Athravan
20-10-2006, 10:18 AM
Well I'm still awaiting results from my colon biopsy and from my food intolerance blood tests...
In the meantime, lucky me, I had an ultrasound and they found what they *think* is a pancreatic pseudocyst. I got this info just from the ultrasound guy - it was what they were looking for, and he said it does look like there is one there, but I'm going to have to have a CT scan to confirm again the current state of my pancreas (yay) and probably wait 2-3 months as usual for that, then another 2-3 months to actually see my abdomen consultant. He also said the consultant will probably want to do a pancreatography before deciding if action is required.. I don't even know what that is!
Does anyone know how they know it's a pseudocyst and not a proper cyst... and I'm just not sure what i'm supposed to do with this information. He told me my medication wouldn't change so there was no need to rush the extra scans urgently as they often go away on their own, and it probably wouldn't be operated and drained unless the CT scan found it was doing damage to something, or was continuing to get bigger.
Are there any supplements or a change of diet which will help it get lost?
I'm a little annoyed, it has been 13 months since I last had an attack of acute pancreatitis, in that time, I have had 3 ultrasounds, 2 CT scans, and MRI and an operation (not on the pancreas) and I was told I did not have any problems with my pancreas. Now I ask, well, did it just form right now? Why is it forming 13 months after the pancreatitis? And they said.. it was probably there all the long, sometimes the machines don't pick it up, but it might have gotten bigger.
I'm really not getting any information, the consultant has huge waiting lists and I'm confused - if it's been there 13 months, is it getting bigger or not? Is it going to go away on it's own after 13 months? And i guess most importantly - is there anything I can do in the meantime that will help it's progress in getting smaller, or even worse... am i doing something that's making it worse?
I also feel that my GP is just tired of seeing me, he is always fairly abrupt and brief and when i ask questions he always seems exasperated. I have a long list of medical problems and I know it's hard for him to have to keep seeing me for different things, sometimes he makes me feel like I'm a hypocondriac - he didn't even want me to go and see a specialist in the first place last year, said I was having indigestion - I ended up spending over a month in hospital after an emergency - because he hadn't taken my pain seriously and referred me.
Just feeling very frustrated and scared right now, I'm 24 and have been off work for 16 months and it seems that they keep saying "right, this test and you'll be fine, this one, you'll be fine - don't worry, a little operation, 10 weeks rest and you'll be back to work..." then it switched to, well, more tests.. maybe another operation.. now this as well!
Any advice/experience would be appreciated. Sorry for long post.
In the meantime, lucky me, I had an ultrasound and they found what they *think* is a pancreatic pseudocyst. I got this info just from the ultrasound guy - it was what they were looking for, and he said it does look like there is one there, but I'm going to have to have a CT scan to confirm again the current state of my pancreas (yay) and probably wait 2-3 months as usual for that, then another 2-3 months to actually see my abdomen consultant. He also said the consultant will probably want to do a pancreatography before deciding if action is required.. I don't even know what that is!
Does anyone know how they know it's a pseudocyst and not a proper cyst... and I'm just not sure what i'm supposed to do with this information. He told me my medication wouldn't change so there was no need to rush the extra scans urgently as they often go away on their own, and it probably wouldn't be operated and drained unless the CT scan found it was doing damage to something, or was continuing to get bigger.
Are there any supplements or a change of diet which will help it get lost?
I'm a little annoyed, it has been 13 months since I last had an attack of acute pancreatitis, in that time, I have had 3 ultrasounds, 2 CT scans, and MRI and an operation (not on the pancreas) and I was told I did not have any problems with my pancreas. Now I ask, well, did it just form right now? Why is it forming 13 months after the pancreatitis? And they said.. it was probably there all the long, sometimes the machines don't pick it up, but it might have gotten bigger.
I'm really not getting any information, the consultant has huge waiting lists and I'm confused - if it's been there 13 months, is it getting bigger or not? Is it going to go away on it's own after 13 months? And i guess most importantly - is there anything I can do in the meantime that will help it's progress in getting smaller, or even worse... am i doing something that's making it worse?
I also feel that my GP is just tired of seeing me, he is always fairly abrupt and brief and when i ask questions he always seems exasperated. I have a long list of medical problems and I know it's hard for him to have to keep seeing me for different things, sometimes he makes me feel like I'm a hypocondriac - he didn't even want me to go and see a specialist in the first place last year, said I was having indigestion - I ended up spending over a month in hospital after an emergency - because he hadn't taken my pain seriously and referred me.
Just feeling very frustrated and scared right now, I'm 24 and have been off work for 16 months and it seems that they keep saying "right, this test and you'll be fine, this one, you'll be fine - don't worry, a little operation, 10 weeks rest and you'll be back to work..." then it switched to, well, more tests.. maybe another operation.. now this as well!
Any advice/experience would be appreciated. Sorry for long post.