PDA

View Full Version : Dystonia


joella
14-04-2008, 1:18 PM
Hi I was just wondering if anyone on here suffers from dystonia, and what treatments have been offered besides botox, I have a hemifacial spasm which cause my right eye to twitch but in spasms closing my eye and distorting my face, I have been having botox injections around my right eye 3 monthly for around 2yrs now but they dont seem to be lasting as long in fact this time hardly worked at all, anyone else on here with same problems....Joy

ceridwen
15-04-2008, 7:37 AM
Hi

Cant help direct - but I am 99% certain there is a dystonia support group - if you try googling you should be able to find them. (NB: If it proves difficult you might find info through the RSI Association - as its allied with Repetitive Strain Injury).

Savvy_Sue
19-04-2008, 12:29 AM
MEDICAL ADVICE

Hi, Martin’s asked me to post this: Sorry, giving or asking for medical advice is not permitted on this forum as it’s not what this site is about. While discussing medical insurance policies, cheaper ways to see consultants, cashback for alternative health treatments and how to get specific medication cheaper (legally) are all perfectly acceptable we ask you specifically not to discuss what to do in the event of certain medical problems (please see this rule (http://forums.moneysavingexpert.com/showthread.html?t=31048) on the Health Board). If you have any questions about this policy please email abuse@moneysavingexpert.com (abuse@moneysavingexpert.com).