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  • FIRST POST
    • pollyanna 26
    • By pollyanna 26 11th Sep 16, 9:56 PM
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    pollyanna 26
    OS ways and Poor Health
    • #1
    • 11th Sep 16, 9:56 PM
    OS ways and Poor Health 11th Sep 16 at 9:56 PM
    Earlier today I joined a very good new thread on getting back to old style ways . I managed to take it in another direction by mentioning how ill health can impact on doing everything the old style way . As this was off topic to the original post . I will be posting on the original topic but without going off in another direction
    This seems to happen a lot of the time across the threads as many old stylers do have to cope with this problem .
    Many moons ago PREPARE AT HOME began a lengthy thread on being os with health problems and there have been a couple of other threads over the years .
    I am wondering if the time is right for another thread on the subject with the proviso it is not offering advice on medical subjects as that is for the professionals . We all do many things day to day to minimise fatigue and pain and though they are little things we have developed them to cope and others may not be aware of how helpful the little changes can be .
    I would be interested to see if others would like to join such a thread . I am not very techie as you will gather from my rambling post and have never started a thread before - I hope this posts !
    polly
Page 58
    • LameWolf
    • By LameWolf 1st Oct 17, 1:17 PM
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    LameWolf
    MM there are some no-fly cruises; we've been on two, both departing from and returning to Tilbury. Flying when you are dependent upon a wheelchair is too much of a faff to be worthwhile, imho.

    Also, if you have mobility issues, you need to choose your ship carefully; we traveled on MV Magellan both times, which can accommodate wheelchair-users; and has the added advantage of being adults-only cruising.

    The first time we saw the Solar Eclipse and visited Iceland and the Faroe Islands, and the second time we did a cruise of the Norwegian Fjords.
    LameWolf
    If your dog thinks you're the best, don't seek a second opinion.
    • maddiemay
    • By maddiemay 1st Oct 17, 1:41 PM
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    maddiemay
    LW - thank you. (just typed a response and lost it to the ether)

    did a Baltic Cruise from Tilbury on Marco Polo and hoping to see the Fjords before too long (subject to RA treatment etc). Cruise and Maritime would not accept our booking when I was having tests for some heavy health stuff so our planned Norwegian Fjords cruise a couple of years ago could not happen. Now have diagnosis for that problem and more recently RA, so hopeful of feeling well enough and getting reasonably priced insurance, we may try again for the Spring
    • lessonlearned
    • By lessonlearned 1st Oct 17, 2:02 PM
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    lessonlearned
    I love the Magellan. What I call “faded elegance” but she’s still a grand old lady. Very comfortable. Not been on the Marco Polo but my friend really rates her and although she’s a small ship she is apparently well suited to the Atlantic runs.

    I am actually going on the Columbus this time, one of CMVs new ships. She looks nice.

    I am sailing from Tilbury but CMV have opened up new routes and now sail from Bristol, Liverpool, a couple of ports on the east coast, a couple in Scotland and I think it’s Cobh in Ireland, so really making it easy for those of us who don’t care to fly.

    I don’t know if I have mentioned it but I am actually booked on a “bucket list cruise” in January.......to the Amazon. The big one. Fulfilling a lifetimes ambition. sailing on the Magellan.

    Wahoo. And joy of joys - no flying. Six weeks on the High Seas.
    • lessonlearned
    • By lessonlearned 1st Oct 17, 2:08 PM
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    lessonlearned
    Maddie......what a shame you missed out last time. I do hope you get well enough to travel in the spring. It will do you the power of good.

    I shopped around and managed to get a good annual policy for £135. This includes the extended Amazon trip and had a small loading for my diabetes. So I thought that was pretty good.

