
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    Wednesday2000
    I'm doing okay. I was thinking of stopping therapy as I felt like I was feeling better, but I felt very upset after the last one and the therapist was saying she thought it was too early to stop. I will probably carry on for a while. I have one more session before Christmas and then a break so I will see how I'm feeling next year.

    I'm still taking melatonin and Lyrica at night and they are both working well for me. I think I have found the winning formula with those two for sleep and pain.

    I realised that my migraines were down to low iron as doctor confirmed what I read online. I've been supplementing for a week or two and am going to get a blood test on Friday. My doctor said he was going to check for all the things fibro patients are usually checked for. I'm not sure what they all are? Lol, but a lot of the boxes were ticked on the blood test form he gave me. I hope my vitamin D is up as I have been supplementing for a long time now.

    I threw away the CBD oil as I really couldn't face taking it and had nobody to donate it to, it would be a bit gross as my mouth had been around the dropper anyway! My husband couldn't take it as he gets random drug tests at work.

    Gentle ((hugs)) to all.
    "It doesn't cost any more to dream big."
    • CRANKY40
    • By CRANKY40 6th Dec 17, 11:06 AM
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    CRANKY40
    I'm mooching around the boards thank Polly. Not much to say healthwise, just same old, same old as far as my leg is concerned. It will get better, it's just going to take a long time because I can't have compression. In the mean time I'm doing the next best thing as encouraged by the nurse which is moving as much as possible.

    Today I'm putting the Christmas tree up. It's one of my most hated jobs and the friend who was supposed to help me bailed on me when I didn't fancy her suggestion of a walk round the outlet village first. My leg is sore, I don't need anything and I don't like shopping. We also wouldn't actually have had time to do my tree at the end of it as she has to be somewhere else by 1pm. The HT gave me a hand bringing everything downstairs. It's very useful that he's now taller than me

    Take care all of you
    • candygirl
    • By candygirl 6th Dec 17, 7:01 PM
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    candygirl
    I'm doing okay. I was thinking of stopping therapy as I felt like I was feeling better, but I felt very upset after the last one and the therapist was saying she thought it was too early to stop. I will probably carry on for a while. I have one more session before Christmas and then a break so I will see how I'm feeling next year.

    I'm still taking melatonin and Lyrica at night and they are both working well for me. I think I have found the winning formula with those two for sleep and pain.

    I realised that my migraines were down to low iron as doctor confirmed what I read online. I've been supplementing for a week or two and am going to get a blood test on Friday. My doctor said he was going to check for all the things fibro patients are usually checked for. I'm not sure what they all are? Lol, but a lot of the boxes were ticked on the blood test form he gave me. I hope my vitamin D is up as I have been supplementing for a long time now.

    I threw away the CBD oil as I really couldn't face taking it and had nobody to donate it to, it would be a bit gross as my mouth had been around the dropper anyway! My husband couldn't take it as he gets random drug tests at work.

    Gentle ((hugs)) to all.
    Originally posted by Wednesday2000


    Omg threw it away?,!! I'd have bought it off you n paid postage 😣.
    Yea POLLY, I feel like a new woman.Amazing what the right medication can do eh?
    Healing vibes n (((huggles ))) to all xxx
    "You can't stop the waves, but you can learn to surf"

