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  • FIRST POST
    AlwaysHappy
    Disabled Child - how do I get a social worker
    • #1
    • 21st Mar 13, 10:13 PM
    Disabled Child - how do I get a social worker 21st Mar 13 at 10:13 PM
    Not sure if this is the right place to post but thought it would be a good place to start. In a nutshell my son is now 15, registered disabled and functioning at possibly about an 8 year old level. Struggles with many things and yet we can't seem to access any support for him. I have heard about direct payments (I know this is changing) but when I tried last year to access any help was told that our family did not meet the criteria. I have M E myself and am struggling to cope with the worry of all the things we need to do to help him become independent. It would be super if we could get some sort of support (preferably nearer his age) to help integrate him into life and support his independent life skills learning. It is too big a task for us and I don't think its healthy for us to be his only support. Any suggestions? Many thanks.
    Sealed pot challenge member 205
    733.70 2014
    365 in 365 days member 29 60/365

    I'm not a failure if I don't make it, I'm a success because I :tried!
Page 1
  • Chocolate80
    • #2
    • 21st Mar 13, 11:44 PM
    • #2
    • 21st Mar 13, 11:44 PM
    I would go to your GP and ask him/her to refer you to your local child disability services. Alternatively, if you're impatient like me, you could phone social services and explain your situation.

    You will need to be strong with these people to make sure you get what you and your family need.

    I don't know much about direct payments but from what you've said you should be able to get some support for your son.
  • Witch Hazel
    • #3
    • 21st Mar 13, 11:47 PM
    • #3
    • 21st Mar 13, 11:47 PM
    You could ask your doctor or the school to refer him or equally just do it yourself. Phone your local social work dept.
  • Horseunderwater
    • #4
    • 22nd Mar 13, 6:08 AM
    • #4
    • 22nd Mar 13, 6:08 AM
    There are also charities often locally based that can help with referals as well or at least help you access the help.
  • CHRISSYG
    • #5
    • 22nd Mar 13, 7:23 AM
    • #5
    • 22nd Mar 13, 7:23 AM
    have you requested an assessment from your assessment direct team ? the info is on the councils website i would ring rather than email as my emails went unanswered.
    when i rang they arranged for someone to come out and discuss the issues, he was very good and got the situation/issues easily. we then had to wait a week but we now have a named social worker and are currently waiting for contact from a family support team to see if they can offer any help.
  • mysterywoman10
    • #6
    • 22nd Mar 13, 8:17 AM
    • #6
    • 22nd Mar 13, 8:17 AM
    Hi AlwaysHappy

    Sorry to hear you are having problems accessing support for your son and family.

    Can I ask a couple of questions, so I can try and give you a bit more specific advice as you mention he is registered disabled?

    Is your son in a special school or mainstream school, does he have an Educational Statement?

    Does he receive DLA middle or higher rate care? (I'm asking this because it can be used in eligibility criteria for services) it is tending to happen more now even in children's services.

    It's unusal in my experience for GP's these days to get involved in these things. All LA's have different set-ups when it comes to children. Some like ours have contracted out services to Disabled Children for Social Work which is now part of Education services as well. Previously NCH ran the Social Work Team for Children with Disabilities in our area.

    Phoning the initial assessment team as suggested above is a good one but it will depend on the LA on how it then gets dealt with.

    Even children who are already in the system with disabiliies and receiving services face problems getting hold of their Social Workers and many are agency staff so no continuity. Not wanting to put you off but the more information you can give it might be easier to help.

    The other thing that was mentioned above was charities, in our area there are some quite active groups of parents who are involved in supporting each other and get involved in planning services or try to! Do you know of any groups like this or other parents with a child with disabilities that you access?
    The most wasted day is one in which we have not laughed.
  • AlwaysHappy
    • #7
    • 22nd Mar 13, 3:50 PM
    • #7
    • 22nd Mar 13, 3:50 PM
    Hi AlwaysHappy

    Sorry to hear you are having problems accessing support for your son and family.

    Can I ask a couple of questions, so I can try and give you a bit more specific advice as you mention he is registered disabled?

    Is your son in a special school or mainstream school, does he have an Educational Statement?

    Does he receive DLA middle or higher rate care? (I'm asking this because it can be used in eligibility criteria for services) it is tending to happen more now even in children's services.