    I’m not diabetic any more so hopefully next year my insurance should be even cheaper.
    • candygirl
    • By candygirl 1st Oct 17, 3:49 PM
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    candygirl
    https://nursingnotes.co.uk/gabapentin-pregabalin-set-become-controlled-drugs/
    Not quite sure of the implications of this, for those of us on Lyrica or Gabapentin 😣If they stop my tablets, I will be almost immobile though 😣
    LL , have a fab cruise hun, n try n update us with your adventures
    Having a lazy day with the pooches today.Might watch a film later.Saw "I Daniel Blake " the other day n cried buckets 😣
    I'm having a "big" birthday next week.Going out for a family meal on the day, but feel curiously blank about it all.Think I need a good slap tbh
    "You can't stop the waves, but you can learn to surf"

    (Kabat-Zinn 2004)
    • pollyanna 26
    • By pollyanna 26 1st Oct 17, 4:59 PM
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    pollyanna 26
    I'm replying to Candy's post first as i haven't read back yet . We had heard of the possible reclassification of both Lyrica and Gaba . It may not be a negative move as both those drugs have possibility but not probability of addiction . My dd already takes two controlled drugs and has done for a number of years with no problem .
    The important thing is the level of monitoring by GPs . In a good scenario the drugs and their effects both physically and mentally will be watched carefully . Some can't access that level of regular care and as no-one is assessing whether they are still appropriate or needed may become dependent without good cause .
    Daniel Blake the dvd is still sitting by the tv . I watched a little as I am an admirer of Ken Loach from the time he wrote Cathy come home and inspired the setting up of Shelter .
    It is upsetting and to be honest we aren't those that need to made aware of what is happening . We in our various ways learned the hard way . Sadly those who need a wake up call wont be interested or care .
    I hope you enjoy your birthday whatever you do
    polly x
    • Tink_04
    • By Tink_04 1st Oct 17, 6:43 PM
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    Tink_04
    Hi everyone - I've not managed to reply in a while but I have been reading and catching up!

    A few pages back some people mentioned support groups and that they had not had a good experience with them, I'd just like to add in that not all are like that and I attended and excellent on for MS where we have coffee mornings, parties and days out etc! My daughter also benefits massively from the young Carers association which has changed her life a lot. I know some groups might not always be like this but I'd hate anyone to read the negative and be put off trying a support group!

    I'm not doing great but not too bad either! I've been back to work for a month and I'm still on a phased return which helps me massively, the kids have been back to school and after school activities too and I'm managing with meal planning and batch cooking (just) but the house work and washing is drowning me! With the wetter weather I can get nothing dry and I'm just too tired to attempt to clean up other than a general wipe round. I'm hoping I can get a little done this week while the kids are at school but I have appointments to go to as well.

    My gluten free has had a slip up and I feel rotten again but will keep trying! Think I'm getting cold again which is not good!

    Hope everyone is well and plodding along
    P.A.D challenge 2017
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    • pollyanna 26
    • By pollyanna 26 1st Oct 17, 8:07 PM
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    pollyanna 26
    First of all as she may be planning a long soak and an early night i want to wish Bon Voyage to LL . The initial apprehension will quickly fade and I expect you to lead the classiest conga ever around the main deck
    Hopefully the Pain Pen wont feature too much but it's a good test if needed .
    I'm not a huge adventurer but one place I've always wanted to see is Norway and the Fjords . I have in true Monty Python fashion pined for them since 5th Form when I first really saw the beauty .
    It's interesting to note no fly cruises and I'm sure you've some lasting memories LW . Well done on the cards in advance , may I ask what a PDA is? I suspect it's something techie , useful things generally are .
    Nice to catch up Tink. I'm glad your MS support group was helpful and supportive . I think the negatives were around the social aspects rather than other matters . Some raise your spirits but some make you search for the exit .The phased return to work has certainly helped you and as for the housework do only what is totally necessary . With appointments coming up concentrate your energy there . Fingers crossed the cold doesn't develop .
    Well the old memory is playing up once more . I think caronc may have finally reached retirement so wish her well . I hope the legs are improving AOT although the weather isn't conducive to much time outdoors . I've battened down once more and with a bit of luck it will all be a storm in a tea cup , no pun intended .
    Sending healing vibes to cranky.
    I was going shopping Friday and didn't was going to tomorrow but still a "wee bit wabbit" Nausea and dizziness have gone and back on the Yorkshire Tea but I feel washed out .Looks like Tuesday then . Thank goodness for store cupboards and freezers .
    Hope all are well .
    polly x
    • CRANKY40
    • By CRANKY40 1st Oct 17, 10:09 PM
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    CRANKY40
    Thanks for the healing vibes Polly, they're still very much needed. It sounds like you could do with a few yourself. Hugs
    • pollyanna 26
    • By pollyanna 26 1st Oct 17, 10:17 PM
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    pollyanna 26
    Thanks for the healing vibes Polly, they're still very much needed. It sounds like you could do with a few yourself. Hugs
    Originally posted by CRANKY40
    I really hope things start to improve for you soon . I'm ok , more a bit run down really .My eyes and ears have been on Manchester today , not via MSM . Head is whizzing so I'm trying to get in the mood for sleep . Not really thread related but the people are singing in the way of Les Mis .
    polly x
    • candygirl
    • By candygirl 1st Oct 17, 10:48 PM
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    candygirl
    Thanks Polly , n hope you feel a bit better tomorrow ❤I've been using the perskindol n it's helping my knees a bit 😁
    You're wise to avoid watching the film if you're not up to it .
    Healing HUGGLES to all xx
    "You can't stop the waves, but you can learn to surf"

