DLA and Sleep Aponea
Comments
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needabargainorjusthelp wrote: »he has only recently been diagonsed so a lot of the things we have had to put in place where already being done before his diagonosis, for safety it was obvouis that driving is unsafe and he only does short journeys that he can cope with if he can not then i have to drive, i just think it is shocking that people think people with sleep apnea (sorry if i spelt it wrong but no one has given me any leaflets on it and it varys on the internet) need no extra care.
One problem is that you haven't answered the question about what treatment he's receiving and the progress he's making. For many people, sleep apnoea is easily treated by the use of a cpap and, if he's only recently been diagnosed, it may well be too early to know whether he's going to have any care needs after treatment.
Personally, I'd be more worried about the fact that he's still driving and less worried about what benefits he can claim!0 -
needabargainorjusthelp wrote: »he has only recently been diagonsed so a lot of the things we have had to put in place where already being done before his diagonosis, for safety it was obvouis that driving is unsafe and he only does short journeys that he can cope with if he can not then i have to drive, i just think it is shocking that people think people with sleep apnea (sorry if i spelt it wrong but no one has given me any leaflets on it and it varys on the internet) need no extra care.
In your own words:
for safety it was obvious that driving is unsafe
It doesn't really matter how long he's driving for, he is putting innocent lives at risk and that is very very selfish of him.There is something delicious about writing the first words of a story. You never quite know where they'll take you - Beatrix Potter0 -
OP - you need to give yourself a kick up the backside.
Do you not understand that everyone who uses a CPAP machine has the same sort of issues you've described? They are uncomfortable and can take weeks to get used to. If you are in any way serious about getting yourself better, then you'd either be persevering with the machine or going back to your specialist for further advice.
I understand that this post is going to fall on deaf ears and you're just going to come up with more excuses as to why your situation is different blah blah blah - don't bother. Any excuse is a lame excuse - you need to persevere with the machine.
Also - I notice that you've stated that you eat a lot of junk food. You do realise that carrying excess weight exascerbates the condition? You're doing yourself no favours at all.
And as for cleaning up after yourself - there is only one of you. If you're too tired to clean up - how can you possibly have enough energy to make a mess in the first place?
As for the the other poster - I sincerely hope that your husband is no longer driving until he's got this under control?"One day I realised that when you are lying in your grave, it's no good saying, "I was too shy, too frightened."
Because by then you've blown your chances. That's it."0 -
It took me ages to get used to my CPAP equipment and I had to go through four types of mask before I found the one I was comfortable with. I eventually ended up with an S8 escape CPAP machine coupled to a Respironics comfort gel nasal mask....absolutely nothing else works for me and I'm now completely comfortable with this set up.
This device changed my life, I simply couldn't contemplate not using the device now I have it.
The flip side is I've put on weight, the consultant I had had a chat with me about this, they were running a study at the hospital and over 90% of the sucessful CPAP patients put on a substantial amount (in my case nearly 2 stone). It's all down to having ahealthy appetite that you've never had before due tot he new found energy levels....or so they think.
Anyway, try other masks, it's the only way to make it work.0 -
Im interested in this thread as I started a new job a year ago.
I only got diagnosed 2 years back and only after 3 years of nagging and changing GPS.
I was 'encouraged' to take redundancy after 18 years with my last employer as they were not prepared to put up with my excessive sleepiness at work any longer. The time I spent unemployed gave me the time to to to a GP, INSIST on sleep trials etc
I too had/have a CPAP but it was on short term loan from the NHS, now they want it back and I've to buy my own at some considerable cost. (£600-800)
I too could not get on with it as I move about in my sleep and have even been known to be sick in my sleep and rip it off before I choke on my own vomit ( I know - TMI but there you have it)
As I've now been asked to 'reconsider my employment with this company' in a letter from my present employers, It can only be they want me to leave quietly rather than being pushed.
I'm a single Mum and dont relish being unemployed again. Before my last but one job I served in HM forces but because I was an Engineer working on the Flight Line outside in fresh air and doing shifts (also I slept alone) my condition went un-noticed. It was only when I had kids and was forced to leave (rules back then meant you had to leave if you had children) that I began to share a bed full time with my husband and my condition worsened as he poked prodded me all night until I got no sleep at all. Coupled with kids and the fact he couldn't hold a job down due to HIS lack of sleep (due to me keeping HIM awake) meant we eventually divorced
So please anyone do not take Sleep Apnoea lightly, I find if I keep active I'm ok however whilst not banned from driving I choose NOT to as I wont put others at risk
I'd be interested in the outcome of this thread.
I'm sure Sleep Apnoea is covered under the Disability Discrimation Act if so then shouldn't anyone who has it get DLA or incapacity benefit?
If you are 'unable to work' then isn't it Incapity Benefit the OP needs to be looking at?
My employer has no issues with the quality of my work WHEN I AM AWAKE but the fact I snore at my desk and need poking awake does not look good when they show prospective clients about.
Sorry for hi-jacking the thread but it's a vicious circle of tiredness. Some nights I fell asleep before I even got as far as putting my mask on!
Some nights I dont even get as far as un-dressing as I sit down on the bed and then 'lose' 10 hours!
I can't offer any solutions but empathise with the OP about needing to be 'reminded' to do things or need motivating, I 'exist' from day to day and have no real quality of life and that's not nice for me or my kids.
Fortunately I have a wonderfull non-resident partner (non resident due to MY snoring *lol*) who despite his disability takes me out once a week to break my routine and I find this helps break the cycle of 'why me'? but of course doesn't solve it
Hope you get it sorted - as for me only another £599 to save up and I can have a CPAP again, meantime looks like I may be signing on again *sigh*
Take Care..........
Batty0 -
Why can't you have a CPAP on the NHS if that is the treatment you require?(AKA HRH_MUngo)
Member #10 of £2 savers club
Imagine someone holding forth on biology whose only knowledge of the subject is the Book of British Birds, and you have a rough idea of what it feels like to read Richard Dawkins on theology: Terry Eagleton0 -
seven-day-weekend wrote: »Why can't you have a CPAP on the NHS if that is the treatment you require?
To answer, you certainly can get permanent CPAP treatment on the NHS.
Sleep apnoena isn't an untreatable condition. CPAP takes time and effort to get used to. It's not pleasant. But it is very effective once you persevere.
Losing weight can also make a big difference."One day I realised that when you are lying in your grave, it's no good saying, "I was too shy, too frightened."
Because by then you've blown your chances. That's it."0 -
BatOutOfUll wrote: »I'm sure Sleep Apnoea is covered under the Disability Discrimation Act if so then shouldn't anyone who has it get DLA or incapacity benefit?
The name of the diagnosis is irrelevant. if you (or anyone else with SA) doesn't have any needs, then you don't qualify. Simple as that.Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
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Strikes me that the OP would be better employed (if you'll pardon the pun!) getting used to the CPAP, then getting a job. That will help alleviate the depression and give his poor mother a break!0
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To answer, you certainly can get permanent CPAP treatment on the NHS.
Sleep apnoena isn't an untreatable condition. CPAP takes time and effort to get used to. It's not pleasant. But it is very effective once you persevere.
Losing weight can also make a big difference.
Oh yes, I realise that as a friend of mine has it treated with a CPAP on the NHS, so I wondered why the poster above was having to pay £800 for one. Still puzzled as to why.(AKA HRH_MUngo)
Member #10 of £2 savers club
Imagine someone holding forth on biology whose only knowledge of the subject is the Book of British Birds, and you have a rough idea of what it feels like to read Richard Dawkins on theology: Terry Eagleton0
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