    It's unusal in my experience for GP's these days to get involved in these things. All LA's have different set-ups when it comes to children. Some like ours have contracted out services to Disabled Children for Social Work which is now part of Education services as well. Previously NCH ran the Social Work Team for Children with Disabilities in our area.

    Phoning the initial assessment team as suggested above is a good one but it will depend on the LA on how it then gets dealt with.

    Even children who are already in the system with disabiliies and receiving services face problems getting hold of their Social Workers and many are agency staff so no continuity. Not wanting to put you off but the more information you can give it might be easier to help.

    The other thing that was mentioned above was charities, in our area there are some quite active groups of parents who are involved in supporting each other and get involved in planning services or try to! Do you know of any groups like this or other parents with a child with disabilities that you access?
    Originally posted by mysterywoman10
    Thanks for all the replies. My son is 15, has a statement, is in a school for learning difficulties. His diagnosis is aspergers and learning delay (oh and mild cerebal palsy for good measure) - he probably functions as an 8 year old.
    I had an assessment about 2 years ago for support over the phone - I hadn't realised it was an assessment!!! and didn't meet the grade.
    I am getting more and more concerned that he doesn't get any support - has no friends or social support (he does go to youth clubs and disability football) but only his dad and i for support - dad often away with work and I have M E so its a struggle, though we are capable parents, happily married and rational, he isn't at risk from us and so we must struggle and juggle..........
    Sealed pot challenge member 205
    733.70 2014
    365 in 365 days member 29 60/365

    I'm not a failure if I don't make it, I'm a success because I :tried!
  • Lisa b
    • #8
    • 22nd Mar 13, 4:04 PM
    • #8
    • 22nd Mar 13, 4:04 PM
    Hi there, you need to ring social services and tell them that you want an assessment for him and for yourself as a carer. Tell them you are desperate and that your needs are critical. They will only give you help if you tell them how bad it is and how hard it is to cope and the situation is so bad that the family will suffer and face hardship without support due to all these cuts (threshold has changed!.) it sounds like you really do need help though so make sure they know your needs have changed in the last few years. The assessment is about all that you do and what would happen if you didn't. If you need any advise I have some expertise so inbox me! Good luck
    Last edited by Lisa b; 22-03-2013 at 4:06 PM.
  • SEE
    • #9
    • 22nd Mar 13, 5:12 PM
    • #9
    • 22nd Mar 13, 5:12 PM
    Hi there, you need to ring social services and tell them that you want an assessment for him and for yourself as a carer. Tell them you are desperate and that your needs are critical. They will only give you help if you tell them how bad it is and how hard it is to cope and the situation is so bad that the family will suffer and face hardship without support due to all these cuts (threshold has changed!.) it sounds like you really do need help though so make sure they know your needs have changed in the last few years. The assessment is about all that you do and what would happen if you didn't. If you need any advise I have some expertise so inbox me! Good luck
    Originally posted by Lisa b
    Will you also tell her that her son will be sectioned if she asks for help? Far too many people are unaware of just how evil and lazy social services are. Once they get their claws into the disabled and conveniently find them to have no capacity they pull them into a system that milks them dry and leaves them to rot.
    http://community.autism.org.uk/discussions/health-wellbeing/parents-carers/urgent-case-stephen-neary
    ~~~~~~~~~~~~
    Halifax, taking the Xtra since 1853:rolleyes:
    ~~~~~~~~~~~~
  • mysterywoman10
    Thanks for all the replies. My son is 15, has a statement, is in a school for learning difficulties. His diagnosis is aspergers and learning delay (oh and mild cerebal palsy for good measure) - he probably functions as an 8 year old.
    I had an assessment about 2 years ago for support over the phone - I hadn't realised it was an assessment!!! and didn't meet the grade.
    I am getting more and more concerned that he doesn't get any support - has no friends or social support (he does go to youth clubs and disability football) but only his dad and i for support - dad often away with work and I have M E so its a struggle, though we are capable parents, happily married and rational, he isn't at risk from us and so we must struggle and juggle..........
    Originally posted by AlwaysHappy
    Thanks for the reply AH. Firstly they should be starting transition if he is in a special school and statemented (in theory this starts in year 9!) I would ask to speak to the Headteacher and see if they can give you some support as well, ask about what is happening about his transition as I explained above Education is now supposed to be linked in with all of this with Social Services.

    Do they have a group of mums at the school that meet? Always good to get in touch with other mums as I suggested. The mums in our area have a F/B page and it is very vibrant supported by a grant from the lottery (not the f/b page the group).