    (Kabat-Zinn 2004)
    • maddiemay
    • By maddiemay 2nd Oct 17, 8:02 AM
    • 3,123 Posts
    • 27,451 Thanks
    maddiemay
    Good morning, hugs and spoons to all that need/want them. Up early this morning, OH and I are intending a visit to a local NT property to enjoy the Autumn colours, need a shower and hairwash first (prefer to do hair later in day when arms and shoulders are more biddable)

    Life has been a bit fraught of late, 2 weeks today mother was admitted to hospital with what seems to be wandering gall stones! the staff were kind, but hospital is in special measures and struggling, my DSis packed all m's regular medication, but it was still Thursday night before they sorted out the paperwork and dispensed her own meds to her She came home on Wednesday, complete with a catheter and accouterments and is due back in this Wed to have the stones sorted. (will believe it when she is actually in a bed). Meanwhile central heating at her house decided to play up etc, etc.

    I stayed for 3 days 2 nights and DSis has done the same at weekend, last night was first night on her own, so I didn't sleep very well again. We were pretty mad that a women in her 80's came home without being able to deal with the catheter etc (bad arthritis, limited movement and mobility), then she told me that she had refused to go to community hospital and told them she was going home, could have strangled her (well just for a millisecond) and read her the riot act for the future, if she does this when she is even more poorly it will take forever to get a care plan going.

    I hope that this does not sound too mean of me, but all 4 siblings are still at work and I am crackered with now 3 medical conditions, pain, fatigue etc.

    Yesterday I managed to make a new recipe GF loaf, it is dense and brick like, but tastes good, also a bolognaise bake for 2 meals and another mince base for the freezer, plus some apples, pears and blueberries morphed into a crumble for OH, today I am doing nothing other than vaccing up Miss Border Collie's hair and getting myself respectable looking (and mobile) for a day out

    Stay warm, dry and well everyone.
    MM
    • Wednesday2000
    • By Wednesday2000 2nd Oct 17, 9:19 AM
    • 1,150 Posts
    • 5,996 Thanks
    Wednesday2000
    https://nursingnotes.co.uk/gabapentin-pregabalin-set-become-controlled-drugs/
    Not quite sure of the implications of this, for those of us on Lyrica or Gabapentin 😣If they stop my tablets, I will be almost immobile though 😣
    Originally posted by candygirl
    I'm replying to Candy's post first as i haven't read back yet . We had heard of the possible reclassification of both Lyrica and Gaba . It may not be a negative move as both those drugs have possibility but not probability of addiction . My dd already takes two controlled drugs and has done for a number of years with no problem .
    The important thing is the level of monitoring by GPs . In a good scenario the drugs and their effects both physically and mentally will be watched carefully . Some can't access that level of regular care and as no-one is assessing whether they are still appropriate or needed may become dependent without good cause .
    Originally posted by pollyanna 26
    Oh, thanks for the information about that you two. I hadn't read about that, I've only just been on Lyrica for about 2 months now. I felt a bit loopy at first so I can see why people might abuse it.