    (Kabat-Zinn 2004)
    • LameWolf
    • By LameWolf 6th Dec 17, 7:21 PM
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    LameWolf
    LW Glad to hear you survived the hospital trip , ok slightly shaken and stirred but you did it . Any sign of the other dates yet ? I'm sure once you both know how things are you'll be better able to cope .
    Originally posted by pollyanna 26
    No more dates yet; we just have to be patient, I guess. And of course it's so close to Xmas....
    It was a good thing for me to drive; Mr LW has said we should make a point of going out somewhere I can cope with once a week, but to me that's "driving for the sake of it" and I don't feel I want to do it - whereas the hospital trip was necessary, so easier for me to "just get on and do it" if that makes sense.
    I was doing my moongazing in the early hours a few days ago with a clear view of that special moon . I thought of you all especially LW and her husband . At such times special and powerful things can happen .
    Originally posted by pollyanna 26
    Indeed; I always speak politely to her, even if I can't see her for cloud cover.
    Today I'm putting the Christmas tree up. It's one of my most hated jobs and the friend who was supposed to help me bailed on me when I didn't fancy her suggestion of a walk round the outlet village first. My leg is sore, I don't need anything and I don't like shopping. We also wouldn't actually have had time to do my tree at the end of it as she has to be somewhere else by 1pm. The HT gave me a hand bringing everything downstairs. It's very useful that he's now taller than me
    Originally posted by CRANKY40
    Aww! Some friend! A WALK round the village outlet, on your poorly leg??
    Shame I'm nowhere near you, I'd have helped, and got Mr LW to help, too.

    I'm dogless for the next ten days; Daisy went home today, and next in is Ronnie, on Dec 16th. So we've been out for lunch; it was Mr LW's birthday yesterday, but he took a raincheck til today so that we didn't have to leave Daisy on her own unnecessarily.
    I'm completely exhausted now, but Mr LW enjoyed it, so it was worth it.
    LameWolf
    If your dog thinks you're the best, don't seek a second opinion.
    • Wednesday2000
    • By Wednesday2000 6th Dec 17, 7:38 PM
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    Wednesday2000
    I have been reading about fibro and weight lately. I have read that some fibro patients have been told to lose weight by unsympathetic doctors as a "solution" to fibro.

    I am overweight at the moment. I have gone up and down since my teen years and I do know I need to lose some weight. A lot of the things I have done since I was diagnosed in the summer like vitamins, meds, stretching, mindfulness etc... have helped. However, I haven't lost any weight since then so I don't think that is in any way related to my pain problems.

    Omg threw it away?,!! I'd have bought it off you n paid postage ��.
    Originally posted by candygirl
    Ew, that is a joke, I hope?

    I wouldn't send it to a stranger if I had my mouth and tongue on the dropper, lol.
    "It doesn't cost any more to dream big."
    • pollyanna 26
    • By pollyanna 26 6th Dec 17, 9:04 PM
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    pollyanna 26
    Wednesday EMDR is pretty back and forward and leads to ups and downs . You seem to have a positive session and then a negative one next time which seems to be how it works . The one before Christmas could be one that makes you feel lighter and more uplifted . It's something to discuss either near the end of this next session or in the new year with the therapist . It depends how things go but to get partway can be damaging if you walk away partway through . You do have choice so you have time to weigh up options .
    It isn't everyone's experience but Lyrica has been very effective for dd.
    Re weight , it's worth looking at the meds you are taking as some can lead to weight gain . DD had a problem before the gall bladder was finally removed . She was unable to keep food down for nearly a year and already on Metformin for some years . Our Dr had to take off the med as it was making her gain weight which was making the situation worse .
    She's weighing uo Melatonin herself at the moment . Iron levels are fine and the constant bloods monitoring means things are flagged quickly and sorted by the GP .

    I'll be back in a bit if I done keep this shortish it's likely to head for a black hole .
    pollyx
    • pollyanna 26
    • By pollyanna 26 6th Dec 17, 10:09 PM
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    pollyanna 26
    Nice to see you Cranky . Hope you managed the tree with the help of the HT . That shopping trip sounds a really bad suggestion coupled with the fact it wouldn't leave time to do the tree as originally offered sometimes people can be very odd .
    I suppose the only positives you can take from the fall down the stairs are the knowledge you now have about how you react to many things which is useful and the joy of raising a lovely, caring young man .
    Stay warm it's not looking too good weatherwise for the NW for the next few days .xx

    LW I understand about driving driving for the sake of it . Mr LW probably thinks it will help you but with the solstice coming up and winter on the way it's not a good time of year to be on the roads unless urgent . Add in the Christmas frenzy and the roads will be very busy . I'm still trying to work out when to work out when to stock up on important basics without too much hassle . Everything is way below the usual stores as other things have meant being out of normal routine .
    Is the desktop back now ? The laptop has been back to the techie again today , problems getting into my emails , They couldn't either . When i got home I waited until 8pm and tried again and logged in first try . It has to be something connected to the Mozilla update .
    I;m glad Mr LW enjoyed his birthday and yes clouds or not i look at the moon , she is still there and in an often cloudy NW it was clear .