    Yes ask for another assessment of need and not over the phone also ask for a carer's assessment for yourself and your husband and get the school to support you. The Social Worker should also be at Annual Review do you know when that next is especially now when he is above year 9?

    Both the school and social services together should be helping you to plan for the future. And if they don't and you are still struggling to get some services then write a complaint letter.

    Don't hesitate to ask if you need anymore help and feel free to pm me as well if you want to. Really hope you get some more help soon in planning for his future. x
    The most wasted day is one in which we have not laughed.
  • elsien
    Will you also tell her that her son will be sectioned if she asks for help? Far too many people are unaware of just how evil and lazy social services are. Once they get their claws into the disabled and conveniently find them to have no capacity they pull them into a system that milks them dry and leaves them to rot.
    http://community.autism.org.uk/discussions/health-wellbeing/parents-carers/urgent-case-stephen-neary
    Originally posted by SEE

    Stop scaremongering and get a grip. This case is 3 years old and since then the Mental Capacity act and Deprivation of Liberty Safeguards have come into force. Uneccessarily putting the wind up people who need help is really not a helpful response.
    All shall be well, and all shall be well, and all manner of things shall be well.

    Pedant alert - it's could have, not could of.
  • mysterywoman10
    AH

    The link below might be useful and it explains what should be happening. And I should have mentioned Connextions (although the term used has changed in our area for the organisation)

    http://www.specialkidsintheuk.org/lifestyle/transition-further-and-higher-education.html#

    Also if you phone Contact a Family they will be able to give you some support and advice as well.

    http://www.cafamily.org.uk/what-we-do/
    The most wasted day is one in which we have not laughed.
  • SEE
    Stop scaremongering and get a grip. This case is 3 years old and since then the Mental Capacity act and Deprivation of Liberty Safeguards have come into force. Uneccessarily putting the wind up people who need help is really not a helpful response.
    Originally posted by elsien
    Are you serious? Are you aware of how many disabled people are having their capacity changed to shift them into private sector residential homes? It isn't scaremongering its a fact.
    ~~~~~~~~~~~~
    Halifax, taking the Xtra since 1853:rolleyes:
    ~~~~~~~~~~~~
  • verysillyguy06
    Thanks for the reply AH. Firstly they should be starting transition if he is in a special school and statemented (in theory this starts in year 9!) I would ask to speak to the Headteacher and see if they can give you some support as well, ask about what is happening about his transition as I explained above Education is now supposed to be linked in with all of this with Social Services.

    Do they have a group of mums at the school that meet? Always good to get in touch with other mums as I suggested. The mums in our area have a F/B page and it is very vibrant supported by a grant from the lottery (not the f/b page the group).

    Yes ask for another assessment of need and not over the phone also ask for a carer's assessment for yourself and your husband and get the school to support you. The Social Worker should also be at Annual Review do you know when that next is especially now when he is above year 9?

    Both the school and social services together should be helping you to plan for the future. And if they don't and you are still struggling to get some services then write a complaint letter.

    Don't hesitate to ask if you need anymore help and feel free to pm me as well if you want to. Really hope you get some more help soon in planning for his future. x
    Originally posted by mysterywoman10
    Thanks for all the replies. My son is 15, has a statement, is in a school for learning difficulties. His diagnosis is aspergers and learning delay (oh and mild cerebal palsy for good measure) - he probably functions as an 8 year old.
    I had an assessment about 2 years ago for support over the phone - I hadn't realised it was an assessment!!! and didn't meet the grade.
    I am getting more and more concerned that he doesn't get any support - has no friends or social support (he does go to youth clubs and disability football) but only his dad and i for support - dad often away with work and I have M E so its a struggle, though we are capable parents, happily married and rational, he isn't at risk from us and so we must struggle and juggle..........
    Originally posted by AlwaysHappy


    Hi AH,

    Mysterywoman is partially right but let me set it straighter:

    You can try different things depending on your Local Authority.

    The system wherever usually goes on the least 'official' route first and would suggest to try not get a Social worker to provide families with other option as they often feel threatened by the prospect of needing a social worker despite them being all human, I promise...

