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DLA and cancer
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# 1
filigree
Old 18-08-2006, 1:39 PM
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Unhappy DLA and cancer

I've just been diagnosed with advanced cancer and they tell me it is "treatable" but not "curable". Some people in my position keep going for years, but I will probably always need medical treatment, and I will be less healthy than normal. I'll also be vulnerable to infections and other health problems. In addition to the chemo side effects there is the possibility that the cancer itself will show symptoms.

Under the circumstances I am considering claiming DLA. I don't qualify for the "special rules" or whatever they call it because it's not terminal, so I'll have to wait three months and claim under the normal rules. In three month's time I'll have a clearer idea of what symptoms need to go on the forms.

Obviously all claims vary according to the individual, but broadly speaking would long-term chemo be acceptable as grounds for a DLA claim? I have access to "professional" advice but I wondered if anyone had personal experience they were willing to share.
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# 2
shelly
Old 18-08-2006, 2:49 PM
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Hi

I'm very sorry to hear of your cancer.


Have you thought about Incapacity Benefit? I don't know the difference between IB and DLA but I have just finished a short term IB claim for my dignosis of cervical cancer. I claimed from the day of diagnosis up until just this week. The forms were very easy to fill in and I just had to send in a doctors sick note with the form.


Good Luck and best wishes
Love isn't finding someone you can live with. It's finding someone you can't live without
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# 3
MBN
Old 18-08-2006, 3:25 PM
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Hi filigree,

Sorry for not being able to help on this matter, with which I'm not familiar at all. I just wanted to send you a big hug, and to wish you all the best.

Take care
'Into every abyss I still bear the blessing of my affirmation' (Friedrich Nietzsche)
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# 4
loobyloo1980
Old 18-08-2006, 3:56 PM
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Sorry to hear about your cancer diagnosis, I hope the treatment you can have works well and that you stay as healthy and fit as you can. I don't know much about DLA or IB, but just wanted to say good luck and take care.
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# 5
healy
Old 18-08-2006, 4:40 PM
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You don't actually need particular grounds for a DLA claim as it is not so much the illness or disability they are concerned with but more how it leads to care or mobility needs.
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# 6
wirehair
Old 18-08-2006, 4:49 PM
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Hi,Filigree,


So Sorry to hear of your news. My Husband was told he had cancer,just over three years ago. He could not work because of the amount of treatment he was having and the effects of this. The Macmillian nurse told us to put in a claim for DLA and to get our GP.to sign the form (special Rules). He was awarded full rate for both care and mobility. After treatment (6 months) he returned to work , they stopped payment,,even though he could not do the job that he used to do, (due to surgery).His firm found an easy job for him to do,less hours and less pay. After appealing it was reinstated and he is still recieving it. He was made redundant last Xmas.So is now on I.B. aswell. So I would advise to claim DLA they can only say no, even if you decide to wait the three months before claiming.I wish you all the best with your treatment.
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Last edited by wirehair; 18-08-2006 at 5:12 PM.
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# 7
Macnab
Old 18-08-2006, 4:58 PM
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My Mum has been diagnosed with treatable cancer and the Macmillan nurse came round and filled in every last form she could to make sure Mum had as many benefits as she was entitled too, including using the special rules to get the full amount and straight away. She's had radio therapy and now Chemo and we just cope with every day as it comes - some are better than others.
Good luck
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# 8
viktory
Old 18-08-2006, 6:43 PM
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Hi

Sorry to hear of your illness. This thread is of particular interest to me as a friend of mine i sin a similar situation. She has been on SSP for ages and receives no benefits at all. I will advise her to talk to someone to see if she can claim.
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# 9
Jummy
Old 19-08-2006, 1:40 AM
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My dad was diagnosed with terminal lung cancer in feb and receives DLA under the 'special rules' criteria.
I would put in a claim and ask your doctor if he will sign the 'special rules' form for you.
Good luck with your treatment!
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# 10
looby75
Old 19-08-2006, 2:13 AM
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filigree, my uncle was diagnosed with "treatable, but not curable" prostate cancer about 2 years ago. He has been getting help from Macmillan nurses ever since he was diagnosed and they have been a godsend to him.

FWIW he has good days and bad days, he has low level radiotherapy treatment every few weeks that leaves him tired and a bit drained for a couple of days and as you say he is more inclined to pick up bugs/colds etc, but on the whole he still gets on with life pretty well.

Do contact the Macmillian nurses if you can, they are angels on earth and not only there to help deal with the physical symptoms of cancer, they can and will help you in other areas to.

good luck and I hope you keep well.