    You sound much happier candy .

    Really tired so I may aim for an unusually early for me night . Sleep has been rubbish lately . I have a basket of books for the winter by the bed and seem to have read nearly all of them and it's not even winter !

    Thinking of AOT , maddie , pauline , Prinzess and her mum , elona and all who post or follow .

    Sleep tight
    polly x
    • candygirl
    • By candygirl 6th Dec 17, 10:21 PM
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    candygirl
    I have been reading about fibro and weight lately. I have read that some fibro patients have been told to lose weight by unsympathetic doctors as a "solution" to fibro.

    I am overweight at the moment. I have gone up and down since my teen years and I do know I need to lose some weight. A lot of the things I have done since I was diagnosed in the summer like vitamins, meds, stretching, mindfulness etc... have helped. However, I haven't lost any weight since then so I don't think that is in any way related to my pain problems.



    Ew, that is a joke, I hope?

    I wouldn't send it to a stranger if I had my mouth and tongue on the dropper, lol.
    Originally posted by Wednesday2000
    Ah right I don't sctually touch my mouth with the dropper, so didn't think about that
    "You can't stop the waves, but you can learn to surf"

    (Kabat-Zinn 2004)
    • ArthriticOldThing
    • By ArthriticOldThing 7th Dec 17, 10:59 AM
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    ArthriticOldThing
    Thanks for thinking about me Polly. I do read most days. Had a very busy time last week of November and just can't seem to refill the spoons.
    Try not to moan as there are many on this thread in worse position.
    Use it up, Wear it out, Make it do, Do without.
    • Wednesday2000
    • By Wednesday2000 7th Dec 17, 11:37 AM
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    Wednesday2000
    Re weight , it's worth looking at the meds you are taking as some can lead to weight gain . DD had a problem before the gall bladder was finally removed . She was unable to keep food down for nearly a year and already on Metformin for some years . Our Dr had to take off the med as it was making her gain weight which was making the situation worse .
    She's weighing uo Melatonin herself at the moment . Iron levels are fine and the constant bloods monitoring means things are flagged quickly and sorted by the GP .
    Originally posted by pollyanna 26
    Yes, I know that Lyrica can cause weight gain and I have been trying to monitor my weight. I know I gained weight when I was put on antipsychotics back in 2009, I think. One thing I did notice even back them was that they worked with relieving aches and pains in my body. I did see in the Fibro manual that low dose antipyschotics is one of the meds she recommends for fibro.

    I actually worked out yesterday looking back at my notes where I keep my weight and blood test results that I am 21 lbs down from last December. I was really overweight back then as that was when I wasn't sleeping hardly at all and comfort eating a lot.

    I will tell the doctor about the weightloss next time I see him as I only started seeing him around April. Thinking about it that weightloss isn't that bad considering I haven't been able to exercise.

    I would like to lose at least 30 lbs more next year which should be achievable. I would like to see if losing weight would help with joint pain.