    A few pages back some people mentioned support groups and that they had not had a good experience with them, I'd just like to add in that not all are like that and I attended and excellent on for MS where we have coffee mornings, parties and days out etc! My daughter also benefits massively from the young Carers association which has changed her life a lot. I know some groups might not always be like this but I'd hate anyone to read the negative and be put off trying a support group!
    Originally posted by Tink_04
    A positive review of a support group. It sounds like that they helped you and your daughter a lot.
    "It doesn't cost any more to dream big."
    • Tink_04
    • By Tink_04 2nd Oct 17, 9:56 AM
    • 822 Posts
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    Tink_04
    Morning!!

    It's really windy here today! DD is poorly and off school so that has scuppered my plans of going out - trying to think of something good to do for tea now? Might just be a chilli from the freezer or soup?

    My bathroom desperately needs cleaning so will see if I can tackle this later on as I'm not feeling like it this morning.

    Nearly killed myself resucing the recycle bin and it's contents that had blown across the garden - nearly ended up on the ground with the bin on top of me! It's now secured round the side with a brick on top!

    Sitting with a cuppa now!
    P.A.D challenge 2017
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    • LameWolf
    • By LameWolf 2nd Oct 17, 2:54 PM
    • 9,796 Posts
    • 105,427 Thanks
    LameWolf
    LW - thank you. (just typed a response and lost it to the ether)

    did a Baltic Cruise from Tilbury on Marco Polo and hoping to see the Fjords before too long (subject to RA treatment etc). Cruise and Maritime would not accept our booking when I was having tests for some heavy health stuff so our planned Norwegian Fjords cruise a couple of years ago could not happen. Now have diagnosis for that problem and more recently RA, so hopeful of feeling well enough and getting reasonably priced insurance, we may try again for the Spring
    Originally posted by maddiemay
    The Marco Polo is one of the ships that's no good for wheelchair users; I gather it has a little ledge to go over to get into the cabins; when we first started looking at Norway there was one that we fancied on the Marco Polo but the booking agent told us I wouldn't cope, so we stuck with Magellan.
    It's interesting to note no fly cruises and I'm sure you've some lasting memories LW . Well done on the cards in advance , may I ask what a PDA is? I suspect it's something techie , useful things generally are .
    Originally posted by pollyanna 26
    It stands for Personal Digital Assistant. It has an extensive diary facility (everything but everything goes in there as well as being written on the kitchen calendar), a task list section, it can cope with Word and Excel documents, there's a memo section, and an alarm clock. Mine is a Palm Tungsten E2; which I suspect is pretty much classed as an antique these days! The great thing is that if, for instance, i have a medical appointment, I can ask it to "cheep" at me however many minutes I choose in advance. And for things like annual payments - tv licence for instance - I can get a reminder days or weeks in advance if I wish. I'd be totally stuffed without it!
    ETA - I just found it listed on @mazon!!
    This is the same as mine: https://www.amazon.co.uk/Palm-1045MLZ-Tungsten-E2/dp/B00098Q4OY/ref=sr_1_2/259-4029251-8905349?s=electronics&ie=UTF8&qid=1506952558&sr=1-2&keywords=palm+-+tungsten+e2

    https://nursingnotes.co.uk/gabapentin-pregabalin-set-become-controlled-drugs/
    Not quite sure of the implications of this, for those of us on Lyrica or Gabapentin ��If they stop my tablets, I will be almost immobile though ��
    Originally posted by candygirl
    Don't panic!! (channelling Cpl Jones there).
    If your doctor says you need them, you'll still get them, you'll just have to sign the back of your prescription to say you've received a controlled drug, will be the only real difference. Oh, and they only issue a one-month supply at a time, whereas with the other meds they issue two months worth. At least, that's how it is with my morphine tablets.
    Fwiw they tried me on Gabapentin and it didn't suit me at all; I had awful side-effects, and am still, months and months later, not back to as good as I was before I took the stuff; like with so many things, though, it's "horses for courses" and if they suit you and make your life better, the change in status to a class C drug shouldn't be a problem.
    Last edited by LameWolf; 02-10-2017 at 2:57 PM.
    LameWolf
    If your dog thinks you're the best, don't seek a second opinion.
    • candygirl
    • By candygirl 2nd Oct 17, 5:18 PM
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    candygirl
    Thanks LW , I wasn't sure of the implications re controlled drugs.The Gabapentin knocks me out a bit, but takes a bit of the edge off the nerve pain , so i'm sticking with it for now 😑
    Huggles n healing vibes to all xxx
    "You can't stop the waves, but you can learn to surf"