    A. First question: Have you ever had a CAF = Common Assessment Framework? Usually done by school

    http://www.education.gov.uk/childrenandyoungpeople/strategy/integratedworking/caf/a0068957/the-caf-process

    This could lead you to :

    B. The Integrated Services. This is usually for children with mild to moderate needs but does not usually allow Direct Payments. It is also not the same in every county :


    http://www.northyorks.gov.uk/CHttpHandler.ashx?id=12503&p=0

    For example and it may be similar in your area

    C. Ask the Customer Services for a referral to Disabled Children's team . you can self refer.This would lead to an Initial assessment. However, the call you talked about you had, may have been a 'screening ' process where you did not meet their 'eligibility' criteria but they should have offered different advice too

    Some general comments: MW is quite right. You could contact the Carers Centre : http://www.yorkcarerscentre.co.uk/

    For example... and ask for a carers' assessment and lastly, have you ever thought getting your own assessment from Adult Social Care ?

    Hope this help
    You have the right to remain silent.Anything you do say will be misquoted and then used against you

    Knowledge will give you power, but character respect.

    Bruce Lee
  • mysterywoman10
    If he is in a Special School which he is with a statement, I would expect them not be going the least 'official' route. They should be planning for his leaving school and that may be a college placement etc. Specialist college funding is still available and a good connextions officer should be able to help with this.

    Social Work side additional advice there is very helpful, eligibilty criteria is a big factor.

    Self referal to Adult Social care is worth a try.
    The most wasted day is one in which we have not laughed.
  • verysillyguy06
    If he is in a Special School which he is with a statement, I would expect them not be going the least 'official' route. They should be planning for his leaving school and that may be a college placement etc. Specialist college funding is still available and a good connextions officer should be able to help with this.

    Social Work side additional advice there is very helpful, eligibilty criteria is a big factor.

    Self referal to Adult Social care is worth a try.
    Originally posted by mysterywoman10
    Nope, over 80% of pupils with a statement are not open to Social Care....two very different criteria. Connexions is more often than not now IGEN workers but they should help. Without a referral, assessment and outcome, no-one else may become involved

    You have the right to remain silent.Anything you do say will be misquoted and then used against you

    Knowledge will give you power, but character respect.

    Bruce Lee
  • murrayfan
    Good luck with it!. We begged for help with our son when he was younger (he's now 16), mainly because he ONLY has us, me and his (disabled) dad. We wanted a bit of a support network for emergencies at least. Seems this is impossible these days!. We had a family social worker who stuck his beak in and told me I should be making my son (then 12 and with Aspergers and Dyspraxia) do his own washing, make simple meals, etc!!!. I told him I rather liked to have my washing machine in working condition and my son burn-free! .

    My advice would be to get the assessment done, but don't expect too much, you might be better off trying to make some local contacts with parents who are in similar situations. Mine is now preparing for college and even though connexions were (kind of) involved, we've had to find everything out for ourselves.
  • verysillyguy06
    Good luck with it!. We begged for help with our son when he was younger (he's now 16), mainly because he ONLY has us, me and his (disabled) dad. We wanted a bit of a support network for emergencies at least. Seems this is impossible these days!. We had a family social worker who stuck his beak in and told me I should be making my son (then 12 and with Aspergers and Dyspraxia) do his own washing, make simple meals, etc!!!. I told him I rather liked to have my washing machine in working condition and my son burn-free! .

    My advice would be to get the assessment done, but don't expect too much, you might be better off trying to make some local contacts with parents who are in similar situations. Mine is now preparing for college and even though connexions were (kind of) involved, we've had to find everything out for ourselves.
    Originally posted by murrayfan
    Have you tried to approach Adult Social care ? Seeing that it is you and not your child's difficulties that need support?
    You have the right to remain silent.Anything you do say will be misquoted and then used against you

    Knowledge will give you power, but character respect.

    Bruce Lee
  • AlwaysHappy
    well, thanks for the responses. I have a meeting with connexions in the morning so will take it from there, there has been some sound advice which I need to look into. We don't get any help at the moment, seem to be dropping through the cracks........
    Sealed pot challenge member 205
    733.70 2014
    365 in 365 days member 29 60/365

    I'm not a failure if I don't make it, I'm a success because I :tried!
  • mysterywoman10
    Nope, over 80% of pupils with a statement are not open to Social Care....two very different criteria. Connexions is more often than not now IGEN workers but they should help. Without a referral, assessment and outcome, no-one else may become involved

    Originally posted by verysillyguy06
    I think we were both kind of saying the same thing that if he didn't meet the eligibility criteria for Social Care they wouldn't be involved but that the school should still be assisting in planning for leaving school, if he is in a special school.
    The most wasted day is one in which we have not laughed.
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