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# 11
cidergirl
Old 24-08-2006, 12:04 AM
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i was sorry to hear about your cancer hope your feeling ok i had to reply to this thread as my mum went through similar problems with claiming benefits she was diagniosed with ovarian cancer and had 2 years of treatment unfortunately i lost her 3 years ago now but at the time 5 years ago the macmillan nurse filled in the forms for her saying how far she could walk etc and she got the dla and always felt guilty about claiming it i told her she was being silly and as she had worked and paid a stamp for more than 3 years she could also claim incapacity allownace the doctor needs to do you a sick note for this hope this all helps
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# 12
Skiduck
Old 24-08-2006, 12:13 AM
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my mum was diagnosed with "treatable" cancer over 17 years ago, still on the drugs but still feisty - hope this helps.
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# 13
wisewoman
Old 24-08-2006, 10:29 AM
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Hi filigree!
There is help to get you both through this difficult, horrible time, but we seem to stumble about in the dark, before bumping in to the right people. My best support was from Sheila Kydd at the Maggie's Centre in Dundee, and the Citizen's Advice people in Cupar, who helped me fill in lengthy forms. I did not get DLA in the end, but received a Macmillan grant, and I'm now on Incapacity Benefit. www.maggiescentres.org All the best. XX
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# 14
Turning_into_scrooge
Old 24-08-2006, 11:12 AM
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Quote:
Originally Posted by healy
You don't actually need particular grounds for a DLA claim as it is not so much the illness or disability they are concerned with but more how it leads to care or mobility needs.
If this is correct then why can't a friend of mine who is a very bad diabetic cannot get any component of the DLA when she needs help during the day and at night? Also someone else i know who also has fibromyalgia same as me and is just as bad as i am was refused to even be sent the application forms out? I get low rate care at the mo which is going through appeal with WR and high rate mobility. Allot of it seems to be what area you are in and who you speak to on the phone. They seem to change the rules as they go along. I agree with you, it isn't the actual disabillity but the care needs, but if they can avoid giving it they will do. OP please don't let me put you off claiming but do be aware that is can be very stressful and upsetting at times too. I said to my WR adviser that i don't feel i want to ever claim the care component again after the next 3 years due to the stress it put me under
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# 15
filigree
Old 25-08-2006, 10:53 PM
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Thanks for everyone's replies, I can't get online much now I'm not at work with access to lovely free broadband.

Quote:
Originally Posted by Turning_into_scrooge
Also someone else i know who also has fibromyalgia same as me and is just as bad as i am was refused to even be sent the application forms out?
I'm surprised at that one, I found it easy to get the blank form when I claimed for my son - it's filling it in that's hard! I do know a bit about claiming DLA but only in reference to my son's needs.

I can't get IB because I'm on full paid sick leave, but I'll bear it in mind for the future if and when sick leave runs out.

I've found that claiming DLA is a real chore when you fill in the forms, but in my son's case we were "lucky" (if that's the right word) because they paid up without any quibbles. Maybe my magic touch will work on my own claim.
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# 16
maryotuam
Old 26-08-2006, 5:53 AM
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Hi
So sorry about your diagnosis. I was diagnosed with untreatable cancer over four years ago but all the medical professionals agreed that I had less than 6 months to live (the criteria for special rules DLA). Obviously they were wrong as I am still here and so is my cancer but I managed to get both DLA and Incapacity Benefit at the higher rate.

I agree with other posters that you should ask your your GP to fill out a special rules form saying that you might not live less than six months. That doesn't necessarily mean you won't live longer.

The money has been a great help as my husband had been made redundant the previous year. The last thing you need when living with a diagnosis such as yours is money worries.

Some Marie Curie hospices have a benefits advisor that is dedicated to helping people with cancer.
Good luck
It's great to be ALIVE!

Last edited by maryotuam; 26-08-2006 at 5:58 AM.
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# 17
musey
Old 26-08-2006, 7:00 AM
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My father was diagnosed with untreatable cancer in 1997, we applied for DLA and carers allowance etc he passed away very quickly. Ironically on the day he died he received a letter deeming him "not ill" enough for benefits!!
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# 18
antsean
Old 26-08-2006, 12:40 PM
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Hi there! I was diagnosed with cancer in Dec 2002 and have been in receipt of D.L.A since Feb 2003. I did at one point have to take them to a tribunal to get my money however, which is the last thing anyone needs, but thats the world we live in! I would say from past experience with this horrible disease that your chemo is valid towards your claim as it will often make you feel pretty grotty. Not only that, you have to bear in mind that its not just the physical aspect but also how being told you have cancer has affected and maybe changed you as a person-this should all be put down in your claim form. If you have time then check out www.benefitsinmind.org.uk. I found this very helpful when preparing for my tribunal hearing. I still believe firmly to this day that anyone needing to claim D.L.A should get letters from their GP, specialists and any other health professional that you have dealings with-you will find that most will happily oblige.Also ask them to contact you if they receive any letters from the DWP, so you can make an appointment to go and see them to make sure they put down how your daily life is healthwise. Remember-only you know how you are feeling ,so you have the right to make sure that the information people are exchanging about you is correct! I did it and it worked! All the very best wishes! Antsean
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# 19
Turning_into_scrooge
Old 26-08-2006, 2:34 PM
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Quote:
Originally Posted by filigree
Thanks for everyone's replies, I can't get online much now I'm not at work with access to lovely free broadband.



I'm surprised at that one, I found it easy to get the blank form when I claimed for my son - it's filling it in that's hard! I do know a bit about claiming DLA but only in reference to my son's needs.

I can't get IB because I'm on full paid sick leave, but I'll bear it in mind for the future if and when sick leave runs out.

I've found that claiming DLA is a real chore when you fill in the forms, but in my son's case we were "lucky" (if that's the right word) because they paid up without any quibbles. Maybe my magic touch will work on my own claim.
They turned round and said she didn't need any help even though she had told them what help she needed over the phone. She had to fight to get a pack sent out and then had to appeal the decision which she won. I have spoken to some really lovely caring people at DLA but the one i was put through to to query my decision was aggressive and rude, gave me the feeling that she didn't agree with this benefit being available.
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# 20
filigree
Old 15-06-2007, 12:21 AM
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Thanks again to everyone who commented

I spoke to the MacMillan nurse and she said I could definitely apply under Special Rules and she told the consultant he had to fill the form in I have been awarded the Higher Rate and a lovely lump sum just appeared in my bank account.

I'm still having treatment but for the time being I'm able to work, and I just got engaged Life isn't all bad!
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