    I hope everyone is keeping warm, it's almost like a gale out there today. Pouring with rain too.
    "It doesn't cost any more to dream big."
    • Wednesday2000
    • By Wednesday2000 7th Dec 17, 11:37 AM
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    Wednesday2000
    Ah right I don't sctually touch my mouth with the dropper, so didn't think about that
    Originally posted by candygirl
    Yeah, I didn't think you would want it!
    "It doesn't cost any more to dream big."
    • LameWolf
    • By LameWolf 7th Dec 17, 2:06 PM
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    LameWolf
    Is the desktop back now ?
    Originally posted by pollyanna 26
    No, still no desktop pc. Actually, I am fuming - after nine days and an ignored email asking for a progress report, Mr LW rang them on Friday; he was told the service dept was all busy and someone would ring back; they didn't. So he called again on Monday, and this time was told that they had managed to damage the motherboard when they took the pc apart for inspection, so they have now to try and get another the same from the manufacturers. Bottom line is it will be AT LEAST another week.

    Fwiw, we have two browsers on the laptop (and on the desktop) - so if Furryfox isn't playing nicely, we just use Chrome instead.

    I thought I was going to get away with not putting up any tat decs this year - I really just cba to be honest; but Mr LW started mithering on about going up to the loft to fetch them, so I guess I shall have to bite the bullet. The upside is that I said we'd need to go round all the tops of the walls and the light fittings with the sheep-onna-stick first, and he's doing that as I type.
    I've also been informed that he wants to go and see the new Star Wars film *groan* - it'll have to be Thursday or Friday next week (it comes out on the Thursday) because Ronnie the JRT arrives on the Saturday for a 20-day stay.
    LameWolf
    If your dog thinks you're the best, don't seek a second opinion.
    • lessonlearned
    • By lessonlearned 7th Dec 17, 4:21 PM
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    lessonlearned
    FYI. Holiday vaccines and fibro are not a good mix......

    Chemist warned ďthere might some slight joint pain and muscle achesĒ.

    Understatement of the year....

    Sorry canít type more.....hope all is well.
    • Prinzessilein
    • By Prinzessilein 7th Dec 17, 6:31 PM
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    Prinzessilein
    Afternoon folks...my sympathies are with those who have meds that 'may cause weight gain'.....in my experience 'may' can be read as 'absolutely and most assuredly will'.

    I am finally - and very slowly winning the battle...giving up meds is not an option, so a complete lifestyle rethink was needed. (As I have stated on other threads I was put on meds in my teens that started the weight gain....meds that are now no longer prescribed to people.....and after YEARS....decades?....of weight issues I have finally found a way of eating that works for me...and I guess that is all one can ask for!)

    My Christmas Decorations are up...I did a little and had help for the rest!...My Nativity Scene is actually up all year....No candles for me (well....quite a few candles actually...all battery operated!)...as matches are a real safety issue for me.

    Hope everyone is keeping warm...and reasonably strong!
    • Tink_04
    • By Tink_04 7th Dec 17, 7:06 PM
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    Tink_04
    Hi everyone!

    Thanks Pollyanna Iím trying to pace myself best I can, the blog sounds like a good read, I do try and be as organised and prep as much as I can but Iím terrible if Iím tired and just buy when ever is easiest to do for tea - I paid £2 in Tesc0 for 2 jacket potatoes with cheese in that you put straight in the oven and I have potatoes and cheese at home I was just exhausted and needed to feed the kids some days Iím great and we are all eating amazing and other days Iím on the floor and we are paying £20 ordering pizza - maybe I should look at this more in the new year? itís been a hard week and Iíve had a water infection too :/

    I have my treatment at hospital tomorrow, I go in for the day every 4 weeks and get my medication via a drip so itís a long day. Itís amazing stuff tho and Iíve been on it for nearly 4 years, my other medication is more iffy tho! The pregabilon for the pain is very strong and Iím often drowsy with it (and Iíve gained 3 stone in 4 years!) Iím on a few different meds and get them packed in cassette type things to help me remember and because my hands donít work.

    Iím nearly done with Xmas and Iím looking forward to the food part too, Iím going to get a frozen turkey crown and make up and freeze my pigs in blankets so they are all done, then itís just veg and potatoes as Iím not making loads of different things. Going to do prawns to start With smoked salmon and I just need to sort a dessert out!

    Hope everyone is plodding along and enjoying the dark cosy nights
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