    (Kabat-Zinn 2004)
    • CurlyTop
    • By CurlyTop 2nd Oct 17, 6:11 PM
    • 330 Posts
    • 1,751 Thanks
    CurlyTop
    Hi everyone

    I'm still here, not posting much but subscribe to the thread so I read all of your escapades/ tips/ strength and determination on a daily basis.

    It's a while since I posted and some of you may remember I have m.e. and fibromyalgia. It's been getting worse in recent months - probably not helped by being a civil servant (yep me too) and being run ragged.

    Anyway, a friend told me about www.infraredsaunaspa.co.uk which is the first of its kind in the UK. Basically imagine a little sauna for one with dry heat (perfectly acceptable to read a book in, wear your contact lenses, listen to music if you wish (I didn't), play on your phone (although why would you for heavens sake)). The pod has heated back, sides and floor so you have to wear a swimming costume/ bikini when you go in.

    I sat on the bench and just relaxed. I did lift my arms and put them against the sides to allow the heat to penetrate my elbows and wrists. There are infrared lights in the pod that correlate to the type of treatment you require - I chose a violet light for fibro but may try more the red light which gets to the muscles more. I came out looking pink and a little perspired shall we say. There is a shower to cool down and rinse rather than lather up and froo froo yourself. It is basic in terms of no mirrors or hairdryers and this allows them to keep the price low. They had found mirrors meant that people were taking longer to come out which was impacting on appointment times.

    At £10 for half an hour (that's the most you can have as any longer isn't good for your health apparently), I found this to be good value for money. I only paid a little over £8 due to a groupon voucher and discount because it was my first purchase. I plan on going again when they open their second shop nearer to where I live, as to be honest, this was a little hike to get there.

    Its three days since I had it and I do feel less stiffer I know this will ease off but up to now, it's been a welcome spell of relief. For those in Liverpool, it may be worth giving a go.

    Oh and btw, I hear that Lady Gaga swears by these - as she has recently talked about her fibromyalgia also. Oooh get me .... who knew I had the same taste. rotfl
    I got there - I'm debt free and intend to stay that way. If I haven't got the cash, it doesn't get bought. It's as simple as that.
    • CRANKY40
    • By CRANKY40 2nd Oct 17, 6:50 PM
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    CRANKY40
    Whereabouts in Liverpool please CurlyTop? It's a no no for me at the moment as I have to cling film my leg before i shower (long story) but it does sound good. One of the things that I dislike about this time of year is that I get so cold. This sounds like an interesting way to warm up as well as having other benefits.
    • candygirl
    • By candygirl 2nd Oct 17, 7:03 PM
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    • 104,842 Thanks
    candygirl
    Whereabouts in Liverpool please CurlyTop? It's a no no for me at the moment as I have to cling film my leg before i shower (long story) but it does sound good. One of the things that I dislike about this time of year is that I get so cold. This sounds like an interesting way to warm up as well as having other benefits.
    Originally posted by CRANKY40
    Iove the sound of this too
    My chemist said that hydrotherapy is sometimes available on the NHS , so am gonna ask the doc, if n when I manage to get an appointment next 🙄
    "You can't stop the waves, but you can learn to surf"

    (Kabat-Zinn 2004)
    • pollyanna 26
    • By pollyanna 26 2nd Oct 17, 7:40 PM
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    pollyanna 26
    Thanks Polly , n hope you feel a bit better tomorrow ❤I've been using the perskindol n it's helping my knees a bit 😁
    You're wise to avoid watching the film if you're not up to it .
    Healing HUGGLES to all xx
    Originally posted by candygirl
    Thanks Candy not too bad now I just need to get the shopping tomorrow . Not exactly keen as the weather has been foul since last night . Hoping it will be better tomorrow .
    Glad the Perskindol is relieving the pain somewhat . It isn't heavy duty but I find it does make a difference .
    polly
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